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Decisions about technology: principles and guidance on good practice when considering the use of telecare and assistive technology for people with dementia, learning disability and related disorders
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2015
- Pagination:
- 23
- Place of publication:
- Edinburgh
This guidance is for those considering the use of technology to assist with care and maintain independence when the individual concerned may lack the capacity to make the decision. It examines the human right and legal implications of assistive technology and sets out key principles of good practice. These are: the intervention must provide a benefit that cannot otherwise be achieved; it must be the least restrictive in relation to the person’s freedom in order to achieve the desired benefit; the past and present wishes of the person must be taken into account; the views of relevant others should be taken into account; and the intervention should encourage the person to use existing skills and develop new ones. The document examines the use of electronic location devices and the use of CCTV to monitor the actions of an adult or of staff. A brief overview of assistive technology currently available is also included. (Edited publisher abstract)
National Mental Capacity Forum: Chair's annual report 2017
- Author:
- FINLAY Baroness
- Publisher:
- Great Britain. Her Majesty's Government
- Publication year:
- 2018
- Pagination:
- 41
- Place of publication:
- London
Annual report of the Chair of the National Mental Capacity Forum, covering the Forum’s work over the year, the Chair’s priorities for the coming year, and details of Forum members. Each chapter describes the achievements and ongoing work against the four priorities for 2017: Improving understanding; Hearing the voice of the person; Supporting carers; and Reducing and preventing exploitation. Achievements include the development of guidelines and training material for front line staff in the financial and banking sector and increased awareness of fraud and scam and the risks for people ‘in vulnerable circumstances.’ The report includes illustrative good practice examples of initiatives relevant to the implementation of the Mental Capacity Act. (Edited publisher abstract)
People with dementia and learning disabilities: reasonable adjustments
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2018
- Place of publication:
- London
This guide aims to help staff in public health, health services and social care to provide services that are accessible to people with learning disabilities that have or are at risk of developing dementia. It summarises current evidence and highlights policy and guidelines relating to people with learning disabilities and dementia. It includes links to a wide range of online resources, including those specifically about dementia in people with learning disabilities and to easy-read resources and apps related to dementia in general. The guide also includes case studies and examples of reasonable adjustments to services made in relation to people with learning disabilities and dementia. (Edited publisher abstract)
Use of seclusion: good practice guide
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2019
- Pagination:
- 26
- Place of publication:
- Edinburgh
Updated good practice guidance for health and social care professionals in Scotland on the use of seclusion when working with people who are being treated for mental illness, dementia, learning disability or related conditions in health and social care settings. The view of the Mental Welfare Commission is that services should minimise the use of all forms of restrictive practice, and that in most cases, proactive behavioural support plans would mean that the use of seclusion would be unnecessary. The guidance aims to ensure that where seclusion takes place, the safety, rights and welfare of the individual are safeguarded. It looks at what any policy for seclusion should cover, including: maintaining the safety of the secluded person, care planning, record keeping, assessment and review during a period of seclusion, the impact of seclusion and staff training. The guide also provides a summary of good practice points, a summary of relevant legislation in Scotland and case studies to illustrate areas of good and poor practice. (Edited publisher abstract)
Smiling matters: oral health care in care homes
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2019
- Pagination:
- 34
- Place of publication:
- Newcastle upon Tyne
This review draws on one hundred inspections of care homes in England to examine oral health in care homes, with specific reference to the NICE guideline NG 48 on oral health for adults in care homes. It includes direct quotations from managers, staff and people using services and their relatives. It also includes good practice examples to highlight the benefits of good oral care for older people, people with learning disabilities and people living with dementia. The review found that staff awareness of the NICE guideline recommendations was low, over half of care homes visited had no policy to promote and protect people’s oral health, and nearly half of care homes were not providing staff training to support people’s daily oral healthcare. The review also identified challenges such as: a lack of dentists who were able or willing to visit care homes and local dentists not accepting new patients and the length of time it took to get an appointment with an NHS dentist. The report recommends mandatory staff training in oral care, oral health check-ups for all residents upon admission, better signposting to local dental services and awareness raising. (Edited publisher abstract)
Making communication accessible for all: a guide for health and social care (HSC) staff
- Author:
- BELFAST HEALTH AND SOCIAL CARE TRUST
- Publisher:
- Belfast Health and Social Care Trust
- Publication year:
- 2016
- Pagination:
- 48
- Place of publication:
- Belfast
- Edition:
- 2nd ed.
A practical guide providing information to enable health and social care staff communicate more effectively with people who may have a disability or a communication support need. It looks at communicating with people with a range of disabilities, including people who are deaf or have a hearing loss, people who are blind or partially sighted, people who are deafblind, people who have a learning disability, people who have an Autism Spectrum Disorder (ASD), and people living with dementia. It also looks at communicating with someone after a stroke or acquired brain injury. The guide aims to help staff to think differently about communication; highlight current legislation; understand to enable more positive outcomes and experiences for people with communication support needs; and help create communication friendly environments to support people to communicate to the best of their ability. It covers face to face communication, telephone communication, written communication, and providing information on the internet. (Edited publisher abstract)
Learn from others
- Author:
- SKILLS FOR CARE
- Publisher:
- Skills for Care
- Publication year:
- 2015
- Place of publication:
- Leeds
With a growing number of case studies across a range of social care subjects, related training materials, films and other learning, this free resource is intended to help employers wishing to address similar needs. It contains good practice resources based around specialist areas of care, including: assisted living technologies, dementia care, end of life care, integrated care, learning disabilities, and employing one’s own care and support. Much of the learning originates from projects supported by the Skills for Care's Workforce Development Innovation Fund (WDIF). In addition to learning from other people and organisations, this resource highlights Skills for Care products, qualifications and funding opportunities to help to address similar issues. (Edited publisher abstract)
Making reasonable adjusments to dementia services for people with learning disabilities
- Authors:
- KENNEY Amanda, IMPROVING HEALTH AND LIVES: LEARNING DISABILITIES OBSERVATORY
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 25
- Place of publication:
- London
'Making reasonable adjusments to dementia services for people with learning disabilities' is part of a series of reports produced by IHaL which focus on reasonable adjustments to mainstream services, so that they meet the needs of people with learning disabilities. The report is a provides sources of evidence, research, policy and guidance, resources, and case studies and good practice examples. It can be used by people with learning disabilities (there is an easy read summary at the start of the report), carers, commissioners, providers, public health leads, and advocacy services, to improve dementia services for people with learning disabilities. (Edited publisher abstract)
Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia
- Authors:
- JOKINEN Nancy, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 10(1), 2013, pp.1-224.
- Publisher:
- Wiley
To assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted a set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death. This article provides an overview of the guidelines, which are drawn from the research literature as well as clinical experiences and demonstrated best practices. To enable the development of the most appropriate and useful services and care management for adults with intellectual disabilities affected by dementia, the NTG adopted the staging model. The staging model follows the flow from a prediagnosis stage when early recognition of symptoms associated with cognitive decline are recognized through to early, mid, and late stages of dementia, and characterizes the expected changes in behaviour and function. The guidelines cite the application of the NTG-Early Detection Screen for Dementia as a first step in documenting early signs of cognitive and functional changes among people with intellectual disabilities. The guidelines also provide information on nonpharmacological options for providing community care for persons affected by dementia as well as commentary on abuse, financial, managing choice and liability, medication, and nutritional issues. (Edited publisher abstract)
Support for people with learning difficulties in residential settings who develop dementia
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 4p.
- Place of publication:
- York
What happens when someone with learning difficulties develops dementia? This study explored the experience of 18 people with learning difficulties living in small-scale, community-based residential homes. It also looked at the knowledge and experience of service providers, staff, fellow residents and relatives. Lack of planning led to ad hoc arrangements that often failed to meet the needs of people with dementia, fellow residents and staff. Lack of coherent strategies and resources resulted in people being moved inappropriately to nursing homes for older people. When people did move to another setting, residential home staff continued to play a vital role in maintaining basic care for the individual. There was a lack of coherent, consistent practice in relation to diagnosis and follow-up care. Where baseline assessments were established there was a marked improvement in early diagnosis. The use of consistent, good quality, practice-based training was critical in determining the type of care given and the likelihood of someone remaining 'at home'. Staff often provided unpaid or underpaid support. They played down the increased complexity of individual care needs because they feared requesting additional help might result in the person being moved. Waking night staff were essential not only for dealing with night-time disturbances but also for providing one-to-one support. This also had a positive impact on fellow residents' ability to accept and cope with the person with dementia. In particular, staff in all settings struggled with pain management and helping people to eat well. Dementia-friendly built environments were rare. But in some cases staff had been imaginative and resourceful, demonstrating that such changes do not have to be expensive.