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Changes and choices: finding out what information young people with learning disabilities, their parents and supporters need at transition
- Authors:
- TARLETON Beth, WARD Linda
- Journal article citation:
- British Journal of Learning Disabilities, 33(2), June 2005, pp.70-76.
- Publisher:
- Wiley
This article provides an overview of the methods and findings of a project, commissioned by the Social Care Institute for Excellence (SCIE), to explore the information needs of young people with learning disabilities, their families and supporters at transition. It describes how a group of young people with learning disabilities were trained in research methods and undertook four focus groups with other young people with learning disabilities in England and Wales. The different kinds of information required are summarized: getting a job, going to college and about the transition process generally, however with different emphaises from each group.
Transition: the experiences of young people with learning disabilities and their families in England
- Authors:
- WARD Linda, et al
- Journal article citation:
- Tizard Learning Disability Review, 8(4), October 2003, pp.19-28.
- Publisher:
- Emerald
Reports on a study of 283 families with youngsters with learning disabilities to examine the experiences of young people and their families in the transition from children's to adult services. The research was carried out by the Home Farm Trust and the Norah Fry Research Centre, University of Bristol, The research consisted of a postal questionnaire which was distributed to 370 families; 27 in-depth interviews which were conducted with parents in the family home; and 27 face-to-face interviews with the young people with learning difficulties from these families. The study found that existing legislation and guidance were largely failing youngsters with learning disabilities and their families at transition. There were substantial discrepancies between what ought to have been provided and what young people and their families experienced in practice, and significant difficulties as youngsters moved between children's and adult health and social services. Other difficulties experienced at transition are also reviewed, along with possibilities for improvements in practice. The study also looked at some innovative schemes and services in this area.
Innovations in advocacy and empowerment for people with intellectual disabilities
- Editor:
- WARD Linda
- Publisher:
- Lisieux Hall Publications
- Publication year:
- 1998
- Pagination:
- 279p.,bibliog.
- Place of publication:
- Chorley, Lancs.
Focuses on advocacy and empowerment for people with learning difficulties. Includes chapters on: innovations in advocacy and empowerment; changing systems; self advocacy; the development of the international self advocacy movement; the impact of accessible information on people with learning difficulties; involving people with learning difficulties in the work of a public policy research institute; participation and empowerment through continuing education; empowerment through oral history and personal stories; setting up and running a health advocacy group for women; self advocacy by black people with learning difficulties; empowerment for older people; involving people with profound and multiple disabilities in person centred planning; involving people with learning difficulties in staff selection and recruitment; direct payments; partnerships in policy making; crime and the law; and helping people with learning difficulties to shape services.
Making valuing people work: strategies for change in services for people with learning disabilities
- Authors:
- FYSON Rachel, WARD Linda
- Publisher:
- Policy Press
- Publication year:
- 2004
- Pagination:
- 88p.
- Place of publication:
- Bristol
In its creation, Valuing People represented a radical departure from the traditional processes of Whitehall policy development. For the first time, people with learning disabilities were actively involved in the working parties from which the White Paper was developed; their views, needs, ambitions, and dreams were reflected in the final document. Subsequent to the White Paper’s publication, the involvement of both service users and family carers has continued to be an important element of the implementation process; in particular they have had an important role to play in Learning Disability Partnership Boards. These new structures within local government aim to bring together key local stakeholders, including people with learning difficulties and family carers as well as social services and health and a wide range of providers of services, in order to raise awareness of learning disability issues beyond the specialist services and plan for the implementation of the changes the White Paper required. Taking as its starting point the assumption that effective implementation of Valuing People would require significant changes to services at both a strategic and operational level, the Strategies for Change project posed a number of questions: How can local strategies be developed which reflect the needs, wishes and concerns of local populations? How can people with learning disabilities and family carers be involved effectively in the work of Partnership Boards? How can the types of support offered to people with learning disabilities be changed, to enable people to take more control over their own lives? What role should commissioners of learning disability services play in bringing about these changes? How have people with learning disabilities experienced previous changes to their support services and how can these changes be user-led?
Values and visions: changing ideas in services for people with learning difficulties
- Editors:
- PHILPOT Terry, WARD Linda
- Publisher:
- Butterworth-Heinemann
- Publication year:
- 1995
- Pagination:
- 422p.,bibliogs.
- Place of publication:
- Oxford
Includes chapters on: supporting families of children and adults with learning difficulties; achieving supported housing; supported employment and real jobs; continuing education for adults with learning difficulties; institutional trends in services; developing better relationships between health and social services; assessment and care management; making contracts work for people with learning difficulties; user participation in services; complaints procedures; developing better services for people from black and minority ethnic communities; gender issues; older people with learning difficulties; self advocacy; challenging behaviour; sexuality; parents with learning difficulties; poverty; and media images of people with learning difficulties. Also contains sections on services provision in the United States and Canada.