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An analysis of key principles in valuing people: implications for supporting people with dementia
- Author:
- FORBAT Liz
- Journal article citation:
- Journal of Intellectual Disabilities, 10(3), September 2006, pp.249-260.
- Publisher:
- Sage
- Place of publication:
- London
This article reports an analysis of practitioner and policy implementers' views on implementing the strategy document Valuing People. It is based on empirical data generated from the first phase of a research project that seeks to develop best practice in supporting people with an intellectual disability and dementia. The analysis focuses on how Valuing People's four key principles (choice, independence, rights and inclusion) were drawn on and talked about spontaneously by participants. Each of these four principles has important implications for the provision of services for people with intellectual disabilities and dementia. This article adds to the growing dialogue on service provision for this group.
Valuing people: hopes and dreams for the future
- Author:
- FORBAT Liz
- Journal article citation:
- British Journal of Learning Disabilities, 34(1), March 2006, pp.20-27.
- Publisher:
- Wiley
This paper outlines the views of key policy makers, implementers and practitioners on Valuing People (Department of Health, Valuing people. A new strategy for learning disability for the 21st century, The Stationary Office, London, 2001). It reports a series of interviews conducted in 2003/2004 with a diverse selection of people involved in English policy construction and implementation around the support needs of people with a learning disability and/or around older people and dementia. Interviewees talked about what they perceived to be the strengths and weaknesses of policies for this client group, which led to thinking particularly about the gaps in provision for people with a learning disability as they age. The findings discussed here introduce interviewees' reported hopes and dreams for social policy in 10 years' time. Themes included training, the rights of carers, daytime activities, family respite, flexible finance packages and housing. The interviewees highlighted satisfaction and dissatisfaction in the connections between policy and practice. Areas for policy development and, crucially, ways of improving provision to people with a learning disability who develop dementia are highlighted.
Who carers? Contextual layers in end-of-life care for people with intellectual disability and dementia
- Author:
- FORBAT Liz
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(3), August 2005, pp.413-431.
- Publisher:
- Sage
The complexity of the relationship between intellectual disability (ID) and dementia is increasingly acknowledged. In order to operationalize a route towards person-centred care, the authors introduce the hierarchy model (Pearce, 1999) as a tool to focus the attention of policy and practice on all aspects of caregiving. This tool, which is taken from the family therapy literature, enables practitioners to examine the broad systems that impact on the delivery and receipt of care. This article focuses on its utility in scrutinizing end-of-life and later stages of dementia by illustrating its use with three key areas in dementia care. These three areas provide some of the most challenging situations at the end stages, because of the possible treatment options, they are: nutrition, medical interventions, and the location of care provision. This model enables a focused approach to understanding how meaning is created within social interaction. The article draws out implications for practice and policy and has applications for practice internationally.