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Changes in the self-rated well-being of people who move from congregated settings to personalized arrangements and group home placements
- Authors:
- McCONKEY Roy, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 22(1), 2018, pp.49-60.
- Publisher:
- Sage
- Place of publication:
- London
A natural experiment contrasted the self-rated well-being of people with intellectual disabilities (n = 75) and those with enduring mental health problems (n = 44) after they moved to new accommodation and support options, while others remained in congregated settings or living in the family home. Most support staff also provided well-being ratings. In personalised arrangements, personal well-being was significantly higher than in congregated settings; particularly for people with intellectual disability who had higher support needs compared to people with mental health problems. Moving to a group home also brought some improvement in the well-being ratings of people with intellectual disability but only for those with higher support needs. Such moves seemed to lead to a decline in well-being for those with mental health problems. There were marked discrepancies between ratings given by the person with those of staff. The well-being measure shows promise for use in further comparative and longitudinal studies (Edited publisher abstract)
An evaluation of specialized community-based residential supports for people with challenging behaviour
- Authors:
- GOLDING Laura, EMERSON Eric, THORNTON Amanda
- Journal article citation:
- Journal of Intellectual Disabilities, 9(2), June 2005, pp.145-154.
- Publisher:
- Sage
- Place of publication:
- London
This study explored the effects of relocation from institutional to specialized community-based residential provision for six men with mild to moderate intellectual disabilities and challenging behaviour and for a comparison group of six men with mild to moderate intellectual disabilities and challenging behaviour who were already living in specialized community based residential provision. Relocation was associated with: (1) a significant increase in participants’ domestic activity skills; (2) a decrease in the observed occurrence of some problem behaviours; (3) an increase in quality of life; and (4) an increase in engagement and staff contact. The community group, however, also showed some improvements over time, most notably in their levels of engagement in meaningful activity and staff contact. The implications of these results for service provision and suggestions for future research are discussed.
The informal culture of a direct care staff team supporting people with intellectual disabilities who present with behaviours that challenge
- Authors:
- BANKS Faye, et al
- Journal article citation:
- Tizard Learning Disability Review, 26(3), 2021, pp.160-168.
- Publisher:
- Emerald
Purpose: Research into culture within intellectual disability services, has predominantly focussed on small group homes in Australia. The current investigation aimed to explore the transferability of the dimensions of culture identified in the literature, to a residential Intellectual Disability service in the UK. The purpose of this study was to better understand the impact of informal culture upon the behaviour of direct care staff, particularly around managing behaviour that challenges. Design/methodology/approach: Semi-structured interviews were conducted with direct care staff. Interview transcripts were analysed thematically using template analysis. Findings: Themes regarding leadership, perceptions of managers, team functioning, and relationships between direct care staff and service users, were identified, corroborating the existing literature. Additional themes relating to being aware of the risks posed by service users, and the emotional impact of behaviour that challenges, also emerged. Originality/value: To the best of the authors’ knowledge, this is the first qualitative study to explore informal culture within a community residential Intellectual Disability service in the UK. (Edited publisher abstract)
Choices for people with intellectual disabilities: official discourse and everyday practice
- Authors:
- ANTAKI Charles, FINLAY W. M. L., WALTON Chris
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(4), December 2009, pp.260-266.
- Publisher:
- Wiley
Official policies on "choice" for people with intellectual impairments tend toward fundamental life choices (e.g., who to marry, what job to work at) at the expense of the minor but more frequent concerns of daily living (when to wash, what to eat, where to go in the evening). The authors undertook an examination of how choice policies are actualised in day-to-day activities in two group homes. Data were drawn from a broader ethnographic study of residential services for people with intellectual disabilities serviced by National Health Service Trust in the United Kingdom. Conversation analysis, used to explicate the interactions, showed how staff, although undoubtedly well-meaning, use the discourse of choice to promote institutional managerial objectives, thus demonstrating a gap between practice and overarching policy theory and recommendations.