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I am not a cabbage: an autobiography by Robert Garland
- Author:
- GARLAND Robert
- Publisher:
- Circles Network
- Publication year:
- 2006
- Pagination:
- 150p.
- Place of publication:
- Rugby
The disabled author describes how a circle of support works for the benefit of all its members. A group of fun loving people formed around Robert, each reflecting in some way his personality and range of talents. There was plenty of hilarity, but he was never afraid to confront the problems that assailed them in the bureaucratic nightmare he often faced, especially in his struggle to prove he could live independently given the right support.
Our lives, our communities: promoting independence and inclusion for people with learning difficulties
- Authors:
- HART Craig, et al
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2007
- Pagination:
- 46p.
- Place of publication:
- York
Examining the issue of independence and inclusion, this study shows how 15 adults with learning difficulties live and what they think about their lives. Researched by people with learning difficulties themselves, the report compares experiences of living with parents, living independently in the community and living in a ‘village community’. Independence, choice and control were important themes in the study. The report makes recommendations to promote independence and inclusion for people with learning difficulties. The ethics and practicalities of user-controlled research are described.
Our lives, our communities: Promoting independence and inclusion for people with learning difficulties
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2007
- Pagination:
- 4p.
- Place of publication:
- York
Examining the issue of independence and inclusion, this study shows how 15 adults with learning difficulties live and what they think about their lives. Researched by people with learning difficulties themselves, the report compares experiences of living with parents, living independently in the community and living in a ‘village community’. Independence, choice and control were important themes in the study. The report makes recommendations to promote independence and inclusion for people with learning difficulties. The ethics and practicalities of user-controlled research are described.
Improving person centred technology for disabled people in Europe
- Author:
- BARNARD Steve
- Journal article citation:
- Llais, 101, Winter 2011, pp.3-5.
- Publisher:
- Learning Disability Wales
ImPaCT was a three year European project exploring how assistive technology, used in a person-centred way can benefit people with disabilities. During the project, Learning Disability Wales worked alongside eight other disability organisations from Europe. One of the project partners reports on its aims and achievements, now that the project is coming to a close.
Where is I.T A.T
- Author:
- JONES Kai
- Journal article citation:
- Llais, 93, Autumn 2009, pp.6-10.
- Publisher:
- Learning Disability Wales
An development of assistive technology and its potential to enable more control for disabled people is discussed.
Beyond disability
- Author:
- CAMM John
- Journal article citation:
- Local Government Chronicle, 4.6.09, 2009, pp.22-23.
- Publisher:
- Emap Business
Giving disabled adults structured support in the community can give them a chance to live independently. Initiatives in Enfield and Middlesborough, both winners of the Improvement & Development Agency's Beacon awards in the category 'Independent living for disabled adults', are highlighted.
Individualised funding interventions to improve health and social care outcomes for people with a disability: a mixed-methods systematic review
- Authors:
- FLEMING Padraic, et al
- Journal article citation:
- Campbell Systematic Reviews, 15(1-2), 2019, p.e1008.
- Publisher:
- Wiley
This Campbell systematic review examines the effects of individualised funding on a range of health and social care outcomes. It also presents evidence on the experiences of people with a disability, their paid and unpaid supports and implementation successes and challenges from the perspective of both funding and support organisations. This study is a review of 73 studies of individualised funding for people with disabilities. These include four quantitative studies, 66 qualitative and three based on a mixed-methods design. The data refer to a 24-year period from 1992 to 2016, with data for 14,000 people. Studies were carried out in Europe, the US, Canada and Australia. Overall, the evidence suggests positive effects of individualised funding with respect to quality of life, client satisfaction and safety. There may also be fewer adverse effects. There is less evidence of impact for physical functioning, unmet need and cost effectiveness. The review finds no differences between approaches for the Adult Social Care Outcomes Toolkit (ASCOT), self-perceived health and community participation. Recipients particularly value: flexibility, improved self-image and self-belief; more value for money; community integration; freedom to choose who supports you; social opportunities; and needs-led support. Many people chose individualised funding due to previous negative experiences of traditional, segregated, group-orientated supports. Successful implementation is supported by strong, trusting and collaborative relationships in their support network with both paid and unpaid individuals. This facilitates processes such as information sourcing, staff recruitment, network building and support with administrative and management tasks. These relationships are strengthened by financial recognition for family and friends, appropriate rates of pay, a shift in power from agencies to the individual or avoidance of paternalistic behaviour. Challenges include long delays in accessing and receiving funds, which are compounded by overly complex and bureaucratic processes. There can be a general lack of clarity (e.g. allowable budget use) and inconsistent approaches to delivery as well as unmet information needs. Hidden costs or administrative charges can be a source of considerable concern and stress. Staff mention involvement of local support organisations, availability of a support network for the person with a disability and timely relevant training as factors supporting implementation. Staff also highlight logistical challenges in support needs in an individualised way including, for example, responding to individual expectations, and socio-demographic differences. (Edited publisher abstract)
Individualised funding interventions to improve health and social care outcomes for people with a disability: a mixed-methods systematic review
- Authors:
- FLEMING Padraic, et al
- Publisher:
- Campbell Collaboration
- Publication year:
- 2019
- Pagination:
- 145
- Place of publication:
- Oslo
This Campbell systematic review examines the effects of individualised funding on a range of health and social care outcomes. It also presents evidence on the experiences of people with a disability, their paid and unpaid supports and implementation successes and challenges from the perspective of both funding and support organisations. This study is a review of 73 studies of individualised funding for people with disabilities. These include four quantitative studies, 66 qualitative and three based on a mixed-methods design. The data refer to a 24-year period from 1992 to 2016, with data for 14,000 people. Studies were carried out in Europe, the US, Canada and Australia. Overall, the evidence suggests positive effects of individualised funding with respect to quality of life, client satisfaction and safety. There may also be fewer adverse effects. There is less evidence of impact for physical functioning, unmet need and cost effectiveness. The review finds no differences between approaches for the Adult Social Care Outcomes Toolkit (ASCOT), self-perceived health and community participation. Recipients particularly value: flexibility, improved self-image and self-belief; more value for money; community integration; freedom to choose who supports you; social opportunities; and needs-led support. Many people chose individualised funding due to previous negative experiences of traditional, segregated, group-orientated supports. Successful implementation is supported by strong, trusting and collaborative relationships in their support network with both paid and unpaid individuals. This facilitates processes such as information sourcing, staff recruitment, network building and support with administrative and management tasks. These relationships are strengthened by financial recognition for family and friends, appropriate rates of pay, a shift in power from agencies to the individual or avoidance of paternalistic behaviour. Challenges include long delays in accessing and receiving funds, which are compounded by overly complex and bureaucratic processes. There can be a general lack of clarity (e.g. allowable budget use) and inconsistent approaches to delivery as well as unmet information needs. Hidden costs or administrative charges can be a source of considerable concern and stress. Staff mention involvement of local support organisations, availability of a support network for the person with a disability and timely relevant training as factors supporting implementation. Staff also highlight logistical challenges in support needs in an individualised way including, for example, responding to individual expectations, and socio-demographic differences. (Edited publisher abstract)
Evaluation of a Dynamic Future: final report
- Author:
- CORDIS BRIGHT
- Publisher:
- Cordis Bright
- Publication year:
- 2018
- Pagination:
- 140
- Place of publication:
- London
Final report of the evaluation of a five year project to support and improve the transition process for disabled young people aged 14-25 living in Wrexham and their families. The evaluation ran from September 2017 to August 2018, covering the full five-year period of the project. The evaluation approach included: review of literature; analysis of monitoring and outcomes data; and consultation with young people, their family members, project staff and other local organisations. A total of 199 young people accessed the project between 2013 and 2018, engaging with the project for eight months. The final evaluation found evidence that the project offers person-centred support to young people which is both more intensive and longer in duration than originally anticipated. It also found the support was valued by young people, families and other local organisations, who saw the person-centred practical focus of the project as key strengths. Young people were able to achieve a number of positive outcomes, including: engaging or remaining engaged with education, training and employment opportunities; becoming less socially isolated and developing improved social networks; increasing confidence and independence; and building practical life skills. Estimates produced as part of the evaluation suggest that the project may be achieving net cost avoidance as a result of reducing the number of young people who are NEET of between £3,415,424 and £6,225,024. This equates to a return on investment of between £3.93 and £7.16 for every £1 spent. The report also makes recommendations for the future development of the project. (Edited publisher abstract)
The road ahead: transition to adult life for persons with disabilities
- Editors:
- STOREY Keith, BATES Paul, HUNTER Dawn, (eds.)
- Publisher:
- Training Resource Network
- Publication year:
- 2008
- Pagination:
- 271p.
- Place of publication:
- St. Augustine, FL
- Edition:
- 2nd ed.
Transition from school to adult life has been difficult for people with disabilities. This publication is for people with disabilities and their families and those who help them transition to a quality adult life. It provides ideas to help students have a meaningful life after school. The contents is organised in eleven broad chapters written by twenty-one experts in the field. Each chapter beings with a group of key questions that are addressed in the text. Each chapter also include a summary of best practice recommendations, future research issues and discussion questions. Topic covered include transition planning, assessment, instructional strategies, career development, adult employment, community functioning skills, social life, quality of life, supported living, and post-secondary education.