Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 33
Family homes: using parental property to provide future housing for people with learning disabilities: guidance for families and advisors
- Author:
- KING Nigel
- Publisher:
- Mental Health Foundation
- Publication year:
- 2001
- Pagination:
- 85p.
- Place of publication:
- London
This report culminates from a project which explored how the family home, whether owned or rented, could be used to provide secure accommodation for the person with learning disabilities in the future. It was undertaken as part of the Foundation for People with Learning Disabilities' Growing Older with Learning Disabilities (GOLD) programme.
Future demand for services for young adults with learning disabilities from South Asian and black communities in Birmingham
- Authors:
- EMERSON Eric, ROBERTSON Janet
- Publisher:
- University of Lancaster. Institute for Health Research
- Publication year:
- 2001
- Pagination:
- 61p.
- Place of publication:
- Lancaster
South Asian families supporting a child or adult with learning disabilities at home often do so in the face of considerable social and economic adversity. Poverty and poor housing are endemic. South Asian carers receive little support from outside of their immediate family. Two thirds of carers receive no help at all with care from either their own or their spouse’s family. Semi-formal supports such as Parent Support Groups, Social Groups, and Temples or Mosques, play a very small role as a source of support for carers. Carers face considerable difficulties in getting access to specialist support services.
An evaluation of the Mencap family adviser service in northern Ireland
- Authors:
- MCKEOWN Paschal, et al
- Journal article citation:
- Child Care in Practice, 7(4), December 2001, pp.273-287.
- Publisher:
- Taylor and Francis
Mencap (NI) provides and largely funds an 'information and Advice Service' aimed primarily at family carers and people with learning disabilities. This article describes the service and the evaluation process used. Information was obtained from four stakeholder groups, namely service-users; service-funders; the leaders of learning disability teams in Health and Social Services (HSS) Trusts and the chair persons of Mencap local societies. The feature of a good information and advice service are noted, along with the developments required to the existing service, In the main these relate to improved partnership working with statutory agencies and increasing the profile of the service with services, family carers and people with learning disabilities.
Views and experiences of people with intellectual disabilities and their families: (1) the user perspective
- Authors:
- RAMCHARAN Paul, GRANT Gordon
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.348-363.
- Publisher:
- Wiley
Presents a descriptive summary of the views and experiences of people with intellectual disabilities (IDs) as they have been represented in research and other literature. The authors develop further the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, a review report commissioned by the Department of Health on the views and experiences of users and family carers focusing on the ways in which research might contribute to policy and practice. The literature review of user views and experiences produced three broad categories: testaments of life, which are mainly ethnographies and life histories; user movement media produced in an accessible format for people with IDs or by people with IDs themselves; and research based studies in their varying forms. It is demonstrated that no single approach is able to encompass all the interests of knowledge production, policy planning, and action or practice on its own. A more coordinated and broad-based research approach to user views and experiences is advocated.
Views and experiences of people with intellectual disabilities and their families: (2) the family perspective
- Authors:
- GRANT Gordon, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.364-380.
- Publisher:
- Wiley
Examines findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. This article traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.
Futures planning for people with learning disabilities living with older family carers
- Author:
- THOMPSON David
- Journal article citation:
- Managing Community Care, 9(2), April 2001, pp.3-7.
- Publisher:
- Pavilion
People with learning disabilities are increasingly outliving their parents. To avoid traumatic and inappropriate transitions from the family home in later life, services need to improve their relationships with families. Provides practical examples of how families are being supported to face the future.
The subjective well-being of people caring for a family member with a severe disability at home: a review
- Author:
- CUMMINS Robert A.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 26(1), March 2001, pp.83-100.
- Publisher:
- Taylor and Francis
This review concerns the life quality of people caring for a relative with a severe disability within their family. It involves the balance between the advantages such care brings to the care recipient and the costs borne by the family. A brief history indicates that the forces that encourages family care are minimally concerned with family welfare. Moreover, an analysis of both qualitative and quantitative data indicates that primary caregivers are at considerable risk of high stress, clinical depression, and abnormally low subjective quality of life. It is concluded that increased public expenditure directed to the care of people with severe disability is urgently required.
Interpreting the communication of people with profound and multiple learning difficulties
- Authors:
- PORTER Jill, et al
- Journal article citation:
- British Journal of Learning Disabilities, 29(1), March 2001, pp.12-16.
- Publisher:
- Wiley
This article highlights some of the issues involved in interpreting the communication behaviours of people with profound and multiple learning difficulties (PMLDs). Argues that both inference and intention can play an important role in the communication process, and this raises a number of difficulties and dangers where one of the communication partners is not in a position to correct misunderstandings.Discusses the importance of validating communication and poses a number of key questions to ask those who are most significant in the life of a person with PMLDs. A case study is provided to illustrates a number of these issues.
Family base respite: the experience for children and adults with learning disabilities in St Michael's House
- Author:
- KELLEHER Joanne
- Journal article citation:
- Irish Social Worker, 19(2/3), Autumn 2001, pp.19-21.
- Publisher:
- Irish Association of Social Workers
In response to the severe crisis in respite care for people with learning disabilities, the Scottish Work Department in St Michael's House has developed a new model of family based respite. This article describes the Adult Placement Scheme for adults and the Break Time scheme for children which is currently providing at least 200 nights of respite each month.
Valuing people: valuing families; towards an agenda for social inclusion; a report of the Ealing Symposium organised by HFT (The Home Farm Trust) in October 2001
- Author:
- HOME FARM TRUST
- Publisher:
- Home Farm Trust
- Publication year:
- 2001
- Pagination:
- 28p.
- Place of publication:
- Bristol
Valuing People encompasses people with mild, moderate, profound and complex learning difficulties as well as those who challenge services. It also reminds us that services need to more culturally responsive so that families from minority ethnic groups do not continue to face extra barriers. A number of issues mentioned in Valuing People are especially relevant for family carers, though sharing them with families may not be a priority for professionals because of the major new things they will be concerned with.