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Family subtyping and early intervention
- Authors:
- MARGALIT Malka, AL-YAGON Michal, KLEITMAN Talia
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 3(1), March 2006, pp.33-41.
- Publisher:
- Wiley
The goal of the study was to identify and differentiate subgroups among mothers whose infants were diagnosed as having a developmental disability. The sample consisted of 80 mothers from intact families in Israel whose infants had such diagnoses, most of whom were diagnosed with Down syndrome. All mothers were receiving early intervention services. Acknowledging the mothers' heterogeneous reactions to their situation, the study attempted to identify discrete family profiles, based on mothers' sense of coherence as a measure of personal strength and family cohesion as a measure of systemic support. Four family subtypes were identified. The authors examined experiences of stress, coping, and affect among these subgroups. Significant differences emerged among these four subgroups in mothers' stress experience, as well as their negative and positive moods. Relations between mothers' strengths and their needs are discussed as related to the early intervention program.
Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome
- Authors:
- DABROWSKA A., PISULA E.
- Journal article citation:
- Journal of Intellectual Disability Research, 54(3), March 2010, pp.266-280.
- Publisher:
- Wiley
This study examined the profile of stress for 162 parents of pre-school children with autism, Down syndrome and typically developing children, and to assess the association between parenting stress and coping style. Findings indicated a higher than average level of stress in parents of children with autism. Also, an interaction effect was revealed between the child’s diagnostic group and parent's gender for two scales of parenting stress: dependency and management; and limits of family opportunities. Mothers of children with autism scored higher than fathers in parental stress, whereas no such differences were found in the group of parents of children with Down syndrome and typically developing children. It was found that parents of children with autism differed from parents of typically developing children in social diversion coping. Emotional coping was the predictor for parental stress in the samples of parents of children with autism and Down syndrome, and task-oriented coping was the predictor of parental stress in the sample of parents of typically developing children. The results strongly supported earlier findings on parenting stress in parents of children with autism, and also shed light on the relationship between coping styles and parental stress.
Mothers' observations of children with Down Syndrome coping with demands to adapt
- Authors:
- GREAVES Daryl, POOLE Charles
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 21(2), June 1996, pp.153-162.
- Publisher:
- Taylor and Francis
Discusses the results of a study to produce an account of the situation of mothers caring for children with Down syndrome, using the Parenting Stress Index. A low internal reliability coefficient for the Adaptability/Plasticity Child Domain subscale raised questions regarding the validity of this scale for these children. A factor analysis of the scale itself found that the providing instead information on the types of coping strategies used by these children when they are required to adapt.