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Health care for disabled children and young people: a review of how the health care needs of disabled children and young people are met by the commissioners and providers of health care in England: special review
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2012
- Pagination:
- 48p.
- Place of publication:
- Newcastle upon Tyne
This review looked at the support available for families with children that have a disability. It focused on families that have children under the age of 19 with: a learning disability; autism or autistic spectrum disorders; communication needs; sensory needs; mental health and behavioural support; mobility needs; and technology dependence. In particular, this review looked at: the availability of specialist health services for disabled children and young people and their families; an assessment of the quality of support in a geographical area linked to primary care trusts; and the ‘building blocks’ of the care pathway that are of particular importance to families. The review presents the views and experiences of disabled children and their families as well as survey data from commissioners and acute hospitals about services provided from September 2009 to September 2010. Findings suggested that families felt access to and involvement in services was a challenge and that they waited too long for access to services and for initial diagnosis. Contributors felt services were not joined up and that different services did not work well together. Many disabled children and their families also reported they had not been consulted on how their care had been provided. There was also significant disparity between the experiences of disabled children and their families, which were overwhelmingly negative compared to the data supplied by primary care trusts, which showed high levels of access and user-centred care.