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Delivering high quality end of life care for people who have a learning disability: resources and tips for commissioners, service providers and health and social care staff
- Authors:
- NHS ENGLAND, PALLIATIVE CARE FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 57
- Place of publication:
- Redditch
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions, which provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care, are: Each person is seen as an individual; Each person gets fair access to care; Maximising comfort and wellbeing; Care is coordinated; All staff are prepared to care; Each community is prepared to help. This document sets how to achieve each ambition, signposts relevant tools and resources and provides good practice examples. (Edited publisher abstract)
Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2017
- Pagination:
- 26
- Place of publication:
- London
- Edition:
- 3rd ed.
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It covers the importance of understanding people's health needs, respecting individuals, getting to know the person, having choices making decisions, feeling safe and communication. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. It also includes good practice examples. The guide has been developed with the involvement of people with learning disabilities who use health care services in South East London, who shared their experiences at 3 focus group meetings. (Edited publisher abstract)
Helping me to 'do my thing': tips for Kirkless health and social care professionals supporting people with a learning disability and/or autism
- Author:
- COMMUNITY CATALYSTS
- Publisher:
- Community Catalysts
- Publication year:
- 2017
- Pagination:
- 6
- Place of publication:
- Harrogate
This document forms one part of the legacy of Do Your Thing, a project with a focus on people with a learning disability and/or autism who don’t use social care services. The document takes the approaches developed by Do Your Thing and the lessons learned and turns them into top tips. These tips are designed for health and social care professionals who are supporting people with a learning disability and/or autism to set up their own group, develop their own enterprise or more generally ‘do their thing’. Key tips include: find a way to connect with me; don’t judge me just on my case notes or history; don’t underestimate me; focus on things I am good at; show me the possibilities and potential; help me think things through and plan; work at my pace; help me find people who will support me; and capture stories, outcomes and impact. (Edited publisher abstract)
The NICE guidelines and quality standards on learning disabilities and behaviour that challenges
- Author:
- MURPHY Glynis
- Journal article citation:
- Tizard Learning Disability Review, 22(2), 2017, pp.71-81.
- Publisher:
- Emerald
This paper explains the process of developing the National Institute for Health and Care Excellence (NICE) guidelines on learning disabilities, covering the subject of 'behaviour that challenges'. The guidelines, which were published in May 2015, cover service user and carer experiences, assessment, risk factors and interventions for behaviour that challenges. The linked quality standards were published later in 2015. The final guidance is described in summary form, together with the quality standards. (Edited publisher abstract)
Does it matter? Decision-making by people with learning disabilities
- Authors:
- PEOPLE FIRST (SCOTLAND), ANIMATE
- Publisher:
- Animate
- Publication year:
- 2017
- Pagination:
- 84
- Place of publication:
- Glasgow
This research examines whether supported decision making for people with learning disabilities offers a practical and safe alternative to substitute decision following a guardianship order. It aims to present their views within the current debate about the need to revise Scotland’s incapacity legislation. Peer researchers conducted interviews with 128 people who had a learning disability about their experiences of decision making. Overall, participants felt making decisions for themselves was important, emphasising the need to have choice and the freedom to be independent. Good practice examples of supported decision making are included. However, participants reported that they commonly experienced decisions being made about them without people asking, which left many participants feeling powerless and angry. The report also discusses the barriers to people with learning disabilities taking greater control of their decision making; challenges within the current guardianship system in Scotland; and the challenges to delivering supported decision making. The findings suggest that supported decision-making for people with learning disabilities can offer a safe and realistic alternative to substitute decision-making, but requires a significant change in mindsets as to the rights, resources and risks involved. (Edited publisher abstract)
Investing in later life: a toolkit for social services providing care for older people
- Author:
- EUROPEAN SOCIAL NETWORK
- Publisher:
- European Social Network
- Publication year:
- 2017
- Pagination:
- 79
- Place of publication:
- Brighton
This toolkit provides recommendations and examples of innovative practice for professionals working in social services providing care for older people. It is based on desktop literature research and the result of the European Social Network’s (ESN) work on ageing and care between 2014 and 2016. Chapters cover knowledge and best practice around initiatives to promote active ageing and independence, carers support, improving the coordination of health and social care services, and support for people with complex needs and disabilities as they grow older. Chapter one focuses on the promotion of active ageing and discusses key developments such as supporting volunteering, prevention and early intervention, and rehabilitation. Chapter two highlights the challenges in recruiting sufficient qualified social care staff, particularly in the provision of long-term care and looks at how to better support informal carers. Chapter three discusses cooperation and integration opportunities in older people’s services. It analyses the challenges of integrated services at three different levels: macro-level, meso-level and micro-level. The final chapter explores how people with multiple conditions can be supported most effectively in a person-centred way, including people living with dementia and people with learning disabilities. Each chapter includes a review of the legal and policy frameworks and examples from practice. (Edited publisher abstract)
Commissioning services for people with a learning disability: good practice guidance
- Authors:
- NATIONAL COMMISSIONING BOARD, OXFORD BROOKES UNIVERSITY. Institute of Public Care
- Publisher:
- Oxford Brookes University. Institute of Public Care
- Publication year:
- 2017
- Pagination:
- 46
- Place of publication:
- Oxford
Good practice guidance developed to help Regional Partnership Boards in Wales to develop their own approaches to the integrated commissioning of services for people with a learning disability. The guidance will help commissioners to follow the principles in the Social Services and Well-being (Wales) Act 2014, in terms of helping individuals to lead an ordinary life with dignity, and co-producing appropriate solutions to help individuals to achieve the outcomes important to them. The guidance looks at the role of the strategic commissioner, how they can lead cultural change and how to commission ‘good lives’ through co-production approaches. It also explains how taking a whole systems, lifespan approach to positive behaviour support can reduce placement breakdown and prevent hospital admission. The guidance has been developed by the National Commissioning Board in partnership with the Institute for Public Care. (Edited publisher abstract)
The keys to life: report of the Care Inspectorate's inspection focus area 2014-2016
- Author:
- CARE INSPECTORATE
- Publisher:
- Care Inspectorate
- Publication year:
- 2017
- Pagination:
- 53
- Place of publication:
- Edinburgh
This report presents the results of thematic inspections of services for adults with learning disabilities in Scotland, which were carried out to examine the quality of services and the extent to which the key principles of The Keys to Life policy were being met. It also looks at the extent to which the learning from the Department of Health review into Winterbourne View Hospital in Gloucestershire is informing practice in Scotland. The inspection included care homes, care at home services, housing support services and d combined care at home/housing support services for people with a learning disability. The report examines the findings in relation to outcomes for people who use these services, and their carers, aligning these to the four overarching strategic outcomes of The Keys to Life: a healthy life; choice and control; independence; and active citizenship. The inspections found that over 93 per cent of the services were providing good, very good, or excellent care. They also identified a high-level awareness about The Keys to Life strategy. Where services were good, this related to the implementation of person-led care practices which promoted choice and protected the rights of those using services. Areas for improvement identified included: some care managers reporting difficulties in accessing the right healthcare for the people they support; improvements in the way care was planned and delivered; and providing activities that were better focused on people’s individual choices. Examples of good practice are also included throughout the report. (Edited publisher abstract)
Guide for commissioners of services for children and young people who challenge services
- Author:
- NATIONAL DEVELOPMENT TEAM FOR INCLUSION
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2017
- Pagination:
- 28
- Place of publication:
- Bath
This guidance has been developed following a project to review the commissioning arrangements for children and young people with learning disabilities and/or autism whose behaviours challenge. It aims to support local authorities and clinical commissioning groups (CCGs) to jointly commission services for children and young people with SEND as required by the Children and Families Act (2014). The guide focuses on the overall culture that needs to be in place to enable good services to flourish. It sets out seven commissioning considerations, including: visions and values, leadership, relationships, the model of service, skilled providers and staff; and an evidence base. Each section includes a description of what good looks like, provides links to further resources and concludes with recommendations for what effective action by commissioners should consist of. The guide will help commissioners and planners to review their current practice and develop an agenda for change. (Edited publisher abstract)