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Researching Together: conference pack: held in Bristol 28th January 1999
- Editors:
- WILLIAMS Val, GYDE Karen (comp.)
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1999
- Pagination:
- 98p.
- Place of publication:
- Bristol
The research supporter needs to learn how to step back, and find ways for researchers with learning difficulties to do things for themselves. It is important that people with learning difficulties know how powerful they can be when they are doing research.
Moving on with Direct Payments
- Author:
- HARBRIDGE Elinor
- Journal article citation:
- Community Living, 13(2), October 1999, pp.16-17.
- Publisher:
- Hexagon Publishing
The project manager of Swindon People First presents her views on Direct Payment schemes for people with learning difficulties, and argues it is the best way of helping people move on.
Using autobiographical approaches with people with learning difficulties
- Authors:
- ATKINSON Dorothy, WALMSLEY Jan
- Journal article citation:
- Disability and Society, 14(2), March 1999, pp.203-216.
- Publisher:
- Taylor and Francis
Biography and autobiography have been used in numerous ways to represent people with learning difficulties. This article reviews a variety of approaches to biography and autobiography with people with learning difficulties, and discusses the roles researchers play. Ends with a discussion of the potential of autobiography as a means to change the power relationships in disability research.
The Choice Questionnaire: a scale to assess choices exercised by adults with intellectual disability
- Authors:
- STANCLIFFE Roger J., PARMENTER Trevor R.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 24(2), June 1999, pp.107-132.
- Publisher:
- Taylor and Francis
This article presents information on the development and evaluation of the Choice Questionnaire. The scale can be administered by interviewing the consumer or may be completed by a knowledgeable proxy. Used in either of these ways, the Choice Questionnaire was found to have very satisfactory reliability and validity. Its use as a research and evaluation tool is discussed.
Excluded from inclusion?
- Author:
- GREIG Rob
- Journal article citation:
- Community Care, 25.2.99, 1999, pp.2-3.
- Publisher:
- Reed Business Information
The author argues that people with learning difficulties are missing out on the new health and social policy agenda because of policy-makers' over-emphasis on access to mainstream services.
Little voice, big issues
- Author:
- RUSSELL Oliver
- Journal article citation:
- Community Care, 25.2.99, 1999, p.1.
- Publisher:
- Reed Business Information
Looks at how the voices of people with learning difficulties are at last being heard and at how the result could be a revolution in service provision.
Choice, dementia and people with learning difficulties
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1999
- Pagination:
- 4p.
- Place of publication:
- York
Like the rest of the population, people with learning difficulties are living longer and are also increasingly joining the growing numbers of people who have dementia. This trend throws up a range of issues for policy-makers and practitioners. Little attention has been paid to how choice and empowerment, fundamental to the community care reforms, can be made meaningful for individuals with learning difficulties and dementia. This research examined how far 20 people with these dual impairments, living in a range of settings, were involved in making choices and decisions about their own lives, and identified what facilitated or hindered that process.
Discerning the appropriate role and status of Quality of Life assessment for persons with intellectual disability: a reply to Cummins
- Authors:
- AGER Alastair, HATTON Chris
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 12(4), 1999, pp.335-339.
- Publisher:
- Wiley
Identifies three major issues arising from Cummings' (1997) review of quality of life (QOL) assessment for persons with intellectual disability. First, Cummins' analysis of pre-existing measures relevant to the analysis of QOL is argued to be inadequate. Second, the relationship between 'objective' and 'subjective' measures of life experience is proposed to be more complex than that implied by the earlier review. Third, discussion of the appropriate role and status of attempts to measure QOL indicates such measurement may be more empowering of service providers than service users.
Learning difficulties
- Author:
- WARD Linda
- Journal article citation:
- Research Matters, 1999, pp.28-30.
- Publisher:
- Community Care
Asks how people with learning difficulties can be empowered to live "ordinary lives". Looks at some answers to this question that may be found in the USA, the country that has led the way.
"Like the secret service isn't it". People with learning difficulties', perceptions of staff and services: mystification and disempowerment
- Author:
- GOBLE Colin
- Journal article citation:
- Disability and Society, 14(4), July 1999, pp.449-461.
- Publisher:
- Taylor and Francis
Seven people with learning difficulties were interviewed about their perceptions of staff in services they use. Three major themes emerged, which were perceptions relating to the physical presence and absence of staff; the emotional impact of interactions with staff; and the political impact of interactions with staff. It was found that the participants had only superficial knowledge of staff identities and roles, and of service systems and structures, and consequently lack the knowledge and awareness necessary to negotiate what these roles might be, or even that negotiation might be possible. The findings are discussed in relation to a developmental model of empowerment, and empowerment issues generally.