Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 7 of 7
Impact of dementia upon residential care for individuals with Down Syndrome
- Authors:
- LLOYD Vicki, KALSY Sunny, GATHERER Amanda
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 5(1), 2008, pp.33-38.
- Publisher:
- Wiley
In this exploratory study, the authors examined the objective and subjective impact of dementia upon paraprofessional paid carers of individuals with Down syndrome working in residential settings. The study used the Caregiver Activities Scale -Intellectual Disabilities (CAS-ID), the Caregiver Difficulties Scale - Intellectual Disabilities (CDS-ID), and the Maslach Burnout Inventory (MBI). Responses given for these measures by paraprofessional carers of individuals with Down syndrome and dementia (n = 9) were compared with responses from those caring for recipients with Down syndrome and no additional cognitive decline (n = 11). No significant differences were found in the responses from these sets of carers on measures of objective (CAS-ID) or subjective burden (CDS-ID). However, the MBI revealed that carers of individuals with Down syndrome and dementia reported significantly increased levels of emotional exhaustion. Findings suggested that, while even when there is little difference in the level of caregiving tasks or the subjective difficulties of caregiving, the onset of dementia in individuals with Down syndrome resulted in increased emotional exhaustion for carers. Additional factors not considered within this study, such as challenging behaviour, may also be pertinent to carer burden.
Family subtyping and early intervention
- Authors:
- MARGALIT Malka, AL-YAGON Michal, KLEITMAN Talia
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 3(1), March 2006, pp.33-41.
- Publisher:
- Wiley
The goal of the study was to identify and differentiate subgroups among mothers whose infants were diagnosed as having a developmental disability. The sample consisted of 80 mothers from intact families in Israel whose infants had such diagnoses, most of whom were diagnosed with Down syndrome. All mothers were receiving early intervention services. Acknowledging the mothers' heterogeneous reactions to their situation, the study attempted to identify discrete family profiles, based on mothers' sense of coherence as a measure of personal strength and family cohesion as a measure of systemic support. Four family subtypes were identified. The authors examined experiences of stress, coping, and affect among these subgroups. Significant differences emerged among these four subgroups in mothers' stress experience, as well as their negative and positive moods. Relations between mothers' strengths and their needs are discussed as related to the early intervention program.
An approach to dealing with stress in carers
- Author:
- COURELL Declan
- Journal article citation:
- Nursing Times, 21.2.96, 1996, pp.44-46.
- Publisher:
- Nursing Times
Examines the effect of stress on carers of children with learning difficulties. One family's problems, in relation to their psychological well-being, are related to relevant ideas, concepts and theories associated with stress and coping. Implications for future practice are also discussed.
Socio-economic factors: their relationship with child and family functioning for children with Down's Syndrome
- Authors:
- TURNER Stephen, et al
- Journal article citation:
- Mental Handicap Research, 4(1), 1991, pp.80-100.
- Publisher:
- BIMH Publications
Reports on a study of the families of 118 children with Down's Syndrome, and the extent to which parental education and qualifications, social class, and more specific aspects of social and economic disadvantage, were related to child behaviour problems and to measures of parental stress and satisfaction.
Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome
- Authors:
- DABROWSKA A., PISULA E.
- Journal article citation:
- Journal of Intellectual Disability Research, 54(3), March 2010, pp.266-280.
- Publisher:
- Wiley
This study examined the profile of stress for 162 parents of pre-school children with autism, Down syndrome and typically developing children, and to assess the association between parenting stress and coping style. Findings indicated a higher than average level of stress in parents of children with autism. Also, an interaction effect was revealed between the child’s diagnostic group and parent's gender for two scales of parenting stress: dependency and management; and limits of family opportunities. Mothers of children with autism scored higher than fathers in parental stress, whereas no such differences were found in the group of parents of children with Down syndrome and typically developing children. It was found that parents of children with autism differed from parents of typically developing children in social diversion coping. Emotional coping was the predictor for parental stress in the samples of parents of children with autism and Down syndrome, and task-oriented coping was the predictor of parental stress in the sample of parents of typically developing children. The results strongly supported earlier findings on parenting stress in parents of children with autism, and also shed light on the relationship between coping styles and parental stress.
Families of 30-35 year olds with Down's Syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(1), March 2005, pp.75-84.
- Publisher:
- Wiley
The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. A semi-structured interview schedule was used, including items from the handicaps, behaviour and skills schedule and from Holmes' thesis relating to leisure and social life and experience of services. Most parents, now in their late 60s, reported good health and a satisfactory social life. Mothers' mean stress scores were slightly higher in the Down's syndrome group than in the controls: possible explanations for this are discussed. Only one factor relating to the offspring with Down's syndrome could be shown to influence stress. Few adverse effects on the siblings were identified. The study is in agreement with others in showing families of older people with Down's syndrome to be well-adjusted and not unduly stressed.
Mothers' observations of children with Down Syndrome coping with demands to adapt
- Authors:
- GREAVES Daryl, POOLE Charles
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 21(2), June 1996, pp.153-162.
- Publisher:
- Taylor and Francis
Discusses the results of a study to produce an account of the situation of mothers caring for children with Down syndrome, using the Parenting Stress Index. A low internal reliability coefficient for the Adaptability/Plasticity Child Domain subscale raised questions regarding the validity of this scale for these children. A factor analysis of the scale itself found that the providing instead information on the types of coping strategies used by these children when they are required to adapt.