Search results for ‘Subject term:"learning disabilities"’ Sort:
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Inclusion and healthcare choices: the experiences of adults with learning disabilities
- Authors:
- FERGUSON Morag, JARRETT Dominic, TERRAS Melody
- Journal article citation:
- British Journal of Learning Disabilities, 39(1), March 2011, pp.73-83.
- Publisher:
- Wiley
Those with learning disabilities have fewer decision-making opportunities than the general population. This study investigated the decision-making experiences of two groups of individuals with a learning disability. Group 1 included irregular attenders who had opted out of healthcare appointments for avoidable reasons, and group 2 included regular attenders who had attended all appointments or not attended for unavoidable reasons. Interviews were carried out with 4 people with learning disabilities and/or their 13 primary carers. In addition to these interviews, physiotherapy staff participated in a focus group. Those with learning disabilities described experiences of and opportunities for making everyday decisions but mostly identified others as being responsible for making their health care choices. Overall, the paper concluded that a greater understanding of the health care expectations and experiences of individuals with learning disabilities, and those that support them, is required to enable people with learning disabilities as participants in their own health care decision-making processes.
Helping people assert their rights
- Author:
- -
- Journal article citation:
- Nursing Times, 24.05.05, 2005, p.47.
- Publisher:
- Nursing Times
Discusses the role of learning disability nurses and how they can empower clients and help them to access the services they need.
Citizen advocacy
- Author:
- DAVIES R. Gwyn
- Journal article citation:
- Mencap News, 49, November 1994, pp.6-7.
Describes the scheme operating at Bryn-y-Neuadd Hospital in Gwynedd, under the care of the Clwyd and Gwynedd Advice and Advocacy Association.
When satisfaction is not directly related to the support services received: understanding parents' varied experiences with specialised services for children with developmental disabilities
- Authors:
- ROBERT Marie, LEBLANC Line, BOYER Thierry
- Journal article citation:
- British Journal of Learning Disabilities, 43(3), 2015, pp.168-177.
- Publisher:
- Wiley
Parents of children with autism or intellectual disabilities are more susceptible to stress and have a greater burden of adversity than other parents. Their well-being and satisfaction greatly depend on the system's response of finding them formal support and the help they need. This study proposes an interpretive approach, based on 15 parents' experiences, to find and understand the strengths and weaknesses of specialised support services. The research also aims to obtain data on parents' experiences in order to identify the conditions and the perceptions on which feeling satisfaction or dissatisfaction is based. The situations that were considered positive are all directly related to the professional concrete support parents say they received (e.g. ‘working with’ their child to improve communication with him or her, understanding his or her issues, and managing difficult behaviours). However, the overall experience of each parent has either a dominant positive or a dominant negative connotation. The parents' satisfaction or dissatisfaction appears to be constructed from two criteria: (i) whether parents see themselves as experts or non-experts on the situation of their child and (ii) parents' opinions on the purpose or goal of the intervention or of the services they received. (Edited publisher abstract)
Reducing health inequalities in Scotland: the involvement of people with learning disabilities as national health services reviewers
- Authors:
- CAMPBELL Martin, MARTIN Mike
- Journal article citation:
- British Journal of Learning Disabilities, 38(1), March 2010, pp.49-58.
- Publisher:
- Wiley
Reducing health inequalities is a key priority for the Scottish Government. Health authorities are expected to meet quality targets. The involvement of people with learning disabilities in health service review teams has been one of the initiatives used in by National Health Service Quality Improvement Scotland to empower patients and improve health services. This paper describes this initiative, how it was planned, and an evaluation by health staff, carers and people with learning disabilities. Recommendations are made to ensure the future success of this type of initiative in Scotland and elsewhere. This initiative was evaluated positively and tested traditional assumptions, challenging the power imbalance in patient-provider relationships. The theory and the practice of including people with learning disabilities as 'expert patient' reviewers are discussed.
Learning disabilities: practice issues in health settings
- Editors:
- TODD Margaret, GILBERT Tony
- Publisher:
- Routledge
- Publication year:
- 1995
- Pagination:
- 196p.,bibliogs.
- Place of publication:
- London
Puts the NHS and Community Care Act 1990 and the radical changes it has made to service provision for people with learning difficulties in a health care context and examines the theoretical underpinning of the act, from a practical perspective. Focuses on 3 main themes: social policy and service provision; judgments; and specific interventions.
Speaking to power: advocacy for health and social care
- Author:
- DONNISON David
- Publisher:
- Policy Press
- Publication year:
- 2009
- Pagination:
- 165p.
- Place of publication:
- Bristol
This book is for anyone working, or planning to work, as an advocate for people who need help dealing with public services. It is based on the experiences of advocates and uses case studies from Scotland. Examples of advocacy for both individuals and groups are described and discussed. There are chapters on what advocates do, how advocacy fits into the broader scheme of things and management, training and evaluation of the work. Contents include: origins of advocacy; Scotland gives a lead; what advocates do - their main clients; what advocates do - questions and dilemmas; setting up an advocacy project and running it; volunteers; making advocacy accountable; roadblocks; looking ahead.
Valuing people now: a new three-year strategy for people with learning disabilities
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2009
- Pagination:
- 143p.
- Place of publication:
- London
Valuing people now sets out the Government's strategy for people with learning disabilities for the next three years following consultation. It also responds to the main recommendations in Healthcare for All, the independent inquiry into access to healthcare for people with learning disabilities.
Valuing people now: a new three-year strategy for people with learning disabilities: executive summary
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2009
- Pagination:
- 13p.
- Place of publication:
- London
Valuing people now sets out the Government's strategy for people with learning disabilities for the next three years following consultation. It also responds to the main recommendations in Healthcare for All, the independent inquiry into access to healthcare for people with learning disabilities.
Valuing people: much achieved, more to do; a summary report of inspections carried out during 2003-2004 of 12 councils' social care services for people with learning disabilities
- Author:
- COMMISSION FOR SOCIAL CARE INSPECTION
- Publisher:
- Commission for Social Care Inspection
- Publication year:
- 2004
- Pagination:
- 35p.
- Place of publication:
- London
Summary report of twelve inspections of services for adults with learning difficulties and how these services were performing in the light of the White Paper 'Valuing people'. Consultants with learning difficulties and their support workers were included as members of the inspection teams. The teams focused on advocacy; information and communication; assessment and person-centred planning; transition into adult life; services for people with learning disabilities; people with additional needs; services for family carers; partnership and planning; and resources.