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Spirituality and learning disability: a review of UK Government guidance
- Authors:
- SANGO Precious Nonye, FORRESTER-JONES Rachel
- Journal article citation:
- Tizard Learning Disability Review, 19(4), 2014, pp.170-177.
- Publisher:
- Emerald
Despite spirituality being a key aspect of quality of life, it appears to remain a low-priority area for social and health care government policy. This review identifies and describes what UK policy says about spirituality in relation to the care of people with learning disabilities (LD). A systematic policy review using three websites: legislation.gov.uk; Department of Health and Directgov (now known as gov.uk) was carried out. A total of 43 policy documents relevant to care provision of people with learning disabilities were identified; only six of these mentioned spirituality, faith or religion in relation to people with LD. In these six documents, four themes are identified and described: human rights; discrimination and equality; inclusion (or participation in community and faith group activities) and need. The review identified policy gaps and a general lack of government directives in relation to the spiritual care of people with LD. Whilst research in this area is gathering momentum, practical implementation which makes a real difference to the spiritual experiences of people with LD appears to be sparse. (Edited publisher abstract)
Private lives, public policy: a commentary on "spirituality and learning disability: a review of UK government guidance"
- Author:
- CAMDEN-SMITH Claudia
- Journal article citation:
- Tizard Learning Disability Review, 19(4), 2014, pp.178-180.
- Publisher:
- Emerald
This paper provides a commentary on “Spirituality and learning disability: a review of UK Government guidance” by Sango and Forrester-Jones. The commentary examines the interplay between spirituality and health care in caring for people with a learning disability from a personal perspective and considers the reasons why healthcare professionals and caregivers may not facilitate expression of spirituality in this group. Carers with a religious affiliation of their own are more likely to engage people with learning disability in exploration of religion and spirituality than those with no religious affiliation. Although government policy in this area is limited, spirituality is an integral part of holistic care and should be addressed by all healthcare professionals and paid carers. (Edited publisher abstract)
Viability of a dementia advocacy effort for adults with intellectual disability: using a national task group approach
- Authors:
- JANICKI Matthew P., KELLER Seth M.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 11(3), 2014, pp.176-191.
- Publisher:
- Wiley
The World Health Organization's report, Dementia: A Public Health Priority, noted that the number of people worldwide affected by dementia is significant and will continue to increase. The report called on nations to address dementia by developing national plans and undertaking public health initiatives. Special mention was made of the situation of people with intellectual disability, some of who manifest high risk for dementias. In the United States, the National Task Group on Intellectual Disabilities and Dementia Practices (the “NTG”) was created to ensure that the needs and interests of adults with intellectual and developmental disability who are affected by Alzheimer's disease and related dementias—as well as their families and friends—are taken into account as part of general-population dementia health and public policy efforts, particularly as noted in the U.S. National Plan to Address Alzheimer's Disease. To this end, the NTG's multifaceted advocacy efforts have included (1) identifying best practices for providing care and services to affected adults with intellectual disability; (2) developing and identifying a functional workable administrative dementia early detection and screening instrument; (3) producing educational materials useful to families, adults with intellectual disability, and nongovernmental organisations; and (4) furthering public policy initiatives on dementia as they affect adults with intellectual disability. This article describes the origins of this group, its functions and accomplishments, as well its role with respect to national dementia advocacy, as a prototype for other national efforts that can be used to promote the interests of adults with intellectual disability affected by dementia and improve the quality of their lives. Suggested are means for replication of such an effort in other national environments. (Edited publisher abstract)
Models of support for people with learning disabilities post-secondary school
- Author:
- MURPHY Eoin
- Publisher:
- Northern Ireland Assembly. Research and Information Service
- Publication year:
- 2014
- Pagination:
- 30
- Place of publication:
- Belfast
This paper provides a general overview of the approach taken by the countries of Scotland, Sweden, Canada and the USA in supporting people with learning disabilities and Special Education Needs (SEN) who have completed secondary education. The countries were selected as examples of some of the most advanced in the way in which they provide support for people with learning disability who wish to continue their education or enter training or employment. The paper was produced for the Committee of Employment and Learning as part of its inquiry into post Special Educational Need provision in education, employment and training for those with Learning Disabilities. (Original abstract)
‘Their families or the disability services will take care of them’: the invisible homeless and how Irish government policy is designed not to help them
- Author:
- FOLEY Simon
- Journal article citation:
- Disability and Society, 29(4), 2014, pp.556-567.
- Publisher:
- Taylor and Francis
Most intellectually disabled adults in Ireland continue to live with their parents. For those who want and/or are forced to move out of the parental home, the default option is to avail of the various kinds of accommodation offered by the Irish disability services. This paper critically investigates the range of housing options available to intellectually disabled adults living in Ireland – some more nominal than others – and the governmental role in facilitating members of this population to live in accommodation of their choosing. The relevant issues are given voice by a mother of an adult with Down syndrome. In her search for appropriate accommodation for her daughter, she provides important experiential knowledge regarding both the shortcomings of current Irish policy and the hidden discrimination to which intellectually disabled people are subjected on a daily basis by banks and private landlords alike. (Publisher abstract)
Strengthening the commitment: one year on: progress report on the UK Modernising Learning Disabilities Nursing Review
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2014
- Pagination:
- 32
- Place of publication:
- London
This report summarises the progress made in England during the past year against recommendations set out in ‘Strengthening the Commitment: the report of the UK Modernising Learning Disability Nursing Review (2012)’. The 17 recommendations cover the four broad areas of: strengthening capacity, strengthening capability, strengthening quality, and strengthening the profession. For each recommendation information is provided on key government policies, examples of positive practice, and planned next steps. The report shows how the recommendations have been translated into good practice to achieve better health and wellbeing for people with learning disabilities, and fulfil the commitment made in 'Transforming Care: A national response to Winterbourne View Hospital'. (Original abstract)