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Today and tomorrow: the report of the Growing Older with Learning Disabilities programme
- Author:
- THE FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Mental Health Foundation
- Publication year:
- 2002
- Pagination:
- 131p.
- Place of publication:
- London
Reports the findings and lessons from the Growing Older with Learning Disabilities (GOLD) programme. This UK-wide initiative aims to increase understanding of the concerns of older people with learning disabilities and older family carers and how services can help them realise their aspirations. Reporting the results of externally funded and in-house projects, spanning service development and research, the book focuses on inclusion, health, older family carers, where people are living, dementia and Down’s syndrome and terminal illness. The report includes a charter of rights for older people with learning disabilities and for older family carers. It also underlines the need for service providers to think today about how they will meet people’s age-related changing needs and support them, as they grow older, using person-centred planning.The report concludes with a series of recommendations for policy makers and planners, commissioners and providers.
Keeping it in the family: caregiving in Australian-Greek families
- Authors:
- MORSE Carol A., MESSERMERI-KIANIDIS Voula
- Journal article citation:
- Social Work in Health Care, 34(3/4), 2001, pp.299-314.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Family-based caregiving refers to the daily provision of help to a co-resident family relative with the usual activities of daily living, custody and protection of a dependent relative at risk of self-injury, and support of a person with physical, developmental and/or mental disability or frailty due to ageing. Many reports from western studies refer to the caregiving burdens, stress and strains. A common view of migrant peoples is that they 'look after their own' to a greater extent than do English-speaking groups. A study was carried out with 300 Australian-Greek families in Melbourne where 150 were providing family-based caregiving, and these were age and gender matched with friends or acquaintances who had no such duties. Most care was provided by women. A wide range of disabilities and illnesses were receiving help and care in the caregiving families among care recipients aged from childhood to advanced old age. Distinct evidence of caregiving burden was found to a significant degree. Gender differences were apparent in the type of disorders managed, in the perceived severity of caregiving duties provided and in the total range of activities engaged in. The ethno-specific community organisations and extended family networks played little part in providing assistance to caregivers which challenges the myths of a close-knit migrant community looking after its own.
Prevalence and correlates of behavioral and psychiatric symptoms in community-dwelling elders with dementia or mild cognitive impairment: the Memory and Medical Care Study
- Authors:
- CHAN Ding-Cheng, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(2), February 2003, pp.174-182.
- Publisher:
- Wiley
Little is known about the prevalence and correlates of behavioral and psychiatric symptoms of dementia in community-dwelling elders with dementia or mild cognitive impairment (MCI). Compared to dementia subjects, those classified as MCI had a lower prevalence of any symptoms (psychosis, depression, or agitation), and of agitation. Symptoms of psychosis and depression also were less prevalent, even though differences did not reach statistical significance. In the dementia group symptoms were associated with a report of a physician's diagnosis of dementia, greater functional impairment, and a knowledgeable informants (KI) who was a child/child-in-law. In those with MCI, symptoms were correlated with being white, greater functional impairment, and a younger, less educated, KI. Psychiatric and behavioral symptoms were common in community-residing elders with cognitive impairment, but their prevalence and correlates differed by study classification as having dementia or MCI. Identifying and treating these symptoms may benefit patients with cognitive impairment and their families.
Creating successful dementia care settings: volume four; enhancing identity and sense of home
- Authors:
- MARSDEN John, et al
- Publisher:
- Health Professions Press
- Publication year:
- 2001
- Pagination:
- 183p.,bibliog.
- Place of publication:
- Baltimore, MD
Examines the critical features of formal care settings that either support people with dementia or create unmanageable barriers to their ability to function successfully. This volume explains how a home- like setting contributes to the smooth operation of a facility for people with dementia.