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"Forgetting familiar faces": staff perceptions of dementia in people with intellectual disabilities
- Authors:
- RYAN Christian, MacHALE Rosemary, HICKEY Emma
- Journal article citation:
- British Journal of Learning Disabilities, 46(3), 2018, pp.155-162.
- Publisher:
- Wiley
Background: Living with dementia is challenging, but poses unique difficulties for people with an intellectual disability. The process of dementia is also challenging for family, carers and friends. Materials and Methods: This study explores the impact of dementia on direct care staff using a focus group methodology. Thematic analysis was used to investigate the staff narratives. Results: Four key themes that emerged were as follows: (a) the difficulty of recognising symptoms of dementia in people with intellectual disabilities, (b) the process of diagnosis, (c) the challenge of dementia for the person, (d) the emotional impact of dementia for other people. Conclusion: The themes identify a number of important potential targets for supporting staff and peers in this challenging area of work. (Publisher abstract)
People with a learning disability: their concerns about dementia
- Authors:
- WILKINSON Heather, KERR Diana, RAE Catherine
- Journal article citation:
- Journal of Dementia Care, 11(1), January 2003, pp.27-29.
- Publisher:
- Hawker
Reports on a study to explore the knowledge and views of people with a learning disability on dementia. The study also gathered views of people with learning disabilities on a booklet explaining dementia, developed with one of the researchers in collaboration with the Scottish Down's Syndrome Association.
The autism matrix: the social origins of the autism epidemic
- Authors:
- EYAL Gil, et al
- Publisher:
- Polity
- Publication year:
- 2010
- Pagination:
- 240p.
- Place of publication:
- Cambridge
Using a combination of historical narrative and international comparison, the authors offer a new interpretation of autism from a sociological perspective. They argue that the recent rise in autism should be understood in the context of the deinstitutionalization of learning disabilities in the mid-1970s. This resulted in a change in the way institutions had to deal with childhood developmental disorders, but also of the cultural lens through which we view them. The authors show that where deinstitutionalization went the furthest, as in Scandinavia, UK and parts of the USA, autism rates are highest. Where it was absent or delayed, as in France, autism rates are low.
Including ADHD?
- Authors:
- LLOYD Gwynedd, NORRIS Claire
- Journal article citation:
- Disability and Society, 14(4), July 1999, pp.505-517.
- Publisher:
- Taylor and Francis
This article tries to make sense of the recent rise of Attention Deficit Hyperactivity Disorder in Britain by focussing on the contribution of the press, parents organisations, 'experts' and the drug companies, in the context of the current marketisation of education and health services. It draws on findings from a research project which studies press coverage of ADHD, and argues that the existence of active parents' organisations pushing for medical diagnosis and drug treatment for their children presents a challenge to thinking about inclusion.