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Deinstitutionalisation and community living: an international perspective
- Author:
- MANSELL Jim
- Journal article citation:
- Housing Care and Support, 8(3), September 2005, pp.26-33.
- Publisher:
- Emerald
This article reviews progress in deinstitutionalisation and community living for people with learning disabilities. The effects of replacing institutional care on residents are summarised and some emerging problems are identified.
Deinstitutionalisation and community living: an international perspective
- Author:
- MANSELL Jim
- Journal article citation:
- Tizard Learning Disability Review, 10(1), February 2005, pp.22-29.
- Publisher:
- Emerald
Reviews progress in deinstitutionalisation and community living for people with learning disabilities, summarising the effects of replacing institutional care on residents and identifying emerging problems.
Developing staffed housing for people with mental handicaps
- Author:
- MANSELL Jim
- Publisher:
- Costello
- Publication year:
- 1987
- Pagination:
- 294p., tables, bibliog.
- Place of publication:
- Tunbridge Wells
Practical guide for staff involved in transition of people from institutional to community care. Based on a staffed housing scheme in Andover, Hampshire.
Active support: enabling and empowering people with intellectual disabilities
- Authors:
- MANSELL Jim, BEADLE-BROWN Julie
- Publisher:
- Jessica Kingsley
- Publication year:
- 2012
- Pagination:
- 240p.
- Place of publication:
- London
Active Support is a proven model of care that enables and empowers people with intellectual disabilities to participate fully in all aspects of their lives. This book provide a comprehensive overview of Active Support and how it can be used in practice, based on the theory and research underpinning the methods involved. It describes how to engage people with intellectual disabilities in meaningful activity as active participants, and looks at the communication style needed to foster positive relationships between carers and the people they are supporting. Highlighting the main issues for those trying to put Active Support into practice, the book explains what is needed on a day-to-day basis to support the implementation, improvement and maintenance of the approach, along with possible solutions for the difficulties they may encounter. Finally, it examines how to integrate Active Support with other person-centred approaches, drawing on examples from various organisations and individual case studies. This book is designed for anyone professionally concerned with the quality of life of people with intellectual disabilities, including psychologists, behaviour specialists, social workers, care managers, occupational therapists and inspectors and regulators of services.
Deinstitutionalization and community living: outcomes and costs: report of a European study: volume 2: main report
- Authors:
- MANSELL Jim, et al
- Publisher:
- University of Kent. Tizard Centre
- Publication year:
- 2007
- Pagination:
- 134p.
- Place of publication:
- Canterbury
This detailed project aimed to bring together the available information on the number of disabled people living in residential institutions in 28 European countries, and to identify successful strategies for replacing institutions with community-based services, paying particular attention to economic issues in the transition. The overall aim of the project was to provide scientific evidence to inform and stimulate policy development in the reallocation of financial resources to best meet the needs of people with disabilities, through a transition from large institutions to a system of community-based services and independent living. The reports includes: the identification and collation of existing national data sources; description of the sequence and process of service development; comparison of the costs of community-based vs. institutional services; identification of transitional costs; and the analysis of political and economic strategies used to manage costs. Major recommendations included the harmonised data set at a European level, the publication of statistics demonstrating progress in each country, and the cost- effectiveness of community versus institutional models of residential care and change over time.
Deinstitutionalization and community living: outcomes and costs: report of a European study: volume 1: executive summary
- Authors:
- MANSELL Jim, et al
- Publisher:
- University of Kent. Tizard Centre
- Publication year:
- 2007
- Pagination:
- 14p.
- Place of publication:
- Canterbury
This project aimed to bring together the available information on the number of disabled people living in residential institutions in 28 European countries, and to identify successful strategies for replacing institutions with community-based services, paying particular attention to economic issues in the transition. The goal was seen as the provision of a flexible range of help and resources which can be assembled and adjusted as needed to enable all people with disabilities to live their lives in the way that they want but with the support and protection that they need. This is characterised by several features: separation of buildings and support; access to the same options as everyone else; choice and control for the disabled person and their representatives. Recommendations included: The European Commission should promote joint work between Member States and Eurostat to define a minimum data set for residential services for people with disabilities. The data set needs to be workable both for countries which still have services largely based in institutions, where the distinction between institutional care and care at home is very clear, and for countries which are in the advanced stages of replacing institutions with community-based services and independent living.
Deinstitutionalisation and community living: position statement of the Comparative Policy and Practice Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities
- Authors:
- MANSELL Jim, BEADLE-BROWN Julie
- Journal article citation:
- Journal of Intellectual Disability Research, 54(2), February 2010, pp.104-112.
- Publisher:
- Wiley
The process of “deinstitutionalisation”; that is the abandonment of large residential institutions and their replacement by small scale services allowing people to live in the community, is well advanced in Scandinavia, the US, Canada, the UK and Australasia. Although here the debate is largely resolved, questions remain about whether newer kinds of supported accommodation replicate institutional features and themselves need reform. In other countries the debate has never really begun because those with intellectual disabilities are mostly cared for by their families. In a third group of countries the dominant form of care remains institutional and how to replace this is at the heart of the debate. The purpose of this position statement by the Comparative Policy and Practice Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities was to set out concisely the evidence for comparing institutional to community services and to draw out implications for policy makers. The UN Convention on the Rights of Persons with Disabilities obliges states to develop community living to replace institutional care. The authors suggest that in addressing this task, policy makers should be aware of the evidence that; community living offers the prospect of an improved lifestyle and quality of life over institutional care for people with intellectual disabilities, that this applies to old and new institutions alike whatever they are called; that community care is no more expensive than institutional care on the basis of comparative need and quality of care; and successful community living requires close attention to the way services are set up and run, especially the quality of staff support.
Deinstitutionalisation and community living: progress, problems and priorities
- Author:
- MANSELL Jim
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 31(2), June 2006, pp.65-76.
- Publisher:
- Taylor and Francis
Deinstitutionalisation of services for people with intellectual disabilities has become a focus of disability policy in many countries. Research for the most part supports this strategy. However, outcomes are not uniformly better for everyone who moves to community living. This paper explores reasons for variability in service quality and highlights important lessons for countries starting to modernise services. The effects of deinstitutionalisation are summarised and emerging problems identified. The changing context of different welfare state models and paradigms in disability and public administration are outlined. The main changes which have impacted on the implementation of deinstitutionalisation include: the rise of market -based approaches to service provision, arrangements for rationing services, the “de-differentiation” of intellectual disability services, and the rise of a rights-based model in disability policy. The paper sets out priorities for the future development of community services. Success is likely to require a renewed focus on demonstrating improvement in the quality of life of people with intellectual disabilities and a change in the role of staff to provide more facilitative, enabling support of individuals, especially those with the most severe or complex disabilities.
Deinstitutionalization and community living: intellectual disability services in Britain, Scandinavia and the USA
- Editors:
- MANSELL Jim, ERICSSON Kent
- Publisher:
- Chapman and Hall
- Publication year:
- 1996
- Pagination:
- 307p.,bibliog.
- Place of publication:
- London
Comparative study reviewing the changes that have taken place over the last 25 years in services to people with learning difficulties, focusing in particular on the development of care in the community. Includes papers on: closing institutions in New York State; issues in community services in Britain; deinstitutionalisation in the Norwegian welfare state; housing for people with learning difficulties; supported living programmes in the USA; the immediate psychological effects of deinstitutionalisation; transition to community services in Norway;and the impact on families of service users.