Search results for ‘Subject term:"learning disabilities"’ Sort:
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The mother of a mongol girl talks about her experiences./Through the eyes of the Probation Officer
- Author:
- PARSLOE Phyllida
- Journal article citation:
- British Journal of Social Work, 2(1), 1972, pp.5-26.
- Publisher:
- Oxford University Press
The text of an interview, followed by the author's comments.
Understanding maternal support for autonomy in young children with Down syndrome
- Authors:
- GILMORE Linda, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 13(2), 2016, pp.92-101.
- Publisher:
- Wiley
Prior research has highlighted the importance of supporting the autonomy of children with Down syndrome from early childhood. There is some evidence to suggest that mothers of children with Down syndrome are more directive than those whose children are developing typically. However, the factors that contribute to maternal autonomy supportive vs. directive behaviours are not well understood. The current study aimed to explore the value and importance that mothers place upon their child's autonomy, as well as the specific factors that influence the support they provide. Interviews were conducted with 14 mothers of young children with Down syndrome. It was revealed that mothers held aspirations for their children's future that included autonomy and independence; however, their capacity to promote autonomy was sometimes constrained by a range of child and family factors, as well as by their focus on developing skills for independent functioning. Understanding the factors that may constrain support for autonomy represents an essential step in the process of designing interventions for promoting maternal support for autonomy in families of children with Down syndrome and other developmental disabilities. (Edited publisher abstract)
'What's the next stage?' Mothers of young adults with Down syndrome explore the path to independence: a qualitative investigation
- Authors:
- DOCHERTY Julie, REID Kate
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(5), September 2009, pp.458-467.
- Publisher:
- Wiley
The values and beliefs of eight mothers of young adults with Down syndrome who are currently involved in supporting their offspring in the possible transition from dependence to independence are explored. The mothers, all living in Scotland, were interviewed and the results were thematically analysed using the qualitative approach, Interpretative Phenomenological Analysis (IPA). The mothers described themselves as having a dynamic role as both gate-keepers and facilitators in aiding their offspring on the path to adulthood. These findings are not consistent with findings of previous research, which suggested that mothers in this situation are personally and socially inclined to limit the transition of their offspring to an independent adulthood. The discussion explores the possible reasons for this change and proposes clarification to existing theoretical frameworks for understanding mothers' perspectives.
Family subtyping and early intervention
- Authors:
- MARGALIT Malka, AL-YAGON Michal, KLEITMAN Talia
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 3(1), March 2006, pp.33-41.
- Publisher:
- Wiley
The goal of the study was to identify and differentiate subgroups among mothers whose infants were diagnosed as having a developmental disability. The sample consisted of 80 mothers from intact families in Israel whose infants had such diagnoses, most of whom were diagnosed with Down syndrome. All mothers were receiving early intervention services. Acknowledging the mothers' heterogeneous reactions to their situation, the study attempted to identify discrete family profiles, based on mothers' sense of coherence as a measure of personal strength and family cohesion as a measure of systemic support. Four family subtypes were identified. The authors examined experiences of stress, coping, and affect among these subgroups. Significant differences emerged among these four subgroups in mothers' stress experience, as well as their negative and positive moods. Relations between mothers' strengths and their needs are discussed as related to the early intervention program.
Growing up with Down's Syndrome
- Author:
- SHEPPERDSON Billie
- Publisher:
- Cassell Educational
- Publication year:
- 1988
- Pagination:
- 216p., tables.
- Place of publication:
- London
The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life
- Authors:
- DYKE Paula, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 38(2), 2013, pp.149-162.
- Publisher:
- Taylor and Francis
The transition from school to adulthood for young adults with an intellectual disability involves movement from a generally secure and supported school environment to an emerging adult life that may be characterised by a wide variation in adoption of adult roles related to employment, independent living, friendships, and day activities. The perspectives of 18 mothers of young adults with either Down syndrome or Rett syndrome were analysed through qualitative semistructured interviews. The International Classification of Functioning, Disability and Health (ICF) framework was used as a conceptual basis. Themes that emerged included adult roles assumed during the day, accommodation, quality of life, living a “good” life, and family impact. In contrast with Rett syndrome, mothers of young adults with Down syndrome described more difficult pathways to attaining stability in adult roles. Environmental facilitators and barriers emerged in the area of support, relationships, services, systems, and policies. (Edited publisher abstract)
Examining the Down syndrome advantage: mothers and fathers of young children with disabilities
- Author:
- STONEMAN Z.
- Journal article citation:
- Journal of Intellectual Disability Research, 51(12), December 2007, pp.1006-1017.
- Publisher:
- Wiley
Across studies and across outcomes, parents of children with Down syndrome have been found to experience greater well-being than parents of children with other intellectual disabilities (ID). This study examined the extent to which differences in family income and child temperamental difficulty can explain why parents of children with Down syndrome experience greater well-being. Fifty married couples who were parents of young children with ID completed a set of questionnaires measuring child temperament, parent satisfaction with social support, depression and parenting beliefs. Parents were observed interacting with their children. When groups were compared without consideration of demographic differences, the findings generally replicated the Down syndrome advantage found by other researchers. After variance attributable to income was removed, however, the Down syndrome advantage disappeared for all parenting and parent wellness measures. The effects of child temperament were confined to maternal and paternal depression. Family income was more important than child etiology in predicting the parent measures used in the study.
Mothers' observations of children with Down Syndrome coping with demands to adapt
- Authors:
- GREAVES Daryl, POOLE Charles
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 21(2), June 1996, pp.153-162.
- Publisher:
- Taylor and Francis
Discusses the results of a study to produce an account of the situation of mothers caring for children with Down syndrome, using the Parenting Stress Index. A low internal reliability coefficient for the Adaptability/Plasticity Child Domain subscale raised questions regarding the validity of this scale for these children. A factor analysis of the scale itself found that the providing instead information on the types of coping strategies used by these children when they are required to adapt.
Family caregiving of aging adults with Down syndrome
- Authors:
- HODAPP Robert M., et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 13(2), 2016, p.181–189.
- Publisher:
- Wiley
Although persons with Down syndrome now live to approximately 60 years, the implications of increased longevity on family caregiving have received inadequate attention. Even compared with adults with other types of intellectual disabilities, by their late 40s and 50s adults with Down syndrome often show multiple health problems, cognitive-adaptive declines, and changes in daily work and activities. If alive, their parents are more often elderly, as mothers give birth to newborns with Down syndrome at a median age of 32 years (with high percentages age 40 and older). In addition, higher percentages of adults with (vs. without) Down syndrome live in their family homes and greater percentages may ultimately reside with siblings. Compared with caring for other adults with intellectual disabilities, ageing adults with Down syndrome may present earlier—and possibly more severe and more health-related—caregiving challenges to their parents and siblings. As a field and as a society, the authors note that there is a need to promote revisions of family support policies and interventions; recognise the inter-relations of aeging-related changes and their effects; and anticipate how aeging-related changes in the brother–sister with Down syndrome and the parent(s) might affect sibling caregivers. (Edited publisher abstract)
With the benefit of hindsight: a mother's reflections on raising a child with Down Syndrome
- Authors:
- MAXWELL Virginia, BARR Owen
- Journal article citation:
- Journal of Learning Disabilities, 7(1), March 2003, pp.51-64.
- Publisher:
- Sage
Learning disability services worldwide increasingly recognize people with learning disabilities as family members and aim to provide effective support which facilitates family cohesion. However, some professionals still hold stereotypical views about families within a pathological model and as being 'in need'. This article outlines one mother's reflections on her experience of raising a child with Down Syndrome, how his presence impacted on the family, and how she as a person changed as a result. The focus is on how the mother feels as a person, and how she has grown throughout all the sadness she has had to face. The article may help professionals to understand family life from a mother's perspective when a child has learning disabilities, and to recognize the importance of effective listening, ongoing coordinated support, and learning to work in partnership.