Search results for ‘Subject term:"learning disabilities"’ Sort:
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What is standard care for people with learning disabilities and behaviour that challenges and what does it cost?
- Authors:
- IEMMI Valentina, et al
- Journal article citation:
- British Journal of Learning Disabilities, 44 (4), 2016, pp.309-321.
- Publisher:
- Wiley
Background: This article describes current care arrangements in England for children, young people and adults with learning disabilities and behaviour that challenges, and estimate their comparative costs. Materials and Methods: A two-round Delphi exercise was performed in March and April 2014, followed by a costing exercise. Results: The study finds a mixed picture: participants reported that 60-87% of children, 66-88% of young people and 34-47% of adults were likely to be living within the community. Annual cost of care would range between £39 612 and £74 876 for children, between £35 235 and £52 832 for young people and between £81 478 and £94 799 for adults. Conclusion: While residential-based care may continue to be necessary for respite or for individuals with particular needs, community-based care may be an economically attractive alternative, supporting the inclusion of people with learning disabilities and behaviour that challenges within their communities, potentially at a lower cost. (Edited publisher abstract)
Making it happen: take action to get people with a learning disability, autism and/or challenging behaviour out of inpatient units. A guide for campaigners about Transforming Care Partnerships
- Authors:
- MENCAP, CHALLENGING BEHAVIOUR FOUNDATION, NATIONAL AUTISTIC SOCIETY
- Publisher:
- Mencap
- Publication year:
- 2016
- Pagination:
- 12
- Place of publication:
- London
Guide to help local groups and individuals campaign for change to enable people with a learning disability, autism and/or challenging behaviour to move from inpatient units into the community. The guide highlights NHS England's promise in 'Building the Right Support' to close 35-50 per cent of inpatient beds and develop the right support in the communities by March 2019. It sets out the scale of the challenge and outlines the role of the 48 Transforming Care Partnerships, set up to implement NHS England's plans. The guide then provides advice on how campaigning groups and individuals can contact local Transforming Care Partnerships to find out more about their plans and find out what is being done to develop the right support. It includes a template letter to help contact local Partnerships; a checklist of key principles that should be included in Transforming Care Partnership plans; and a list organisations that can provide further support. (Edited publisher abstract)
From long-stay hospitals to community care: reconstructing the narratives of people with learning disabilities
- Authors:
- LEARNING Brian, ADDERLEY Hope
- Journal article citation:
- British Journal of Learning Disabilities, 44(2), 2016, pp.167-171.
- Publisher:
- Wiley
Raymond, a 62 year old gentleman diagnosed with severe and profound learning disabilities, autistic spectrum disorder and severe challenging behaviour, who had lived in long stay campus-based hospital accommodation for 46 years was supported to move to a community project developed to support people to live in their own bespoke flat. This narrative case study describes the journey that Raymond took from institutionalised care to community life. (Publisher abstract)
Connect for change: an update on learning disability services in England
- Author:
- ROYAL COLLEGE OF NURSING
- Publisher:
- Royal College of Nursing
- Publication year:
- 2016
- Pagination:
- 24
- Place of publication:
- London
This report looks at the steps that need to be taken to develop the learning disability nursing workforce and improve community learning disability services in order to deliver the government policy 'Transforming care', and move the care of people with learning disabilities from hospitals into the community. The report highlights the disconnect between workforce planning and service design, and the reduction and devaluing of the learning disability workforce. It presents data to show that there is still a 'revolving door' with people with learning disabilities continuing to be admitted into inpatient services, often due to the inability to access the right care and support to help people to live independently. It also looks at the current state of the workforce in terms of staffing levels, numbers, skill mix and projections for the future workforce. A number of recommendations are presented in relation to workforce and service development to address the issues raised in the report. These include a long-term workforce strategy that connects workforce planning to the transformation and delivery of services for children and adults with learning disabilities; ensuring that quality community services are commissioned to support the appropriate transition of people from inpatient care to living more independently in the community; establishing long-term commissioning arrangements of community services to protect children and adults who rely on vital services in the community; and for positive behaviour support to be embedded across organisations and training. (Edited publisher abstract)
Social connections for older people with intellectual disability in Ireland: results from wave one of IDS-TILDA
- Authors:
- McCAUSLAND Darren, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 29(1), 2016, pp.71-82.
- Publisher:
- Wiley
Background: The literature on influences of community versus congregated settings raises questions about how social inclusion can be optimised for people with intellectual disability. This study examines social contacts for older people with intellectual disability in Ireland, examining differences in social connection for adults with intellectual disability and other adults. Materials and Methods: Data were drawn from the IDS-TILDA study in Ireland. A nationally representative sample (n = 753) included adults aged 40 years and older, with additional comparison with general population participants. Predictors of social contacts were explored. Results: Residence, level of intellectual disability and age were significant factors determining social contact. People in institutional residences, older respondents and those with severe/profound intellectual disability had the lowest levels of contact; older adults with intellectual disability had much lower rates than general population counterparts. Conclusions: Community-dwelling people with intellectual disability have greater social contact than those living in institutions, but levels are below those for other adults in Ireland. (Publisher abstract)
Transforming care
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2016
- Pagination:
- 8
- Place of publication:
- London
Summarises the development of the Transforming Care programme, which aims to improve community services for children, young people and adults with a learning disability and/or autism with behaviours described as challenging and reduce the numbers in inpatient care. It is based on the assumption that children, young people and adults with a learning disability and/or autism with behaviours described as challenging have the right to live satisfying and valued lives, and to be treated with dignity and respect. The document also provides a series of questions to help organisations assess whether their services are doing all they can to safeguard and promote the wellbeing of people with learning disabilities and/or autism and challenging behaviour. Links to relevant resources are included. The Programme has been developed by the Local Government Association and the five delivery partners of NHS England, the Department of Health, the Association of Directors of Adult Social Services (ADASS), the Care Quality Commission and Health Education England. (Edited publisher abstract)
Commentary: enhancing community inclusion for people with complex needs through partnership working
- Author:
- CARNABY Steve
- Journal article citation:
- Tizard Learning Disability Review, 21(3), 2016, pp.140-143.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to serve as a commentary on the work reported by Hilary Johnson and her colleagues, which used partnership working as a lever for developing community inclusion for people with complex communication needs. Design/methodology/approach: The commentary uses the wider literature on social inclusion as well as narrative from current policy in England on the development of “Transforming Care Partnerships” to explore some of the issues raised by the research. Findings: The conclusion is that physical integration is only the starting point for a vision where people with the most complex needs live the “included life” which evolves by developing partnership working and reciprocal relationships between people with and without disabilities. Originality/value: This paper attempts to highlight relevant key research in the area of social integration as a way of reviewing the likely impact of recent policy on the lives of people with intellectual disabilities and the most complex needs. (Publisher abstract)
Perspectives of family members of people with an intellectual disability to a major reconfiguration of living arrangements for people with intellectual disability in Ireland
- Authors:
- O'DOHERTY Siobhain, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.137-151.
- Publisher:
- Sage
- Place of publication:
- London
Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalised model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members’ preference for particular types of living arrangements were highly reflective of their lived experience. Facilitators to community living included timely information on proposed moves, adequate staffing, suitable properties and locations and consideration of the characteristics of individuals who share a property. Barriers included high support needs, advanced age, a fear of relinquishing current supports, a fear of the sustainability of newer models of residential support and concerns about community opposition. Conclusion: The family perspective to reform is characterised by fear and suspicion of the motivation behind these reforms, with cost efficiencies being perceived as a main driver. Greater information is required to empower families to make informed decisions. (Edited publisher abstract)
The role of support staff as people move from congregated settings to group homes and personalized arrangements in Ireland
- Authors:
- IRIARTE Edurne Garcia, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.152-164.
- Publisher:
- Sage
- Place of publication:
- London
The movement of people with intellectual disabilities into the community is increasingly endorsed by public policy. Whilst staff are critical to a successful transition to the community, there is only scattered research on their role in supporting people to move. In this study, 32 staff and the 16 people with intellectual disabilities they supported to move from congregated settings to group homes or personalised living arrangements in the community were interviewed on two occasions, before (time 1) and after (time 2) the move. In congregated settings, staff steered the move to community living, they helped them to settle in community group homes and supported them to increase control over their lives in personalised community arrangements, where they support became increasingly more personalised and geared towards community participation and development of social relationships. Implications for staff training are drawn. (Edited publisher abstract)
Supporting people with complex communication needs through community capacity building: the Communication Access Network
- Authors:
- JOHNSON Hilary, et al
- Journal article citation:
- Tizard Learning Disability Review, 21(3), 2016, pp.130-139.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to describe specific features of a Victorian (Australia) state-wide hub and spoke model of speech pathology provision established for adults with complex communication needs (CCN). Two case studies highlighting successful examples of services developed to enhance community inclusion will be described and the challenges discussed. Design/methodology/approach: The route to community inclusion is described through a case study illustration of one communication accessible community site and one disability service study. The disability service research involved focus groups, survey and interview data and demonstrated the efficacy and sustainability of a support worker training model. Findings: Sustainable change in the community and in disability services can occur through partnerships, training, and long-term commitment. Support workers who can facilitate interactions for people who have cognitive and communicative disabilities are an essential component of building the capacity of communities to include people with CCN. Collaboration between community members, specialised supports and people with disabilities enhances active community participation. Originality/value: This innovative, state-wide model has the capacity to be replicated elsewhere. On-going speech pathology services are integral to support adults with CCN providing both short-term individualised services, sustainable staff training and community engagement. (Publisher abstract)