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The impact of organizational supports on the person‐centered health of people with intellectual and developmental disabilities
- Authors:
- FRIEDMAN Carli, RIZZOLO Mary C., SPASSIANI Natasha A.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 17(1), 2020, pp.70-78.
- Publisher:
- Wiley
People with intellectual and developmental disabilities (IDD) have significantly poorer health than the general population. A key threat to health programs for people with IDD is commitment from stakeholders, especially service organizations. The aim of this study was to explore the role disability service organizations play in promoting the best possible physical and mental health of people with IDD. To do so, this study analyzed secondary Personal Outcome Measures® data from 1,341 people with IDD in the United States using binary logistic regressions. The findings revealed that organizational supports can play a key role in promoting the health of people with IDD. By paying attention to all of these aspects of health and supports, especially discrepancies in supports, service organizations can work to counteract health disparities in those they support. (Edited publisher abstract)
Developing and evaluating personal health records for adults with learning disabilities
- Authors:
- TURK Vicky, BURCHELL Sarah
- Journal article citation:
- Tizard Learning Disability Review, 8(4), October 2003, pp.33-41.
- Publisher:
- Emerald
Argues for the introduction of patient-held health care records for people with learning disabilities. The evidence reviewed demonstrates that people with learning disabilities have more health care needs than other adults in society but receive less health care than others. The rationale for implementing hand-held records is considered from three perspectives: a consumer point of view, an analysis of how personal health profiles can help to overcome existing barriers to health care and the existing evidence. Describes the initial experiences of introducing personal health records in Bexley and Greenwich.
Sunshine diet and mobility for healthy bones: an intervention study designed to implement these standards into the daily routine in an at risk population of adults with intellectual disability
- Authors:
- TOHILL Carmel, LAVERTY Anne
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 26(3), September 2001, pp.217-231.
- Publisher:
- Taylor and Francis
In 1995, the authors studied the incidence of bone fractures within a large hospital for persons with intellectual disability. They recommended that an intervention study be carried out to implement non-invasive criteria thought to enhance bone density and hopefully reduce fractures, i.e, improving vitamin D intake through diet and exposure to direct sunlight, and increasing levels of exercise. The patients targeted were those assessed as having a high risk of fracture due to polytherapy for epilepsy, possible nutritional deficiency due to liquidised diets or those with impaired metabolism and genetic conditions where increased fracture risk has been reported. Nurses were educated in the reasons for this intervention study and the criteria to be measured. The results showed that every effort was made to implement the dietary recommendations, ensure safe sunshine exposure and improve patients' mobility. The study served to increase awareness of the important factors that may help reduce the risk of bone disease. It has shown that these factors can easily be incorporated into nursing care plans and could certainly be extended to care in the community.
More than just a quick fix? The potential of joint commissioning in services for people with learning disabilities
- Author:
- CAMBRIDGE Paul
- Journal article citation:
- Research Policy and Planning, 17(2), 1999, pp.12-22.
- Publisher:
- Social Services Research Group
Joint working between health and social services has a long record of fragmentation and under-performance in community services for people with learning disabilities. This article examines the renewed potential for joint commissioning in the context of the Government's emerging social care policy agenda, including its commitment to partnership and performance management. Drawing on case evidence from learning disability and the wider academic literature, it identifies pointers for the development of joint commissioning in learning disability and argues for the monitoring and evaluation of emerging models.