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How parents experience the quality of support: a survey in residential care
- Authors:
- LUIJKX Jorien, BRUG Annet ten, VLASKAMP Carla
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 10(1), 2013, pp.37-44.
- Publisher:
- Wiley
This study examined the views of parents and/or legal guardians on the quality of support provided to people with an intellectual disability (ID) in residential care in the Netherlands, in order to improve the partnership between parents/legal guardians and facilities. A questionnaire developed in close cooperation with parents specifically for this aim was sent to 1,785 households (parents and/or legal guardians) of clients in the Netherlands. Types of residential care included group homes, community living, and assisted living facilities, to more sheltered housing and institutional placements. The questionnaire consists of the following five subsections: daily care, housing, day services, leisure activities, and communication. A multiple regression analysis was performed to determine which factors contributed to the satisfaction of parents and/or legal guardians. The questionnaires returned (n = 1,058) showed that respondents rated the overall quality of support at an average grade of 7.3 out of 10. Small but mostly significant differences were found between the subsections. Special attention should be paid to the percentage of parents and/or legal guardians who gave unsatisfactory scores (10%) and the substantial percentage (25%) of parents and/or legal guardians that rated the quality of care only marginally satisfactory (grades 6–7). (Edited publisher abstract)
Quality of life and living arrangements for people with intellectual disability
- Authors:
- BERTELLI Marco, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(4), 2013, pp.220-231.
- Publisher:
- Emerald
Recent international experiences of community inclusion have produced a major change in residential care for people with intellectual disability (ID). Assignment and outcome assessment through new person-centred measures are raising increasing interest; however, the information on quality of life and accommodation is still limited. This paper aims to provide an overview of the application of quality of life models and the size of the provision of different living arrangements using a systematic mapping of the literature of the last decade and expert guided review of the available evidence. Quality of life (QoL) outcomes measures of living arrangements in people with ID show conceptual and methodological challenges. The following key topics were identified: individual level: issues related to health status, behavioural problems and other personal factors (ageing, choice and empowerment); family and peers; local level: accommodation, architecture and urbanization, and economic aspects (deprivation and costs); macro level: social participation (community inclusion). The residential solutions that are currently considered of highest efficiency are small apartments in the community and “cluster centers”. (Edited publisher abstract)
Implementation of active support in Victoria, Australia: an exploratory study
- Authors:
- MANSELL Jim, BEADLE-BROWN Julie, BIGBY Christine
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 38(1), 2013, pp.48-58.
- Publisher:
- Taylor and Francis
Active support is an effective intervention to support engagement of residents with intellectual disability in group homes. This survey explored resident characteristics of the people supported by organisations implementing active support, the provision of active support, its procedures and systems, and resident engagement in meaningful activity and relationships. Information was collected through questionnaires and direct observation of 33 group homes from 6 organisations in Victoria, Australia, with a 5–10-year history of implementing active support. Residents with lower support needs were engaged with little staff contact or assistance. Use of active support systems and structures was mixed. Only one organisation consistently provided good active support. Administrative systems and structures are not sufficient to change staff interaction and thus resident experience. Shared supported accommodation services may represent an inefficient use of resources for more able residents, as staff resources are not maximised to support for resident engagement. (Publisher abstract)