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Dementia care in England and the social model of disability
- Authors:
- GILLIARD Jane, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(4), November 2005, pp.571-586.
- Publisher:
- Sage
This article reviews the development of a social model of disability and considers whether or not it provides a helpful framework for dementia care. The social model has not yet fully included cognitive impairment, although considerable work has been carried out with regard to learning disability. By applying this model to dementia care, those who surround people with dementia can review the impact that they as 'non-demented' people have on others; can reconsider the value of hearing and responding to personal experiences; can reframe the focus to consider abilities instead of losses; and can better understand the impact of public policy. The article also considers the present shortcomings of a disability model in terms of how it relates to dementia care and concludes with some thoughts for future consideration. The article draws heavily on the findings of a research project conducted by Dementia Voice and the University of the West of England, Bristol, UK to consider the needs of two sub-groups of people with dementia - younger people (i.e. those under the age of 65) and those from minority ethnic groups.
Spotlight on dementia and equalities
- Authors:
- ALZHEIMER SCOTLAND, THE LINES BETWEEN
- Publisher:
- The Lines Between
- Publication year:
- 2018
- Pagination:
- 46
- Place of publication:
- Edinburgh
Captures discussions from five workshops which brought together practitioners, people living with dementia and their carers to explore the inequalities that exist for people living with dementia and what could be done to address them. The workshops focused on five areas: younger onset dementia (under the age of 65 years); lesbian, gay, bisexual and transgender (LGBT); learning disabilities; race and ethnicity; and sensory impairment. For each area, the report provides a mapping of discussions on what needs to change, challenges identified, and the small changes that could make a difference. Although the workshops covered the five topics separately, they shared common themes which were: the importance of dementia awareness; the damage of negative public attitudes towards dementia; the assessment and diagnostic process; the importance of partnership and collaborative working; improved communication and information sharing; and the impact of reduced resources and finance. The report is one of Alzheimer Scotland’s Spotlight Series. (Edited publisher abstract)
'They don't quite fit the way we organise our services': results from a UK field study of marginalised groups and dementia care
- Authors:
- BEATTIE Angela, et al
- Journal article citation:
- Disability and Society, 20(1), January 2005, pp.67-80.
- Publisher:
- Taylor and Francis
The accessibility of dementia services to two groups of marginalised service users (people under 65 years of age and people from minority ethnic groups) was examined as part of a UK field study. In 61 interviews with a purposeful sample of professionals and paid carers in dementia care, the main issue in service access related to the small numbers of potential service users and their geographical dispersal. Other issues reflected those faced by people with dementia in general. At present, it seems as though decisions on care are based mainly on financial considerations and perceptions of the risk and dangerousness posed by people with dementia. These findings are linked to broader debates within the social model of disability about the need to address issues relating to people with learning impairments.
Reminiscence and recall: a guide to good practice
- Author:
- GIBSON Faith
- Publisher:
- Age Concern
- Publication year:
- 1998
- Pagination:
- 207p.,list of orgs.,bibliog.
- Place of publication:
- London
- Edition:
- 2nd
Contains detailed advice on planning and running successful reminiscence work. Looks at: working with people with dementia; methods of creative communication; European reminiscence development; why reminiscence work can be valuable; suggestions for themes and topics; planning and running a reminiscence group; working with individuals; using sight, sound, touch, taste and smell to trigger memories; life history work between generations; reminiscence with ethnic minority elders; work with people with hearing, sight and speech disabilities; reminiscence with people who are depressessed; and reminiscence with people with learning difficulties.
A different ending: addressing inequalities in end of life care: overview report
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2016
- Pagination:
- 41
- Place of publication:
- Newcastle upon Tyne
This report provides the background to the Care Quality Commission thematic review of how dying patients are treated across various settings, an overview of the key findings and recommendations for providers, commissioners and local health and care system leaders, as well as information on what CQC will do going forward. The review focused on end of life care for people who may be less likely to receive good care, whether because of diagnosis, age, ethnic background, sexual orientation, gender identity, disability or social circumstances. The report shows that where commissioners and services are taking an equality-led approach that responds to people’s individual needs, people receive better care. Although some commissioners and providers of end of life care are doing this well, many are not. People from the groups included in the review reported mixed experiences of end of life care, and highlighted barriers that sometimes prevented them from experiencing good, personalised end of life care. In particular, the review found that lack of awareness of people’s individual needs is a significant barrier to good care and that commissioners and providers do not always consider the needs of everyone in their community. (Edited publisher abstract)
Experiences of community care: case studies of UK practice
- Authors:
- LYNCH Bruce, PERRY Richard
- Publisher:
- Longman
- Publication year:
- 1992
- Pagination:
- 318p.,bibliog.
- Place of publication:
- Harlow
Illustrates the range of initiatives in community care and provides advice on how to foster, facilitate and encourage work at a local level. Looks at translating ideas into practice, staffing, training, supervision and support, users of community care projects, funding and resources, and inter-agency work.
Mental health: a client support resource pack
- Authors:
- SUTTON Carole, HERBERT Martin
- Publisher:
- NFER Nelson
- Publication year:
- 1992
- Pagination:
- 1v.,looseleaf,bibliogs.
- Place of publication:
- Windsor
Resource pack devised to help both those who are experiencing or recovering from mental distress and all those who care for them, including professionals, para professionals and non professionals. Contains sections on: mental illness in context; working with people with a mental illness and their carers; working with people experiencing particular difficulties (including anxiety, phobias, depressive disorders, attempted suicide, schizophrenia, dementia, and problems related to substance abuse); working with special groups (including black people, older people and people with learning disabilities); and support for workers. Also contains appendices on: Mental Health Act 1983; psychotropic drugs; relaxation techniques; and key features of schizophrenia. Includes checklists for helping people with specific difficulties.
Rights, needs and the user perspective: a review of the National Health Service and Community Care Act 1990
- Editors:
- BALLOCH Sue, et al
- Publisher:
- National Institute for Social Work
- Publication year:
- 1999
- Pagination:
- 105p.,bibliogs.
- Place of publication:
- London
Review looking at the diverse and sometimes contradictory perspectives and experiences of a wide range of stakeholders in community care services. Aims to record what they think has really been taking place. Contains chapters on: key issues; identifying need; users' perspectives; the perspective of black communities; older people; older people with dementia and their carers; people with learning difficulties; rationing, charging and costs; housing and community care; community care and substance misuse; and social services departments and their staff.