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Commentary on: a comparison of dementia assessment service provision across three English county intellectual disability services
- Author:
- DODD Karen
- Journal article citation:
- Tizard Learning Disability Review, 26(3), 2021, pp.142-147.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to consider the issue of types of assessment offered by services for people with learning disabilities from the research study “A Comparison of Dementia Assessment Services for People with Intellectual Disabilities”. Design/methodology/approach: The commentary is based on a review of the associated literature. Findings: Assessment for possible dementia is a complex activity. The gold standard is to ensure that the assessment process is comprehensive including both direct assessments with the person and gathering information from key informants. The issues in not adopting this methodology are considered, as are issues in what services and assessments are called. Originality/value: The commentary considers the studies presented from a practitioner perspective. (Edited publisher abstract)
How social care staff can support people with learning disabilities and dementia
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
This factsheet provides information on how social care staff can support people with learning disabilities and dementia. It covers recognising signs of dementia, sharing information about what a diagnosis of dementia means, and things social care staff can do. It is the 11th in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
The special treatment
- Authors:
- WILLMORE Mary, GARNER Penny
- Journal article citation:
- Working with Older People, 9(3), September 2005, pp.28-31.
- Publisher:
- Emerald
The authors report on a unique training programme which has equipped the Oxfordshire Learning Disability Trust to better support and understand its clients with learning disabilities and dementia. Reports on the experience of one of the Trust's clients whose life has consequently improved through better communication and understanding.
Inclusion under the Mental Capacity Act (2005): a review of research policy guidance and governance structures in England and Wales
- Authors:
- RYAN Hayley, et al
- Journal article citation:
- Health Expectations, 24(1), 2021, pp.152-164. Online only
- Publisher:
- Wiley
Objective: To investigate how people with communication and understanding difficulties, associated with conditions such as dementia, autism and intellectual disability, are represented in research guidance supplementary to the Mental Capacity Act (MCA: 2005) in England and Wales. Methods: A documentary survey was conducted. The sample comprised the MCA Code of Practice (CoP: 2007) and 14 multi‐authored advisory documents that were publicly available on the Health Research Authority website. Textual review of key words was conducted followed by summative content analysis. Results: Representation of people with communication and understanding difficulties was confined to procedural information and position statements that focused mainly on risk management and protection. Whilst a need to engage potential participants was recognized, guidance provided was imprecise. Conclusions: Tensions exist between the protection versus empowerment of people with communication and understanding difficulties in research. The development of structured, evidence‐based guidance is indicated. Patient or public contribution: People with communication and understanding difficulties and carers participated in a working group to explore, discuss and interpret the findings. (Edited publisher abstract)
'Indirect payments' for people who lack capacity: how are they working in practice?
- Author:
- NATIONAL INSTITUTE FOR HEALTH RESEARCH. School for Social Care Research
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2015
- Pagination:
- 4
- Place of publication:
- London
Summarises findings from a study on how direct payments (DPs) are operating for people who lack capacity to consent (termed 'indirect payments') and are living with learning disabilities or dementia. Semi-structured interviews were used to explore experiences of indirect payments with samples of practitioners (67) and 'suitable people' (18) in six English local authorities. The interviews asked why people choose an indirect payment; looked at the application of the Mental Capacity Act by local authorities; and the identification and role of the suitable person. People in the study had chosen indirect payments for several reasons, often to avoid inadequate alternative services and/or to ensure meaningful activity for the disabled person. Identifying a suitable person to act on behalf of the person who lacked capacity to consent was usually done informally, often because they were a family member and already involved in managing their relative's services. Differences were identified in processes between people with learning disabilities and those living with dementia. People with dementia were often 'given' a plan which assumed minimum care needs and was not aspirational in nature. Whereas people with learning disabilities would often have some form of person-centred planning. The study also found limited on-going support for suitable people, and a lack of clarity among practitioners on the application of the Mental Capacity Act (2005). Additional information, training and support to help suitable people become fully engaged in the whole direct payment process, as well as more support and training for practitioners. It also suggests some of the person-centred practices common among people with learning disabilities could be adopted for people with dementia. (Edited publisher abstract)
How personalised technology can play an important role in supporting people with learning disabilities as they age and face the onset of dementia
- Author:
- NICHOLS M
- Journal article citation:
- Journal of Assistive Technologies, 5(3), 2011, pp.158-163.
- Publisher:
- Emerald
HfT is a national learning disability charity. This article reports on its work at Old Quarries, a mix of residential and supported living accommodation in Gloucestershire for people with learning disabilities. The article presents case studies featuring individuals with the onset of dementia who were able to use personalised technology to empower them to live more independently and to remain in their homes rather than being moved into alternative, unfamiliar accommodation. The personalised technology described includes a bedroom door sensor alerting staff when a door is opened, a talking photo album, a fingerprint lock for a front door, and a radio frequency identification device worn by individuals which alerts staff when the wearer is about to move from a lower to a high risk area.
Best interest
- Authors:
- JUMPCUTS, BIGGERHOUSE, (Producers)
- Publisher:
- JUMPcuts
- Publication year:
- 2009
- Pagination:
- (17 mins.), DVD
- Place of publication:
- Bridgwater
This film follows three characters' interweaving stories as they cope with issues arising from learning disability, mental health and dementia. The DVD also features three stories dealing with issues concerned with Least Restrictive Practice. It can be used in staff training to discuss issues raised by the Mental Capacity Act.
Reliance on carer reports of early symptoms of dementia among adults with intellectual disabilities
- Authors:
- JAMIESON-CRAIG Rebekah, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(1), March 2010, pp.34-41.
- Publisher:
- Wiley
This study examined carer-reported symptoms to determine whether carer reports of decline in function would be a better screening method to detect possible cases of dementia than reports of memory decline in older adults with ID. One hundred and fifty four participants from five London boroughs were reassessed along with their carers two to three years after baseline. A questionnaire for carer-reported change in everyday function and the Dementia Questionnaire for Persons with Mental Retardation (DMR) were used to gauge carer views of everyday function and memory. Participants who developed dementia displayed both everyday function and memory decline, where decline in function appeared to be the best indicator of new dementia cases. Retrospective carer report of change in everyday function was shown to be as good as prospective ratings to identify dementia. In those with mild ID, memory change was a better indicator of dementia, while in those with more severe ID decline in everyday function was a better indicator. The authors concluded that decline in everyday function appeared to be a better screening method for dementia than memory decline, particularly for participants with moderate to severe ID.
Assessment of dementia in people with learning disabilities
- Author:
- TORR Jennifer
- Journal article citation:
- Advances in Mental Health and Learning Disabilities, 3(3), September 2009, pp.3-9.
- Publisher:
- Emerald
Alzheimer’s disease and other dementias are at least as prevalent in older people with learning disabilities as in the general population. In addition, people with Down’s syndrome have high rates of early onset Alzheimer’s disease. Assessment of dementia in people with learning disabilities is made difficult by pre-existing cognitive and functional impairments and high rates of comorbid disorders. This paper discusses the assessment of dementia in people with learning disabilities. The assessment procedure needs to include a comprehensive description of baseline functioning and pattern of decline, rigorous medical work-up and treatment of identified conditions, serial cognitive assessments, and functional and risk assessments to guide care planning.
Screening adults with Down's syndrome for early signs of dementia
- Author:
- MCBRIEN Judith
- Journal article citation:
- Journal of Integrated Care, 17(3), June 2009, pp.3-7.
- Publisher:
- Emerald
This article outlines the case for learning disability teams to provide routine screening of adults with Down's syndrome for early signs of dementia. It is illustrated by reference to practice in one such service where clinical and research developments have gone hand in hand, with tangible benefits to clients, carers and the multi-disciplinary team. Although specifically designed to meet the challenge of the increasing number of people with Down's syndrome who develop dementia, it is applicable to the care of all people with learning disabilities.