Search results for ‘Subject term:"learning disabilities"’ Sort:
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People with a learning disability and dementia: reducing marginalisation
- Author:
- WATCHMAN Karen
- Journal article citation:
- Journal of Dementia Care, 20(5), September 2012, pp.34-38.
- Publisher:
- Hawker
People with a learning disability, especially Down’s syndrome, are at risk of dementia at a younger age. While the voice of people with learning disability and people with dementia are increasingly included in research and practice, the same cannot be said for people who have both a learning disability and dementia. The aim of this literature review was to identify factors that have contributed to this lack of consideration in health and social care policy and practice. The review starts with providing a historical overview, followed by a discussion of the key issues identified in the literature. A series of deficits are identified that are likely to result in a further increase in the marginalisation experienced by people with a learning disability and dementia. These deficits include the lack of a shared diagnosis, lack of staff training and future planning, lack of adapted communication as dementia progresses, lack of accurate statistics of the numbers affected or predicted, lack of clarity over accommodation options and an increase in isolation. The result is a Cinderella service that reflects the limited knowledge of individual experiences and support needs of this group.
Planning ahead: meeting the needs of older people with intellectual disabilities in the United Kingdom
- Authors:
- HATZIDIMITRIADOU Eleni, MILNE Alisoun
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(3), August 2005, pp.341-359.
- Publisher:
- Sage
This article aims to review existing evidence regarding the older population with intellectual disabilitiesand their family carers, with a view to highlighting their health and social care needs and exploring the policy and service context of their care. A particular focus is on identifying the core elements of effective service planning and development. The focus of the article is the UK, but the issues explored have wider relevance particularly in western societies.
Ageing and learning disability
- Author:
- HOLLAND A.J.
- Journal article citation:
- British Journal of Psychiatry, 176, January 2000, pp.26-31.
- Publisher:
- Cambridge University Press
This study aims to identify some key biological, psychological and social issues relevant to how ageing might particularly effect people with learning disabilities. Presents a selected review which considers the extent to which there are similarities and differences relative to people without learning disabilities. Findings suggest that there is a convergence, in later life, between people with a learning disability and those without. There is a lack of a concerted response to ensure that the best possible health social care is provided for people with learning disabilities in later life.
Families of 30-35 year olds with Down's Syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(1), March 2005, pp.75-84.
- Publisher:
- Wiley
The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. A semi-structured interview schedule was used, including items from the handicaps, behaviour and skills schedule and from Holmes' thesis relating to leisure and social life and experience of services. Most parents, now in their late 60s, reported good health and a satisfactory social life. Mothers' mean stress scores were slightly higher in the Down's syndrome group than in the controls: possible explanations for this are discussed. Only one factor relating to the offspring with Down's syndrome could be shown to influence stress. Few adverse effects on the siblings were identified. The study is in agreement with others in showing families of older people with Down's syndrome to be well-adjusted and not unduly stressed.
Developmental psychiatry - insights from learning disability
- Author:
- HOLLINS Sheila
- Journal article citation:
- British Journal of Psychiatry, 177, September 2000, pp.201-206.
- Publisher:
- Cambridge University Press
This article aimed to review the speciality of the psychiatry of learning disability and how it is currently practised in the UK. Clinical, service, research and educational issues in learning disability psychiatry are reviewed and illustrated. Key issues which emerge in all four areas include the importance of communication skills, consultation with users and carers, professional education and partnership. The psychiatry of leaning disability is a complex, varied and stimulating branch of psychiatry with a strong developmental focus.
Some issues in caring for people with the dual disability of Down's Syndrome and Alzheimer's dementia
- Author:
- McCARRON M.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 3(3), 1999, pp.123-129.
Virtually all individuals with Down's syndrome over the age of 35 years have neuropathological changes characteristic of Alzheimer's disease. It has become increasingly recognised the people with Down's syndrome and dementia have every special needs, and those who care for them require specialist knowledge and skills. This paper aims to explore some of important issues in caring for persons with this dual disability. In an attempt to help staff respond to the opportunities and challenges they encounter, issues discussed include: promoting well-being, developing a shared vision on which to build practice, mealtimes - a therapeutic event, reality orientation and validation therapy, communication, activity and entertainment.
Down Syndrome: the facts
- Author:
- SELIKOWITZ Mark
- Publisher:
- Oxford University Press
- Publication year:
- 1997
- Pagination:
- 204p.
- Place of publication:
- Oxford
Offers practical advice on Down syndrome. Includes chapters on: the first days; coping with family and friends; how Down syndrome comes about; the child's development, health and behaviour; a guide to services; assessment; school; adolescence; adulthood; and future pregnancies.
Sold short
- Author:
- MODDIA Bala
- Journal article citation:
- Nursing Times, 6.5.96, 1996, pp.26-30.
- Publisher:
- Nursing Times
Community care has shifted the main responsibility for the general health care of people with Down's Syndrome to the primary health-care team. Argues that what primary health-care teams have to offer falls far short of the ideal.
Down's Syndrome: children growing up
- Author:
- CARR Janet
- Publisher:
- Cambridge University Press
- Publication year:
- 1995
- Pagination:
- 215p.,tables,bibliog.
- Place of publication:
- Cambridge
Follows the lives of a population-based cohort of Down's Syndrome subjects from birth to early adulthood. Investigates a wide range of factors, including; abilities; behaviour; discipline; and independence. Also looks at effects on the family, and provision of services.
The elderly caregiver: caring for adults with developmental disabilities
- Editor:
- ROBERTO Karen
- Publisher:
- Sage
- Publication year:
- 1993
- Pagination:
- 240p.,tables,bibliog.
- Place of publication:
- Newbury Park, CA
Addresses issues and concerns relating to older people who are carers of people with learning difficulties. Brings together empirical research from a variety of disciplines and looks at service needs. Includes a chapter on empowering older care givers.