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Till death us do part
- Author:
- SALE Anabel Unity
- Journal article citation:
- Community Care, 5.8.04, 2004, pp.34-35.
- Publisher:
- Reed Business Information
People with learning difficulties experience the loss and pain of bereavement like everyone else, but with the added difficulty of comprehending death. Looks at examples good practice in addressing the needs of people with learning difficulties.
Coping with death
- Authors:
- SPEAKUP SELF ADVOCACY, BUBBLE MEDIA, (Producers)
- Publisher:
- Speakup Self Advocacy
- Publication year:
- 2004
- Pagination:
- DVD
- Place of publication:
- Rotherham
Death is something that isn't talked about, but happens to us all and to those around us. This short DVD explains what happens when somebody dies and shows adults with learning disabilities how to cope. 'Coping with Death' is not biased to any religion and doesn’t explain religion.
When mum died
- Authors:
- HOLLINS Sheila, SIRELING Lester
- Publisher:
- Gaskell
- Publication year:
- 2004
- Pagination:
- 28p., ill.
- Place of publication:
- London
- Edition:
- 3rd
Includes information on how people are likely to react when someone is very ill and to their death. It explores difficult emotions, possible physical feelings and behaviour changes. Guidance is given on how to relate to a bereaved person and how to answer the questions ‘How do we feel when someone dies?’, ‘What happens after someone dies?’ and ‘How long does it take to get back to normal?’. There is advice for support staff and carers of those with learning disabilities (including how to formulate guidelines and a sample bereavement questionnaire), plus information on useful written resources and bereavement organisations that can offer further help.
When dad died
- Author:
- HOLLINS Sheila
- Publisher:
- Gaskell
- Publication year:
- 2004
- Pagination:
- 40p.
- Place of publication:
- London
- Edition:
- 3rd
The text includes information on how people are likely to react when someone is very ill and to their death. It explores difficult emotions, possible physical feelings and behaviour changes. Guidance is given on how to relate to a bereaved person and how to answer the questions ‘How do we feel when someone dies?’, ‘What happens after someone dies?’ and ‘How long does it take to get back to normal?’. There is advice for support staff and carers of those with learning disabilities (including how to formulate guidelines and a sample bereavement questionnaire), plus information on useful written resources and bereavement organisations that can offer further help. The book will be helpful to adolescents and adults with learning disabilities as well as for their carers and supporters. In addition, children without learning disabilities will appreciate these books as they adopt a more direct approach to death than is usual.
When it comes to dying, what difference does learning disability make?
- Author:
- TODD Stuart
- Journal article citation:
- Llais, 74, Autumn 2004, pp.6-10.
- Publisher:
- Learning Disability Wales
Outlines a research study on the effects of the death of a person with learning disability on staff and parents and the support services did or did not provide.
Mortality of people with learning disability following relocation from long-stay hospital to social care
- Author:
- READ Stephen
- Journal article citation:
- Journal of Learning Disabilities, 8(3), September 2004, pp.299-314.
- Publisher:
- Sage
The article examines the results of an 18 month prospective evaluation of relocation effects on 111 people with learning disabilities discharged from long-stay hospital to social care in the community. One of the results found at the end of this period was a high mortality in this group that the investigators deemed worthy of further examination. A number of health related measures are examined to see if any explanation of these deaths is forthcoming. It is suggested that selection bias could account for the apparent high mortality in this group.
The age of the inquiry: learning and blaming in health and social care
- Authors:
- STANLEY Nicky, MANTHORPE Jill
- Publisher:
- Routledge
- Publication year:
- 2004
- Pagination:
- 294p.,bibliogs.
- Place of publication:
- London
The plethora of inquiry reports published in the fields of health and welfare in the 1990s covered the full range of user groups, individuals and institutions. What similarities or differences were there between these inquiries? How effective were they in bringing about change? Whose interest did they best serve? These are some of the questions the book explores in detail, bringing together distinguished contributors with personal experience of chairing or providing evidence to inquiries to consider: the participant's view of inquiries; the purpose of inquiries; the impact of inquiries on health and social policy;· inquiries into: child abuse and death; homicides by mental health service users; the abuse of adults with learning disabilities; and the abuse of older people.
Positive approaches to palliative care: a workbook to support the palliative care optional units of the Certificates in Working with People who have Learning Disabilities
- Authors:
- JONES Amelia, TUFFREY-WIJNE Irene
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2004
- Pagination:
- 104p.
- Place of publication:
- Kidderminster
Provides practical and sensitive guidance for staff supporting people with learning disabilities who are dying, and for other service users. The workbook covers: Quality of Life, including the importance of palliative care; ways of maintaining somebody’s quality of life; issues facing a service when a person with learning disabilities is terminally ill – including working with family and friends and other health care services; emotional issues for staff; practical ways of supporting someone who is terminally ill, including meeting their physical, emotional, cultural and religious needs and what happens around the person’s death; and the process of bereavement and ways to support someone who is bereaved.