Search results for ‘Subject term:"learning disabilities"’ Sort:
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Use of dementia care mapping in the care for older people with intellectual disabilities: a mixed‐method study
- Authors:
- SCHAAP Feija D., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 34(1), 2021, pp.149-163.
- Publisher:
- Wiley
Background: The ageing of people with intellectual disabilities, with associated morbidity like dementia, calls for new types of care. Person‐centred methods may support care staff in providing this, an example being Dementia Care Mapping (DCM). DCM has been shown to be feasible in ID‐care. We examined the experiences of ID‐professionals in using DCM. Methods: We performed a mixed‐methods study, using quantitative data from care staff (N = 136) and qualitative data (focus‐groups, individual interviews) from care staff, group home managers and DCM‐in‐intellectual disabilities mappers (N = 53). Results: DCM provided new insights into the behaviours of clients, enabled professional reflection and gave new knowledge and skills regarding dementia and person‐centred care. Appreciation of DCM further increased after the second cycle of application. Conclusion: DCM is perceived as valuable in ID‐care. Further assessment is needed of its effectiveness in ID‐care with respect to quality of care, staff‐client interactions and job performance. (Edited publisher abstract)
A person‐centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia – a participatory action study
- Authors:
- WATCHMAN Karen, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 34(1), 2021, pp.164-177.
- Publisher:
- Wiley
Background: Numbers of people with an intellectual disability and dementia present a global health and social challenge with associated need to reduce stress or agitation and improve quality of life in affected individuals. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use of photovoice methodology to develop dialogue about dementia. Methods: This mixed‐method participatory action study used individualised goal‐setting theory with 16 participants with intellectual disability and dementia, and 22 social care staff across 11 sites. Five co‐researchers with intellectual disability were part of an inclusive research team collecting data using existing and bespoke tools including photovoice. Analysis used descriptive and inferential statistics and framework analysis. Results: Seventy four percentage of individual goals met or exceeded expectations with reduction in some “as required” medication. Qualitative findings include themes of enabling care and interventions as tools for practice. Photovoice provided insight into previously unreported fears about dementia. Conclusions: Individualized psychosocial interventions have potential to reduce distress or agitation. (Edited publisher abstract)
The use of therapeutic untruths by staff supporting people with an intellectual disability who display behaviours that challenge
- Authors:
- MCKENZIE Karen, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 34(1), 2021, pp.28-35.
- Publisher:
- Wiley
Background: Therapeutic untruths (TU) are used in dementia services to de‐escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7) via an online survey in relation to three areas: responses to three scenarios, reported use of different forms of TU and ratings of perceived effectiveness of, and level of comfort using, each type. Results: 96% of participants reported using TU themselves and observing their colleagues doing likewise. Models that included perceived effectiveness of, and level of staff comfort with using, different TU were significant, although only perceived effectiveness significantly independently contributed to the model. Conclusion: The use of TU was common, with levels consistent with those found in dementia services. The limitations and implications of the findings are discussed. (Edited publisher abstract)
Wellbeing for life: changed behaviour
- Author:
- MACINTYRE
- Publisher:
- MacIntyre
- Publication year:
- 2018
- Pagination:
- 20
- Place of publication:
- Milton Keynes
A short publication providing information the behaviour changes someone may see in relation to supporting a person with learning disabilities who is living with dementia. It covers common changed behaviours as dementia progresses, understanding that all behaviours are a form of communication, ways to support a person to understand their behaviour and of supporting staff within the workplace. It is part of the Wellbeing for Life toolkit created for the MacIntyre Dementia project in order to promote understanding about getting older with a learning disability and living well with dementia. (Edited publisher abstract)
Wellbeing for life: dementia and learning disabilities
- Author:
- MACINTYRE
- Publisher:
- MacIntyre
- Publication year:
- 2018
- Pagination:
- 24
- Place of publication:
- Milton Keynes
A short publication providing information on dementia and learning disabilities. It provides key facts and statistics relating to dementia; facts and statistics about ageing with a learning disability; and information on the links between learning disability and dementia; and specifically between Down’s Syndrome and Alzheimer’s Disease. It is part of the Wellbeing for Life toolkit created for the MacIntyre Dementia project in order to promote understanding about getting older with a learning disability and living well with dementia. (Edited publisher abstract)
Wellbeing for life: getting a timely diagnosis
- Author:
- MACINTYRE
- Publisher:
- MacIntyre
- Publication year:
- 2018
- Pagination:
- 32
- Place of publication:
- Milton Keynes
A short publication providing information on getting a timely diagnosis of dementia for people with learning disabilities. It covers understanding what Timely Diagnosis means, knowing how to prepare for the assessment process; being familiar with the dementia diagnosis pathway and your role in supporting the person; advocating for the person when the outcome of assessment(s) is known; and understanding the importance of baseline screening and monitoring to facilitate Timely Diagnosis in the future. It is part of the Wellbeing for Life toolkit created for the MacIntyre Dementia project in order to promote understanding about getting older with a learning disability and living well with dementia. (Edited publisher abstract)
How social care staff can support people with learning disabilities and dementia
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
This factsheet provides information on how social care staff can support people with learning disabilities and dementia. It covers recognising signs of dementia, sharing information about what a diagnosis of dementia means, and things social care staff can do. It is the 11th in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
Prevalence of dementia in intellectual disability using different diagnostic criteria
- Authors:
- STRYDOM A., et al
- Journal article citation:
- British Journal of Psychiatry, 191(8), August 2007, pp.150-157.
- Publisher:
- Cambridge University Press
Diagnosis of dementia is complex in adults with intellectual disability owing to their pre-existing deficits and different presentation. The aim was to describe the clinical features and prevalence of dementia and its subtypes, and to compare the concurrent validity of dementia criteria in older adults with intellectual disability. The Becoming Older with Learning Disability (BOLD) memory study is a two-stage epidemiological survey of adults with intellectual disability without Down syndrome aged 60 years and older, with comprehensive assessment of people who screen positive. Dementia was diagnosed according to ICD–10, DSM–IV and DC–LD criteria. The DSM–IV dementia criteria were more inclusive. Diagnosis using ICD–10 excluded people with even moderate dementia. Clinical subtypes of dementia can be recognised in adults with intellectual disability. Alzheimer’s dementia was the most common, with a prevalence of 8.6% (95% CI 5.2–13.0), almost three times greater than expected. Dementia is common in older adults with intellectual disability, but prevalence differs according to the diagnostic criteria used. This has implications for clinical practice.
Responding to the pain experiences of older people with a learning disability and dementia
- Authors:
- KERR Diana, CUNNINGHAM Colm, WILKINSON Heather
- Publisher:
- Joseph Rowntree Charitable Trust
- Publication year:
- 2006
- Pagination:
- 81p.
- Place of publication:
- York
This report explores the pain management needs of people with a learning difficulty who have dementia. People with a learning difficulty are living longer. This increased longevity brings with it the conditions and illnesses of older age, such as dementia. It is known that amongst people in the general population who have dementia there is inadequate pain recognition and treatment. This report has identified similar trends in pain management amongst people with a learning difficulty and dementia. The report explores knowledge and practice in relation to pain recognition and management amongst direct support staff, members of community learning disability teams and general practitioners. It also examines the understanding and experiences of pain amongst people with a learning difficulty and dementia. It identifies the dilemmas and obstacles to effective pain management, and reports on examples of good practice. The authors make clear recommendations for practitioners and service providers. The report found that the pain experiences and management of people with a learning difficulty who have dementia mirrored findings in relation to people in the general population. It did, however, identify extra and compounding issues in relation to people with a learning difficulty. The findings in this report will be of interest to service providers and direct practitioners in health, housing, social care and social work.
Decision-making and mental incapacity: practice issues for professionals
- Author:
- PENHALE Bridget
- Journal article citation:
- Practice: Social Work in Action, 5(3), 1991, pp.186-193.
- Publisher:
- Taylor and Francis
Distinguishes between permanently incapable people and those who have become incapacitated and discusses the conflict between "best interests" and "substituted judgment" and the application of these approaches.