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Adopting a child with down's syndrome: stage three of a longitudinal study
- Authors:
- MASON Kathy, HUGHES Mike, SELMAN Peter
- Publisher:
- Barnardo's
- Publication year:
- 1998
- Pagination:
- 41p.
- Place of publication:
- London
The adolescent with Down's Syndrome: life for the teenager and for the family
- Authors:
- BUCKLEY Sue, SACKS Ben
- Publisher:
- Portsmouth Polytechnic. Department of Psychology
- Publication year:
- 1987
- Pagination:
- 165p., tables, bibliog.
- Place of publication:
- Portsmouth
Attitudes to Down's Syndrome: an investigation of attitudes to mental handicap in urban and rural Yorkshire
- Author:
- SINSON Jamie C
- Publisher:
- Mental Health Foundation
- Publication year:
- 1985
- Pagination:
- 52p., tables, diags, bibliog.
- Place of publication:
- London
The mother of a mongol girl talks about her experiences./Through the eyes of the Probation Officer
- Author:
- PARSLOE Phyllida
- Journal article citation:
- British Journal of Social Work, 2(1), 1972, pp.5-26.
- Publisher:
- Oxford University Press
The text of an interview, followed by the author's comments.
Lucy's treatment
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2011
- Place of publication:
- London
This film is a drama set in an accident and emergency department. Lucy is a woman with Down’s syndrome who is resisting treatment for a dog bite. She is with her mother when the nurse comes to assess her. The nurse does not communicate well with Lucy. She is doing a pressurised job, but this cannot excuse her behaviour towards Lucy. The nurse also makes a common mistake of believing she can’t provide treatment which goes against her patient’s wishes. It is Lucy’s mother who explains that where a person lacks capacity to make a decision about treatment, the decision must be made in the person’s best interests. Lucy is given a tetanus injection using a limited amount of restraint. NB This film is no longer available to view.
“It's good, they're like me; the same but different.” An interpretative phenomenological analysis of the identities of women with down's syndrome
- Authors:
- GROVES Emma, RAYNER Kelly, MUNCER Steven
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(3), 2018, pp.445-453.
- Publisher:
- Wiley
Background: For people with disabilities, identity formation is based on responses to hierarchical values determined by able populations. Some adopt a disability identity, whereas others may seek to conceal their disability. No research has focused on how women with Down's Syndrome form an identity. Design: Eight women with Down's Syndrome took part in semi‐structured interviews designed to find out more about their individual and shared identities. The transcripts were analysed using interpretive phenomenological analysis. Findings: Negative assumptions of others and oppressive, paternalistic care often lead to a lack of ownership over narratives. “Finding a place in society” is an attempt to challenge this and gain a sense of ownership over their lives. Conclusions: This research uncovered the individual and shared identities that women with Down's Syndrome construct. Services need to be aware of the role they have in supporting these women to develop autonomy and ownership over their lives. (Edited publisher abstract)
Difficulties of dealing with dementia in individuals with intellectual disabilities: the healthcare perspective
- Authors:
- JETHWA Hannah, CASSIDY Geraldine
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 4(4), December 2010, pp.48-52.
- Publisher:
- Emerald
Dementia is a condition that involves inevitably progressive deficits in numerous cognitive domains, including thought, language, memory, understanding and judgement. It is more than 4 times as prevalent in people with intellectual disabilities as in the general population. This paper explains the main difficulties in dealing with dementia in people with intellectual disabilities, including late diagnosis, assessment and management issues. Diagnosis of the condition in people with intellectual disabilities is often difficult due to lack of baseline skill assessment, high staff turnover in supported accommodation and low expectations of capabilities. Current National Institute for Health and Clinical Excellence (NICE) guidelines on anti-dementia medication state that treatment should not be initiated until the condition has reached moderate severity. Determining whether symptoms are at this stage in people with intellectual disabilities is difficult because their skill level is already impaired. An accurate and extensive record of baseline skill levels in people with intellectual disabilities is therefore crucial, and regular comparison with baseline is key to early diagnosis of dementia.
Stigmatised attitudes towards intellectual disability: a randomised crossover trial
- Authors:
- VARUGHESE Sabu John, LUTY Jason
- Journal article citation:
- Psychiatrist (The), 34(8), August 2010, pp.318-322.
- Publisher:
- Royal College of Psychiatrists
A major UK government objective is to tackle discrimination, stigma and inequalities in mental health – with stigma being a social construct that devalues people due to distinguishing characteristics or marks. Yet people with intellectual disabilities continue to suffer serious stigma and discrimination. The study aimed to determine the effect of viewing a picture of a person with intellectual disability on stigmatised attitudes. The 20-point Attitude to Mental Illness Questionnaire (AMIQ) was used and a representative panel of members of the general public were randomised to complete the questionnaire either with or without looking at a picture of a man with Down syndrome. Six months later the same experiment was performed with the groups crossed over. Results were received for 360 participants. It was theorised that looking at the picture would produce a more negatively stigmatised attitude than simply asking participants to complete the test without viewing pictures. However, findings showed that after examination of the picture attitudes were actually reduced by a small by significant extent, possibly by personalising the description and producing a more sympathetic response. The actual sequence of the test had no significant effect on the outcome. In conclusion, the author suggests that looking at a picture of a young man with Down syndrome significantly reduces reported stigmatised attitudes.
Assessment of dementia in people with learning disabilities
- Author:
- TORR Jennifer
- Journal article citation:
- Advances in Mental Health and Learning Disabilities, 3(3), September 2009, pp.3-9.
- Publisher:
- Emerald
Alzheimer’s disease and other dementias are at least as prevalent in older people with learning disabilities as in the general population. In addition, people with Down’s syndrome have high rates of early onset Alzheimer’s disease. Assessment of dementia in people with learning disabilities is made difficult by pre-existing cognitive and functional impairments and high rates of comorbid disorders. This paper discusses the assessment of dementia in people with learning disabilities. The assessment procedure needs to include a comprehensive description of baseline functioning and pattern of decline, rigorous medical work-up and treatment of identified conditions, serial cognitive assessments, and functional and risk assessments to guide care planning.
Screening adults with Down's syndrome for early signs of dementia
- Author:
- MCBRIEN Judith
- Journal article citation:
- Journal of Integrated Care, 17(3), June 2009, pp.3-7.
- Publisher:
- Emerald
This article outlines the case for learning disability teams to provide routine screening of adults with Down's syndrome for early signs of dementia. It is illustrated by reference to practice in one such service where clinical and research developments have gone hand in hand, with tangible benefits to clients, carers and the multi-disciplinary team. Although specifically designed to meet the challenge of the increasing number of people with Down's syndrome who develop dementia, it is applicable to the care of all people with learning disabilities.