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Families’ views on their relatives with intellectual disability moving from a long-stay psychiatric institution to a community-based intellectual disability service: an Irish context
- Author:
- DOODY Owen
- Journal article citation:
- British Journal of Learning Disabilities, 40(1), March 2012, pp.46-54.
- Publisher:
- Wiley
In Ireland in recent years there has been a shift regarding the care of people with intellectual disability from a psychiatric hospital to residential homes within both community- and campus-based accommodation. This study aimed to explore families’ views regarding the movement of people with intellectual disability from a long-stay psychiatric institution to campus-based accommodation within a local intellectual disability service. The client group involved in the transfer consisted of 36 individuals who moved to 6 campus-based bungalows. Interviews were conducted with 11 family members and the data transcribed. Two key themes were identified: the positive transition resulting from the move; and the enlightened thinking that has developed as a consequence of the move. Overall the families expressed positive thoughts about the move to community houses, believing that life was better for their family members in the community compared to the institution. The study indicates the importance of care and care delivery from the family’s perspective, and the interaction of staff with families.
An evaluation of a community living initiative in Ireland
- Authors:
- SHEERIN Fintan, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 19(3), 2015, pp.266-281.
- Publisher:
- Sage
- Place of publication:
- London
One of the central principles underpinning Irish intellectual disability policy is that of decongregation. Allied to this is the belief that life in community settings offers greater opportunities and richer experiences than does life in institutional settings. This study explores the experiences of a group of adults with intellectual disabilities who moved from residential settings to living units in the community. Using a qualitative descriptive approach, it considers the significance of that move for them and seeks to understand the extent to which their lives have changed. Whereas it emerges that this was a positive period in their lives, it is clear that a number of issues remain to be addressed and these provide useful information for similar developments in the future. (Publisher abstract)
Changes in the provision of residential care for adults with an intellectual disability: a national longitudinal study
- Authors:
- KELLY Fionnola, McCONKEY Roy
- Journal article citation:
- Tizard Learning Disability Review, 17(1), 2012, pp.4-10.
- Publisher:
- Emerald
The Republic of Ireland has a National Intellectual Disability Database (NIDD) of persons with an intellectual disability, which is updated annually. It records people living in various forms of residential provision as well as those living with family carers. This study used NIDD data to explore changes in provision of residential care from 1999 to 2009 for nearly 8,000 adults with intellectual disability in Ireland living in congregated or community-based accommodation. The analysis found that the largest area of growth over the ten-year period was in the provision of community group homes, with just under 50% of people living in community settings by 2009. There was a reduction in the number of places in congregated options, but more people were living in new forms of congregated provision designated specialist units. The article points out that a move from congregated living arrangements to more homely, community-based accommodation is a policy objective in many developed countries, and asserts that outmoded models of residential provision are likely to persist unless there is sustained investment in new forms of provision.
Mental health services for people with intellectual disability in Ireland: evidence, barriers and opportunities
- Authors:
- RAMSAY Hugh, DODD Philip
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 12(3-4), 2018, pp.105-113.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to outline the historical background and policy context of mental health services for people with intellectual disability (ID) in Ireland. It then considers recent implementation and lessons from the Irish experience. Design/methodology/approach: The policy background and research literature relevant to the development of mental health services for people with ID in Ireland was reviewed and discussed. Findings: Mental health services in Ireland remain in a state of change, moving towards the implementation of specialist multi-disciplinary teams in the community, alongside previous models of care and service. Research limitations/implications: This paper summarises recent advances and research regarding mental health services for people with ID in Ireland. Practical implications: The paper illustrates the process of delivering changes to mental health services with practical implications for mental health services internationally. Originality/value: This is the first paper in many years to summarise the development of mental health services for people with ID in Ireland. There has been considerable recent change and it is therefore important to provide a useful reference for the current status of services. (Edited publisher abstract)
Perspectives of family members of people with an intellectual disability to a major reconfiguration of living arrangements for people with intellectual disability in Ireland
- Authors:
- O'DOHERTY Siobhain, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.137-151.
- Publisher:
- Sage
- Place of publication:
- London
Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalised model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members’ preference for particular types of living arrangements were highly reflective of their lived experience. Facilitators to community living included timely information on proposed moves, adequate staffing, suitable properties and locations and consideration of the characteristics of individuals who share a property. Barriers included high support needs, advanced age, a fear of relinquishing current supports, a fear of the sustainability of newer models of residential support and concerns about community opposition. Conclusion: The family perspective to reform is characterised by fear and suspicion of the motivation behind these reforms, with cost efficiencies being perceived as a main driver. Greater information is required to empower families to make informed decisions. (Edited publisher abstract)
The role of support staff as people move from congregated settings to group homes and personalized arrangements in Ireland
- Authors:
- IRIARTE Edurne Garcia, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.152-164.
- Publisher:
- Sage
- Place of publication:
- London
The movement of people with intellectual disabilities into the community is increasingly endorsed by public policy. Whilst staff are critical to a successful transition to the community, there is only scattered research on their role in supporting people to move. In this study, 32 staff and the 16 people with intellectual disabilities they supported to move from congregated settings to group homes or personalised living arrangements in the community were interviewed on two occasions, before (time 1) and after (time 2) the move. In congregated settings, staff steered the move to community living, they helped them to settle in community group homes and supported them to increase control over their lives in personalised community arrangements, where they support became increasingly more personalised and geared towards community participation and development of social relationships. Implications for staff training are drawn. (Edited publisher abstract)
Staff perceptions of the quality of life of individuals with an intellectual disability who transition from a residential campus to community living in Ireland: an exploratory study
- Authors:
- KILROY Sarah J., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 40(1), 2015, pp.68-77.
- Publisher:
- Taylor and Francis
Background: This study explores the quality of life (QoL) of individuals with a severe intellectual disability (ID) who had recently moved from an institutional setting (i.e., “residential campus”) to independent housing in the community (i.e., “community living”) and whether aspects of their QoL were perceived to have changed over the course of this move. Method: A qualitative approach was adopted by interviewing the key workers of 8 individuals with an ID (M age = 37.38, range: 26–44, male n = 6, female n = 2). An interview tool focusing on aspects of QoL was utilised and the interviews were analysed using thematic analysis (Braun & Clarke, 2006). Results: Ten themes emerged from the analysis that provided insight into the experience of transitioning to community living. Conclusions: The emotional wellbeing, health, privacy, freedom, and material wellbeing of all the individuals were perceived to have improved, as well as independence, choice, and social opportunities for many. (Publisher abstract)
A five-country comparative review of accommodation support policies for older people with intellectual disability
- Author:
- BIGBY Christine
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(1), March 2010, pp.3-15.
- Publisher:
- Wiley
Most developed countries have social policies which consider people with intellectual disability as citizens with equal rights, which suggest they should share similar goals to a healthy and active older person in the general community, and an expectation of the necessary supports to achieve this. This article, comparing the development and implementation of accommodation support programmes for people aging with intellectual disabilities in five modern welfare states (Australia, Canada, Ireland, the UK, and the US), describes the limited development of policies in this area and suggests possible reasons why this is the case. A review of the literature on aging policies for people with intellectual disability was conducted, which suggested that despite consistent identification of similar broad policy issues and overarching goals, little progress has been made in the development of more specific policies or implementation strategies to address issues associated with accommodation support as people age. The author concludes that policy debates which have conceptualised the problem as ageing in place and the shared responsibility of the care and disability sectors may have detracted from either sector leading the development of formulating, implementing, and resourcing a strong policy framework.
Marginalization and its effects on the sexuality-related potentials of the learning disabled person
- Authors:
- SHEERIN F., SINES D.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 3(1), March 1999, pp.39-49.
The author contends that marginalisation exists in both the UK and Ireland at a functional and attitudinal level, within many contemporary learning disability services. This conceptual paper seeks to examine the effects of marginalisation on the development of learning disabled people in Ireland, within the context of a proposed, integrative approach to personhood.