Search results for ‘Subject term:"learning disabilities"’ Sort:
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The same but different
- Author:
- TURNBULL John
- Journal article citation:
- Nursing Times, 16.8.95, 1995, p.50.
- Publisher:
- Nursing Times
Why do people with learning disabilities often receive inferior health care in the community compared with the rest of the population. Calls for an end to this thoughtless practice.
Opportunities for change: a new direction for nursing people with learning disabilities; a discussion paper
- Author:
- SINES David
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 1993
- Pagination:
- 26p.,bibliog.
- Place of publication:
- London
Discussion document on the ways in which nursing skills could be further developed and delivered to people with learning difficulties following the implementation of the NHS and Community Care Act 1990.
Using healthcare services: perspectives of community‐dwelling aging adults with intellectual disabilities and family members
- Authors:
- BAUMBUSCH Jennifer, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 16(1), 2019, pp.4-12.
- Publisher:
- Wiley
The aging of adults with Intellectual Disability (ID) in the community resulting from deinstitutionalization signals a need for change in healthcare policy and services. This population is growing older at rates similar to the rest of the population, and individuals with ID often have multiple chronic illnesses and may experience young‐onset dementia, increasing their need to use healthcare services. However, it is widely recognized that currently healthcare services are ill‐prepared to meet the unique needs of this population as they age in their communities. The purpose of this study was to explore this issue from the perspectives of aging individuals with ID and family members (FMs). This study employed qualitative description as the method of inquiry and took place in British Columbia, Canada. Adults with ID age 40 years and older (N = 21) and FMs (N = 26) participated. Data were collected through focus groups and semistructured interviews. Thematic data analysis was conducted to generate the main study findings. Two overarching themes were identified. First, “the organization and culture of healthcare services in the community.” This theme included issues such as age restrictions on health services, navigating health services, the culture of appointment‐making, and implications of living in rural settings, all of which influenced how individuals used healthcare services. Second, “interactions with healthcare providers” illustrated ways in which providers contribute to healthcare experiences. Many factors, both organizational and interpersonal, shape the experiences of aging individuals with ID using healthcare services in their communities. There continues to be a policy and service gap that can create unnecessary and avoidable difficulties in using healthcare services. Policies, service delivery, and education of healthcare providers need to be revisited in light of the unique needs of this population aging in the community in order to ensure healthcare is accessible. (Edited publisher abstract)
Care in the community: home care use among adults with intellectual and developmental disabilities over time
- Authors:
- MARTIN Lynn, OUELLET-KUNTZ Helene, McKENZIE Katherine
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 14(3), 2017, pp.251-254.
- Publisher:
- Wiley
Community-based healthcare services have quickly evolved over the last few decades to respond to the growing population of older adults, and their desire to remain independent in the community. In Ontario, Canada, deinstitutionalization has resulted in all persons with intellectual and developmental disabilities living and ageing, in the community. This paper compares use of home care services in Ontario among adults (age 18–99 years) with and without intellectual and developmental disabilities over time. Home care use over a 5-year period was compared between a cohort of 46,008 adults with intellectual and developmental disabilities and a random sample of 3,272,080 adults without intellectual and developmental disabilities. Persons with and without intellectual and developmental disabilities received similar types of home care services. Adults with intellectual and developmental disabilities had much higher rates of admission to home care, and at much earlier ages. While this remained true over time, slight differences by age were noted between groups. Higher use at earlier ages suggests that home care services are responding to the needs of adults with intellectual and developmental disabilities. Future research should identify (or develop) best practices for promoting independence in the community for adults with intellectual and developmental disabilities with healthcare needs. (Edited publisher abstract)
Child or young person - community CETR. Workbook 4: Care, Education and Treatment Review (CETR): key lines of enquiry
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 25
- Place of publication:
- London
A workbook for panel members to record their findings during a Care, Education and Treatment Review (CETR) for children and young people living in the community. The workbook is based on the key lines of enquiry (KLOE) and shows what sort of questions to ask and where to find evidence. It also provides space to record findings and to record what you think if the person’s quality of care overall for each KLOE. The key lines of enquiry cover: Does the child or young person need to be in hospital; Is the child/young person getting the right care, education and treatment; Is the child/young person involved in their care, education and treatment; Are the child/young person’s health needs known and met?; Is there a clear, safe and proportionate approach to the way risk is assessed or managed?; Are any autism needs known and met?; Is there active planning for the future and for discharge with clear ownership?; Are family and carers being listened to and involved?; Are the child/young person’s rights and freedoms being protected and upheld?; Is enough attention being given to the particular needs of the child or young person?. It will also help with deciding what goes into the CTR report. It is one of a series of 6 workbooks, which each cover different types of Care and Treatment Review and CETR panels. (Edited publisher abstract)
The impact of living arrangements and deinstitutionalisation in the health status of persons with intellectual disability in Europe
- Authors:
- MARTINEZ-LEAL R., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 55(9), September 2011, pp.858-872.
- Publisher:
- Wiley
Despite progress in deinstitutionalisation, relatively little is known about the health of people with intellectual disability (PWID) who live in large institutions or those living in small residential services, family homes or independently in the community. Nor are there any international comparisons at the European level of the health status and health risks of PWID living in fully staffed residential services with formal support and care compared with those living in unstaffed family homes or independent houses without formal support. A total of 1269 persons with ID and/or their proxy respondents were interviewed in 14 EU countries using the P15 multinational assessment battery to collect data on health indicators relevant to PWID. Participants were grouped according to their living arrangements, formal support and stage of deinstitutionalisation. Obesity and sedentary lifestyle were prevalent along with illnesses such as epilepsy, mental disorders, allergies or constipation. There were more cases of myocardial infarction, chronic bronchitis, osteoporosis and gastric or duodenal ulcers among participants in countries at the early stage of deinstitutionalisation. There were important deficits in variables related health promotion such as screening and vaccination in family homes and independent living arrangements. The authors point to the important differences between different living arrangements depending on the level of formal support available and the stage of deinstitutionalisation.
Down syndrome health screening: the Fife model
- Authors:
- JONES Jill, et al
- Journal article citation:
- British Journal of Learning Disabilities, 38(1), March 2010, pp.5-9.
- Publisher:
- Wiley
People with Down syndrome have a greater risk of developing a range of health problems, including cardiac problems, thyroid disorders, sensory impairments, reduced muscle tone (hypotonia) and Alzheimer's disease. Despite this increased risk, regular screening is not typically offered to individuals with Down syndrome. A multidisciplinary health screening clinic was set up by a Community Learning Disability Team in Fife to offer regular health screening to people with Down syndrome. The format of the clinic, outcomes after 18 months and future service developments are discussed.
Trends in the need for services for people with learning disabilities: implications for primary care
- Authors:
- LAWRENSON Ross, et al
- Journal article citation:
- Health Trends, 29(2), 1997, pp.37-41.
- Publisher:
- Office for National Statistics
Describes an observational study of register of people with learning disabilities from the City of Westminster and the Royal Borough of Kensington and Chelsea between 1983 and 1995. Reports on findings.
Learning disabilities: the challenge for nursing
- Author:
- MATTHEWS David R.
- Journal article citation:
- Nursing Times, 3.7.96, 1996, pp.36-38.
- Publisher:
- Nursing Times
Over the past 10 years, people with learning disabilities have moved out of institutions and into the community. Their care is now seen as a social, rather than a health, issue. But there is a danger that this may lead to their general health needs being over looked. Argues that specialist registered mental handicap nurses are ideally suited to bridging this gap, possibly in partnership with primary health care teams.
The community care needs of older people with learning disabilities
- Author:
- MORRIS Stella
- Journal article citation:
- Integrate News, 58, March 1996, pp.15-17.
Examines the historical and present day policies relating to care of people with learning disabilities in Scotland. Focuses on the community care needs of older people who have a learning disability.