Search results for ‘Subject term:"learning disabilities"’ Sort:
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Choice as an aspect of quality of life for people with intellectual disabilities
- Authors:
- BROWN Ivan, BROWN Roy I.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(1), March 2009, pp.11-18.
- Publisher:
- Wiley
Drawing on conceptual considerations and research reports, the authors review and extend what is known about choice, and set out a conceptualization of its two main components: available opportunities and choice-making. The most important characteristics of opportunities are breadth and familiarity, and the most important characteristics of choice making are freedom, initiative, and skill. The authors consider the application of choice to supports and services by discussing numerous practical issues and providing suggestions for application. These are summarized as an overall four-step strategy for moving forward that sets the scene for more specific strategies to be developed and evaluated.
Do service users with intellectual disabilities want to be involved in the risk management process? A thematic analysis
- Authors:
- KILCOMMONS Aoiffe M., WITHERS Paul, MORENO-LOPEZ Águeda
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(5), September 2012, pp.433-444.
- Publisher:
- Wiley
Giving people with intellectual disabilities (ID) the right to make choices requires consideration of their ability to assess the implications and associated risks. People with ID are more likely to find it difficult to identify and assess risk adequately, and may also have had less opportunity to learn from past experiences. The aim of this study was to investigate ID service users’ awareness and understanding of risk management (RM). The participants were 13 people in a residential ID service who were reviewed under the RM process. Thematic analysis explored participants’ knowledge and understanding of risk management to establish their ability to make informed choice. Two main meta-themes (lack of awareness about RM, and awareness about RM) and 4 meta-themes (extent of RM awareness, locus of control, compliance, and empowerment) emerged. Nine participants demonstrated some knowledge and awareness of RM and wanted to contribute to the RM process. The findings indicate that the majority of the service users in this sample had some awareness of the purpose of RM and could make partially informed decisions about whether they would like to be involved in the RM process. The findings highlight the need for professionals to actively attempt to involve ID service users in the management of their own risk.
The impact of Irish policy and legislation on how adults with learning disabilities make choices
- Authors:
- CAREY Eileen, GRIFFITHS Colin
- Journal article citation:
- British Journal of Learning Disabilities, 44(2), 2016, pp.111-121.
- Publisher:
- Wiley
This paper reflects the impact of policy and legislation in the context of how adults with learning disabilities make choices. Following an overview of policies which have improved choice for people with learning disability in the United Kingdom, this paper reviews ‘choice’ in current Irish policy and legislation. This paper, while making comparisons with capacity legislation in the United Kingdom, presents a discussion on the perceived impact of the Assisted Decision-Making (Capacity) Bill (2013) based on submissions from the Citizens Information Board (2013a), Mental Health Reform (2014), and Quinn (2013). Further choice making challenges such as direct payments and information sharing which confront adults with learning disabilities are highlighted and overall conclusions are drawn. (Publisher abstract)
Contraceptive choices for women with learning disabilities
- Authors:
- EARLE Sarah, et al
- Publisher:
- Open University. Faculty of Health and Social Care
- Publication year:
- 2015
- Pagination:
- 66
- Place of publication:
- Milton Keynes
This report presents key findings from interviews undertaken with 19 women with learning disabilities about their experiences of contraceptive decision-making. The stories were gathered by an inclusive team of female researchers from the Open University who interviewed women across a range of UK settings.The research looked specifically at why women believe they are receiving contraceptive care, how have women made decisions about what sort of contraception would be useful to them, whether they feel supported to make contraceptive decisions, and the type of support the women have received to understand contraceptive care and its implications. The research found that women’s experiences of contraceptive decision-making vary hugely, as do levels of experience, knowledge and understanding. One key finding reported was that women appreciate staff who will listen carefully to concerns about contraception and relationships and support then to access the best contraception care. Other key findings include that: a few women make very independent choices about sex and contraception and others are supported to make contraceptive choices by family, friends, advocates and health and social care professionals; women are sometimes on contraception because they are not trusted or believed, or because they are thought to be ‘at risk’ of pregnancy and abuse; some women do not receive suitable information or advice to make informed choices and decisions; and some women reported having been forced to use contraception when it was not needed. Drawing on the research finding, the report sets out implications for policy, practice and future research to help support women with learning disabilities to make appropriate contraceptive choices. (Edited publisher abstract)
Enabling self-determination for older workers with intellectual disabilities in supported employment in Australia
- Authors:
- MCDERMOTT Shannon, EDWARDS Robyn
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(5), September 2012, pp.423-432.
- Publisher:
- Wiley
Promoting self-determination for people with disability is recognised to be an essential element of disability service provision. The aim of this qualitative study was to understand the extent to which older people with intellectual disability working in supported employment can make self-determined choices about retirement. The study aimed to explore the views of older people with disability and service providers to understand the elements that impact on people’s decision to retire. A total of 76 people participated in semi-structured interviews, including 33 older people with intellectual disability working in supported employment, 10 people who had retired and 30 service providers. The findings showed that service providers strongly supported the right of people to retire. However, people with disability almost never reported the ability to make self-determined choices about retirement. Barriers to self-determination included an association between retirement, poor health and meaningless activities, which was perpetuated through structural service gaps. To address this requires more flexible services, better information about retirement, exposure to real experiences and assistance to express preferences and participate in problem solving throughout the lifespan.
The history of self-advocacy in Wales
- Authors:
- BOXALL Yvon, KUROWSKI Katrina
- Journal article citation:
- Llais, 100, Autumn 2011, pp.30-33.
- Publisher:
- Learning Disability Wales
People with learning disabilities often have little chance to express their basic rights. Self-advocacy has made people more aware of equality and the right to community life. Since the early days of the All Wales Strategy (AWS), most self-advocacy was being developed through day services, and was supported by day service staff. Self-advocacy groups focused on people speaking up for themselves to make choices or decisions. This article charts the development of self-advocacy since the launch of the AWS. It describes recent developments such as Individual Planning which was used as to promote the idea that people need to be at the centre of any decisions that affect their lives and lifestyle, and Participation which was also used as a building block in the early days. The article then discusses the development of People First in Wales and how it has contributed to ‘choice and control’, ‘community’ and ‘change’.
Living and dying with dignity
- Authors:
- FRIENDLY RESOURCE COMPANY, (Producer)
- Publisher:
- Friendly Resource Company
- Publication year:
- 2011
- Pagination:
- DVD
- Place of publication:
- Rotherham
This DVD presents the case of John, who has difficulties communicating, and who has a terminal illness. It looks at his time in and out of hospital, and the eventual decision for John to stay in his own home with support. It talks about the choices people have in end of life care and encourages people to talk about them to someone they trust. The DVD shows what happened and how the people supporting John were able to make this happen. This resource can be used when supporting people with learning disabilities, families, carers or when carrying out groupwork with people with learning disabilities. The DVD was produced by a team of people with learning disabilities working in partnership with professional film makers and specialist End of Life Care nurses.
Brief guide to the Mental Capacity Act 2005: implications for people with learning disabilities
- Authors:
- HARDIE Elaine, BROOKS Liz
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2009
- Pagination:
- 43
- Place of publication:
- Kidderminster
This guide is for those who work with people who have a learning disability and will also be of use to parents and carers, friends and advocates. It aims to: explain the key points of the Mental Capacity Act 2005; explain what some of the choices and decisions might be; help carers support someone with a learning disability to plan ahead and talk about their future. Case studies are used to demonstrate key points of the act and how it might be applied in real life situations. (Edited publisher abstract)
Choice and opportunity on the welfare care market: an experimental evaluation of decision-making in a context of individual funding policy
- Authors:
- DURSIN Wouter, et al
- Journal article citation:
- Social Policy and Administration, 55(7), 2021, pp.1276-1292.
- Publisher:
- Wiley
Individual funding schemes are increasingly implemented to organize public welfare services and can be considered as a prime example of the marketization of social care. Clients receive a budget and can “shop” on the welfare market. Current knowledge about the impact of individual funding schemes on choice opportunities for people with an intellectual disability is inconclusive. This study conducted a vignette experiment in the context of the Flemish (Belgian) individual funding scheme for people with a disability, using 610 close relatives of people with an intellectual disability as subjects. The respondents were presented with hypothetical situations in which they had to express their intention to change current care provision into care via personal assistance. This study found that dissatisfaction with services and having a supportive network increases the intention to change care. Professional support from the incumbent provider does not have a significant impact. We conclude that the promise of choice, as assumed with marketized public services, is likely to be fulfilled only under particular conditions. This entails risks in terms of equal opportunities for clients receiving public services in the context of welfare markets. (Edited publisher abstract)
‘We’re giving them choice which is controlled choice’ – care managers’ views on finding social care support for people with learning disabilities
- Authors:
- RICHARDSON Lisa, et al
- Journal article citation:
- British Journal of Social Work, 50(7), 2020, pp.2063-2082.
- Publisher:
- Oxford University Press
Choice and control are pivotal in UK Government policy for achieving personalisation of social care for people with learning disabilities; however, little is known about the role care management plays in supporting people with learning disabilities finding social care services. This article explores that the support care managers provide people with learning disabilities, how care managers source and use information to offer choice in relation to accommodation and support, with a focus on people receiving managed budgets. Qualitative interviews with eight care managers from two local authorities in the South East of England were analysed using thematic network analysis, producing three global themes. The first ‘shaping choice’ describes the role of the care management process and assessments have in determining opportunities for choice. The gathering and interpretation of quality information is explored in the second global theme, highlighting the role of visiting settings to understand their quality. ‘Choice in principle’ is the third global theme, whereby the factors shaping choice come to be seen as choice akin to that anyone else has. These findings have implications for future policy and practice in relation to care management for people with learning disabilities. (Edited publisher abstract)