Search results for ‘Subject term:"learning disabilities"’ Sort:
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Family and community in the lives of UK Bangladeshi parents with intellectual disabilities
- Authors:
- DURLING Emily, CHINN Deborah, SCIOR Katrina
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(6), 2018, pp.1133-1143.
- Publisher:
- Wiley
Background: Little is known about the lives of parents with intellectual disabilities from minority ethnic communities. Previous research suggests that what it means to live with intellectual disabilities varies across cultural contexts. The current research aimed to explore how cultural values and practices impact upon the experiences of parents with intellectual disabilities within the Bangladeshi community in London, England. Method: Six members of the Bangladeshi community, four Bangladeshi parents with intellectual disabilities and four of their family members were interviewed. Thematic analysis was used to identify key themes. Results: Both parenting and intellectual disability are thought about in this community in ways that make parenting more accessible for people with learning disabilities, but also create tensions to be negotiated. Conclusions: Bangladeshi family carers face dilemmas balancing the benefits and risks of promoting parenting for sons and daughters with intellectual disabilities, particularly in the context of service principles of autonomy and informed consent. (Publisher abstract)
Safety first! The topic of safety in reversed integration of people with intellectual disabilities
- Authors:
- VENEMA Eleonora, VLASKAMP Carla, OTTEN Sabine
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 14(2), 2017, pp.146-153.
- Publisher:
- Wiley
Background: Physical integration is believed to be a precondition for social integration. One might expect that in so-called reversed integration, where people without intellectual disabilities (ID) actively choose to live next to people with ID, conditions for physical integration are more optimal, and social integration is enhanced. If this hypothesized benefit of reversed integration settings indeed holds, however, is yet unknown. Specific aims: The aim of the present study is to examine barriers for social integration of people with intellectual disabilities (ID). In this context, the present article focuses on the role of safety and safety concerns. Method: A semi structured interview was conducted with 28 direct support professionals (DSPs), 25 family members, and 25 neighbours, aimed at their attitude toward social integration in a reversed integration neighbourhood. Several topics were dealt with, like the neighbourhood and contact between people with ID and neighbours. There were no explicit questions about safety in the interview. Findings: The topic of safety was spontaneously mentioned 90 times by 26 DSPs, 15 times by 9 neighbours, and 36 times by 18 family members. Three main themes were found in the total group of statements touching upon the issue of safety: environmental aspects, client characteristics, and working conditions. The most often mentioned sub-themes were the openness of the neighbourhood and the traffic. Discussion: In reversed integration, safety is still a highly relevant topic and of great concern for the DSPs and the family members. DSPs are more concerned with controlling risks and keeping everybody safe than looking at the opportunities the new environment offers, like enhancing social integration. (Edited publisher abstract)
Where do community-dwelling older adults with disabilities live? Distribution of disability in the United States of America by household composition and housing type
- Author:
- HENNING-SMITH Carrie
- Journal article citation:
- Ageing and Society, 37(6), 2017, pp.1227-1248.
- Publisher:
- Cambridge University Press
There is limited research on the living arrangements of older adults with disabilities, especially research that combines household composition and housing characteristics. This paper addresses that gap with two complementary sets of logistic regression models: first, estimating the odds of disability by household composition and housing type and, second, estimating the odds of disability by living arrangement within gender and age sub-groups. Data come from the 2012 American Community Survey (N = 504,371 respondents aged 65 and older), which includes six measures of disability: cognitive, ambulatory, independent living, self-care, vision and hearing. Living alone, with children or with others was associated with higher odds of any disability, compared with living with a spouse only. Compared to those living in a single-family home, living in a mobile home or other temporary structure, or large apartment building was associated with higher odds of disability. Having a disability was associated with lower rates of living with a spouse only, alone, in a single-family home or in a small or mid-sized apartment building and higher rates of all other living arrangements. Sub-group analyses revealed differences in the relationship between living arrangements and disability by gender and age group. This information provides a baseline from which to observe trends in living arrangements and disability for older adults in the United States of America. (Publisher abstract)
Majority and minority ethnic family carers of adults with intellectual disabilities: perceptions of challenging behaviour and family impact
- Authors:
- HATTON Chris, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 23(1), January 2010, pp.63-74.
- Publisher:
- Wiley
A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour. Semi-structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis. Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences. 'Challenging behaviour' services need to be considered within a much broader social and community context.
Family carers’ views of services for people with learning disabilities from Black and minority ethnic groups: a qualitative study of 30 families in a south London borough
- Author:
- HUBERT Jane
- Journal article citation:
- Disability and Society, 21(3), May 2006, pp.259-272.
- Publisher:
- Taylor and Francis
In 2001, the UK Government identified the widespread neglect of the needs of people with learning disabilities from Black and minority ethnic communities. In this qualitative study informal interviews were held with 30 family carers of adults with learning disabilities from Black and minority ethnic communities. Their views were sought regarding services received and services needed, and cultural or communication barriers faced in accessing appropriate services. The study showed that although carers were largely satisfied with services actually received, service provision was highly inadequate and ineffective. Even very elderly and ill carers and those caring for people with severe disabilities received little support. Social worker support was negligible, and future planning rare. It is clear that the needs of carers from Black and minority ethnic communities are not being met. The situation would be considerably eased by adequate social worker support. Stereotypes of supportive family networks, (especially regarding south Asian families) proved to be unfounded.
People, policies and professionals: a study of learning disability in a small town
- Author:
- SAINSBURY Sally
- Publisher:
- Ashgate
- Publication year:
- 2002
- Pagination:
- 264p.,bibliog.
- Place of publication:
- Aldershot
This ethnographic study uncovers the problems that arise when principles underlying policy are difficult to interpret and are at odds with the culture of the locality within which policy is implemented. Examining one strategy in particular, the All Wales Strategy in relation to people with learning disabilities, the author focuses as much attention on the community of the small Welsh mining town as on the citizens with learning disabilities who are the object of the policy.
Keeping it in the family: caregiving in Australian-Greek families
- Authors:
- MORSE Carol A., MESSERMERI-KIANIDIS Voula
- Journal article citation:
- Social Work in Health Care, 34(3/4), 2001, pp.299-314.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Family-based caregiving refers to the daily provision of help to a co-resident family relative with the usual activities of daily living, custody and protection of a dependent relative at risk of self-injury, and support of a person with physical, developmental and/or mental disability or frailty due to ageing. Many reports from western studies refer to the caregiving burdens, stress and strains. A common view of migrant peoples is that they 'look after their own' to a greater extent than do English-speaking groups. A study was carried out with 300 Australian-Greek families in Melbourne where 150 were providing family-based caregiving, and these were age and gender matched with friends or acquaintances who had no such duties. Most care was provided by women. A wide range of disabilities and illnesses were receiving help and care in the caregiving families among care recipients aged from childhood to advanced old age. Distinct evidence of caregiving burden was found to a significant degree. Gender differences were apparent in the type of disorders managed, in the perceived severity of caregiving duties provided and in the total range of activities engaged in. The ethno-specific community organisations and extended family networks played little part in providing assistance to caregivers which challenges the myths of a close-knit migrant community looking after its own.
Family matters: counting families in: accessible version
- Author:
- WARD Cally
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2001
- Pagination:
- 20p.
- Place of publication:
- London
This summary of the larger report seeks to highlight the perspectives of family carers within the development of a national strategy for people with learning difficulties.
Family matters: counting families in
- Author:
- WARD Cally
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2001
- Pagination:
- 49p,bibliog.
- Place of publication:
- London
This report seeks to highlight the perspectives of family carers within the development of a national strategy for people with learning difficulties. The report represents a synthesis of broad range of views collected through consultation workshops, correspondence, conversations with family carers and a review of the literature.
If you don't ask you don't get: review of services for people with learning disabilities: the views of people who use services and their carers
- Authors:
- STALKER Kirsten, et al
- Publisher:
- Scotland. Scottish Executive Central Research Unit
- Publication year:
- 1999
- Pagination:
- 91p.,bibliog.
- Place of publication:
- Edinburgh
The purpose of this three month study was to explore the views of people with learning disabilities who use services and their carpers. The overall picture that emerged was one of social isolation with many people in rural and urban settings and having few friends outside family and system. Everyone made use of community services, but this was often part of a group or with a staff member.