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Caring for older people in the community
- Editors:
- HUDSON Angela, MOORE Lesley, (eds.)
- Publisher:
- Wiley-Blackwell
- Publication year:
- 2009
- Pagination:
- 245p.
- Place of publication:
- Chichester
This book is a compilation from 9 academics and practitioners, including the two editors. The first section (Chapters 1-3) discusses the past and current influences on physical, psychological and social ‘nursing’ practices and ethical tensions, when working with older people. Topics covered in the second section (chapters 4-6) with regard to contemporary challenges with older people who may have learning disabilities and dementia as well as experiencing ageing are, health education, sexual health, substance misuse, and the role of assistive technology. Examples of lived scenarios from service users and reflections from professionals are included. Current issues of kinship care for older people, ethics, palliative care and end of life decision making, complementary therapies, vulnerability, citizenship, informed consent, advocacy, empowerment, personalisation and a person centre approach are also mentioned. The third section from the joint editors, is on future challenges and covers: community hospitals, bringing diagnostic technology and chemotherapy interventions closer to cancer patients, the national panel for information and communications technology, ‘whole system demonstrators’, moving towards seamless care, and partnership with older people projects.
Viability of a dementia advocacy effort for adults with intellectual disability: using a national task group approach
- Authors:
- JANICKI Matthew P., KELLER Seth M.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 11(3), 2014, pp.176-191.
- Publisher:
- Wiley
The World Health Organization's report, Dementia: A Public Health Priority, noted that the number of people worldwide affected by dementia is significant and will continue to increase. The report called on nations to address dementia by developing national plans and undertaking public health initiatives. Special mention was made of the situation of people with intellectual disability, some of who manifest high risk for dementias. In the United States, the National Task Group on Intellectual Disabilities and Dementia Practices (the “NTG”) was created to ensure that the needs and interests of adults with intellectual and developmental disability who are affected by Alzheimer's disease and related dementias—as well as their families and friends—are taken into account as part of general-population dementia health and public policy efforts, particularly as noted in the U.S. National Plan to Address Alzheimer's Disease. To this end, the NTG's multifaceted advocacy efforts have included (1) identifying best practices for providing care and services to affected adults with intellectual disability; (2) developing and identifying a functional workable administrative dementia early detection and screening instrument; (3) producing educational materials useful to families, adults with intellectual disability, and nongovernmental organisations; and (4) furthering public policy initiatives on dementia as they affect adults with intellectual disability. This article describes the origins of this group, its functions and accomplishments, as well its role with respect to national dementia advocacy, as a prototype for other national efforts that can be used to promote the interests of adults with intellectual disability affected by dementia and improve the quality of their lives. Suggested are means for replication of such an effort in other national environments. (Edited publisher abstract)
Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia
- Authors:
- JOKINEN Nancy, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 10(1), 2013, pp.1-224.
- Publisher:
- Wiley
To assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted a set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death. This article provides an overview of the guidelines, which are drawn from the research literature as well as clinical experiences and demonstrated best practices. To enable the development of the most appropriate and useful services and care management for adults with intellectual disabilities affected by dementia, the NTG adopted the staging model. The staging model follows the flow from a prediagnosis stage when early recognition of symptoms associated with cognitive decline are recognized through to early, mid, and late stages of dementia, and characterizes the expected changes in behaviour and function. The guidelines cite the application of the NTG-Early Detection Screen for Dementia as a first step in documenting early signs of cognitive and functional changes among people with intellectual disabilities. The guidelines also provide information on nonpharmacological options for providing community care for persons affected by dementia as well as commentary on abuse, financial, managing choice and liability, medication, and nutritional issues. (Edited publisher abstract)
Down syndrome health screening: the Fife model
- Authors:
- JONES Jill, et al
- Journal article citation:
- British Journal of Learning Disabilities, 38(1), March 2010, pp.5-9.
- Publisher:
- Wiley
People with Down syndrome have a greater risk of developing a range of health problems, including cardiac problems, thyroid disorders, sensory impairments, reduced muscle tone (hypotonia) and Alzheimer's disease. Despite this increased risk, regular screening is not typically offered to individuals with Down syndrome. A multidisciplinary health screening clinic was set up by a Community Learning Disability Team in Fife to offer regular health screening to people with Down syndrome. The format of the clinic, outcomes after 18 months and future service developments are discussed.
Mental health, incapacity and the law in Scotland
- Author:
- PATRICK Hilary
- Publisher:
- Tottel
- Publication year:
- 2006
- Pagination:
- 1022p.
- Place of publication:
- Haywards Heath
This is a guide to mental health law in Scotland, including the changes brought about by the Mental Health (Care and Treatment) (Scotland) Act 2003 and the Adults with Incapacity (Scotland) Act 2000. Mental health and incapacity law affect not just those subject to compulsory orders, but everyone with a mental health problem, dementia or a learning disability.This guide covers every aspect of mental health law, including tribunal procedure, procedures for adults with incapacity, community care, patients’ rights and legal remedies for when things go wrong.
Audit of the use of psychotropic medication for challenging behaviour in a community learning disability service
- Author:
- MARSHALL Tom
- Journal article citation:
- Psychiatric Bulletin, 28(12), December 2004, pp.447-450.
- Publisher:
- Royal College of Psychiatrists
The aims of the study were to identify patients in a community learning disability service receiving psychotropic medication for challenging behaviour, to examine prescribing practice and to compare this against local consensus standards. Local consensus standards were agreed by the consultants and the notes were reviewed by the author. A total of 102 patients were identified as receiving psychotropic medication for challenging behaviour (26.7% of notes examined). The most common additional diagnoses were autism (29%) and epilepsy (28%). The average duration of treatment was 5.3 years, and multiple drugs were used in 34% of these patients. Antipsychotics were the most commonly used drugs (96% of patients). There was rarely a detailed description of the challenging behaviour. There was little regular monitoring of side-effects or warning about potential side-effects when the medication was started. Challenging behaviour is a common cause of multiple prescribing in learning disability patients, and is often long-term in the absence of a strong evidence base. Other specialties use medication to control disturbed behaviour, particularly in people with dementia or personality disorder, so this audit may also be of interest to old age, adult and forensic psychiatrists.
Community care statistics: social services activity, England: 2014-15
- Author:
- HEALTH AND SOCIAL CARE INFORMATION CENTRE
- Publisher:
- Health and Social Care Information Centre
- Publication year:
- 2015
- Pagination:
- 77
- Place of publication:
- Leeds
This report covers the social care activity of Councils with Adult Social Services Responsibilities CASSRs in England, including people who pay entirely for their own care, for the period 1st April 2014 to 31st March 2015, and for people receiving services at 31st March 2015 . Data is taken from the Short and Long Term return (SALT) which tracks customer journeys through the social care system, replacing both the Referrals, Assessments and Packages of Care (RAP) return and the Adult Social Care Combined Activity Return (ASC-CAR). Statistics are provided for short term support, long term support and support for carers. Statistics also cover the primary reason for support: physical support, sensory support, support with memory and cognition, learning disability support, mental health support, social support and reported health conditions. (Publisher abstract)
User participation in health and social care research: voices, values and evaluation
- Editors:
- NOLAN Mike, et al, (eds.)
- Publisher:
- Open University Press
- Publication year:
- 2007
- Pagination:
- 232p., bibliog.
- Place of publication:
- Maidenhead
User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice.
How does the community care?: public attitudes to community care in Scotland
- Authors:
- CURTICE Lisa, PETCH Alison
- Publisher:
- Scotland. Scottish Executive. Social Research
- Publication year:
- 2002
- Pagination:
- 49p.
- Place of publication:
- Edinburgh
As part of the 2001 Scottish Social Attitudes Survey, the Scottish Executive funded a module of 40 questions on the attitudes of people in Scotland to a range of community care issues. Interviews were completed with 1605 individuals across Scotland. Three quarters of respondents felt comfortable about living next door to a frail older person and more than half about living next door to a person with a learning disability. Less than half, however, felt comfortable about living next door to a person with mental illness or with dementia. Respondents were strongly in favour of individuals with support needs living in the community rather than in care homes or hospitals. This view was most common for a person with a learning disability and least common (but still the majority) for a person with dementia. Most people interviewed thought that a person with a mental illness or a learning disability should not serve on a jury. Support needs, it was felt, should in the main be met by paid workers. The exception was for the person with a learning disability needing to be accompanied to a club where the potential contribution of family members and volunteers was cited. A substantial majority considered the funding of support to be the responsibility of the government. Respondents with personal experience of care were even more likely than others to take this view. There was strong support for individuals remaining within their own homes when this was their wish, even when this was a more expensive option. Only a fifth of respondents thought that those able to pay should be able to access better quality provision, suggesting strong support for equity. Respondents expressed a willingness to pay higher taxes to generate funds for increased expenditure on health, support for older people and pensions. The top priorities for additional government spending on older people were home helps, special housing provision, and district nurses.
The patchwork quilt
- Author:
- LINDSAY Meg
- Journal article citation:
- Community Care, 26.5.94, 1994, p.20.
- Publisher:
- Reed Business Information
Respite care is often made from bits and pieces from services which are meant to be integrated, but not at the top of many agendas. This means that respite care uses borrowed funding and secondhand policies and practices. A survey in Scotland examined four types of respite care: hospital, residential, family-based, and domiciliary for seven main groups: older people, people with dementia, those with mental health problems, and children and adults with learning and physical disabilities, to find out the reality for carers. Also explores the possibilities for improving services for them.