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Difference and choice: exploring prenatal testing and the use of genetic information with people with learning difficulties
- Authors:
- WARD Linda, HOWARTH Joyce, RODGERS Jackie
- Journal article citation:
- British Journal of Learning Disabilities, 30(2), June 2002, pp.50-55.
- Publisher:
- Wiley
Developments in genetics have huge implications for disabled people (including people with learning difficulties) and their families. There is a potential for greater understanding of - and ultimately, perhaps, treatments for - serious conditions like cystic fibrosis and sickle cell anaemia, but there are also concerns about the negative implications, including the potential for discrimination in insurance and employment. This present article describes two workshops that explained the use of prenatal testing and genetic information to inform choices in pregnancy to people with learning difficulties, and then explores the issues with them and the contribution subsequently made by these people.