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My choice: an accessible guide to making choices for people with learning difficulties and their supporters
- Authors:
- RAYMOND Christina, BARKER Vicky
- Publisher:
- Speaking Up
- Publication year:
- 2006
- Pagination:
- 30p.
- Place of publication:
- Cambridge
Everyone has the right to make choices but sometimes it can be difficult and, especially if a person is not used to making choices. The 2007 Mental Capacity Act gives people with learning difficulties more opportunities to choose for themselves and this book will be a huge help in making choices, with a very helpful pull out choices chart. This book is written by people with learning difficulties for people with learning difficulties.
State of healthcare 2006
- Author:
- COMMISSION FOR HEALTHCARE AUDIT AND INSPECTION
- Publisher:
- Commission for Healthcare Audit and Inspection
- Publication year:
- 2006
- Place of publication:
- London
The report makes clear that healthcare is improving and that most patients are positive, but there remains challenges. It presses for more attention on services for people least able to look after themselves, including those with learning disabilities and mental health conditions. And more should be done to "put patients first" by ensuring that people are treated with dignity and respect and get better information about their care. For the first time, the report includes a view of performance in meeting the minimum standards for the independent sector in England.
Challenging the monologue about silent sterilization: implications for self-advocacy
- Authors:
- ROETS Griet, ADAMS Marie, Van HOVE Geert
- Journal article citation:
- British Journal of Learning Disabilities, 34(3), September 2006, pp.167-174.
- Publisher:
- Wiley
This is the story of Marie, a woman with 'learning difficulties' who lives in Belgium. It is told by Marie and her advocate, Griet. In 2002, Marie was told she had to have a sterilization. The professionals told Marie and her mother the operation was essential. Marie did not know what the operation was because the professionals did not explain what it meant nor did they talk through this difficult issue with her. She discussed it with Griet; Marie did not want it because it was not necessary. They agreed to refuse it. They conclude that sterilization has to be a choice made by the woman concerned and not forced on someone because they are labelled as having 'learning difficulties'.
From biscuits to boyfriends: the ramifications of choice for people with learning disabilities
- Authors:
- SMYTH Catherine M., BELL Dorothy
- Journal article citation:
- British Journal of Learning Disabilities, 34(4), December 2006, pp.227-236.
- Publisher:
- Wiley
Choice plays an important role in a person's quality of life. This paper looks at the issue of choice for people with learning disabilities. It considers the extent to which people with learning disabilities are able to choose and are provided with real choices. It also covers the extent to which true choice may or may not be advantageous for some people with learning disabilities. By concentrating particularly on the issue of choice about food and diet, this paper indicates how seemingly simplistic choices, such as decisions over food consumed, can cause major health problems for the decision-maker and hence be a more complex and vital decision than at times it is perceived to be. Additionally, this paper focuses on important factors surrounding choice for people with learning disabilities that previous research may have overlooked. One such factor is how past experience affects the decision-making process. Another, is the issue of the range of choice that is possible, relative to a person's cognitive ability to be fully aware of this range. In particular, this paper emphasizes the important role of the carer. It addresses the impact which the carer's own, perhaps unconscious personal choices, beliefs and ideologies may have on the 'choices' made by people with learning disabilities, and more worryingly, on the 'choices' offered to them. This paper highlights problems with current research into the area of choice for people with learning disabilities and provides suggestions for future study.
Social inclusion and choice for adults with learning disabilities: some lessons from reprovisioning
- Authors:
- HUNTER Susan, PERRY Richard W.
- Journal article citation:
- Practice: Social Work in Action, 18(3), September 2006, pp.207-219.
- Publisher:
- Taylor and Francis
Based on a study of the relocation of adults with learning disabilities from a local authority hostel to individual and multi-occupancy tenancies, this article argues that well-intentioned reprovisioning policy initiatives struggle to strike a balance between imperatives concerned with managing the state's duty of care, realising social inclusion and securing the rights of individuals. Protracted implementation and changes to the timetable contributed to tension between speed and meaningful consultation and adversely affected the perceived reliability of information. Many residents, staff and relatives were neither clear about the reasons for change, nor were supportive of it. Initial scepticism amongst staff and relatives changed over time to appreciation of the value of the move and frequency of contact between tenants and relatives remained relatively stable. However, the shift from unit-based management to that of dispersed tenancies put staff autonomy, support and supervision under scrutiny. More fundamentally, the choices available to users were restricted to matters of daily living and routine and few staff felt enabled to support them to take full advantage of the move.
An analysis of key principles in valuing people: implications for supporting people with dementia
- Author:
- FORBAT Liz
- Journal article citation:
- Journal of Intellectual Disabilities, 10(3), September 2006, pp.249-260.
- Publisher:
- Sage
- Place of publication:
- London
This article reports an analysis of practitioner and policy implementers' views on implementing the strategy document Valuing People. It is based on empirical data generated from the first phase of a research project that seeks to develop best practice in supporting people with an intellectual disability and dementia. The analysis focuses on how Valuing People's four key principles (choice, independence, rights and inclusion) were drawn on and talked about spontaneously by participants. Each of these four principles has important implications for the provision of services for people with intellectual disabilities and dementia. This article adds to the growing dialogue on service provision for this group.
How is it going? A survey of what matters most to people with learning disabilities in Scotland today
- Author:
- CURTICE Lisa
- Publisher:
- ENABLE
- Publication year:
- 2006
- Pagination:
- 47p.
- Place of publication:
- Glasgow
Results of a survey into what matters most to people with learning disabilities and autistic spectrum disorders in Scotland are presented. 605 people (about 1 in 200 of the population of people with learning disabilities in Scotland) replied to a postal questionnaire. What matters most to people with learning disabilities is getting their own home, having friends and being able to go out more. They also want to make sure they stay in contact with family and they keep the support that is essential to their independence. They enjoy socialising more than anything else and next to that, sport. They hope for new experiences. Findings and conclusions from the research in terms of choice and independence, friends and relationships, leisure, work, and education and training are presented.