Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 32
Foster family care for persons with mental retardation
- Authors:
- BORTHWICK-DUFFY Sharon, et al
- Publisher:
- American Association on Mental Retardation
- Publication year:
- 1992
- Pagination:
- 207p.,tables,diags.,bibliogs.
- Place of publication:
- Washington, DC
Research study focusing on the factors that influence the development and quality of life of people with learning disabilities in foster care, with the objective of isolating characteristics of the individual and home environment that were likely to affect development and quality of life.
The quantitative measurement of family quality of life: a review of available instruments
- Authors:
- HU X., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 55(12), December 2011, pp.1098-1114.
- Publisher:
- Wiley
Family quality of life (FQOL) is a central outcome of service delivery for disabled people and their families. This review investigated the difference in approaches between families with children with learning disabilities and other families and identified recommendations to improve the measurements of FQOL in the disability field. A search of 25 databases was conducted, and 16 measurement tools on FQOL, family well-being and family satisfaction used in the disability field, healthcare field and general family studies published in journals from 1980 to 2009 were included. Three themes emerged: description of the primary purpose and theoretical basis; identification of the tool's respondents, domains, response formats and scoring strategies to assess family systems; and summarisation of available psychometric information. The authors concluded that as family researchers continue to conceptualise and theorise about FQOL, they should also promote the refinement of FQOL measurements and consider the implications from instruments used in the family fields from the following aspects: domains of FQOL; units of analysis; response format; scoring choice; and psychometric evaluation. Implications for future research are discussed.
Quality of life, health satisfaction and family impact on caregivers of children with developmental delays
- Authors:
- HSIEH R. L., et al
- Journal article citation:
- Child: Care, Health and Development, 35(2), March 2009, pp.243-249.
- Publisher:
- Wiley
In order to study the quality of life, health satisfaction and family impact on caregivers of children with developmental delays caregivers of children with diagnoses of developmental delays were recruited from a teaching hospital in northern Taiwan. The main caregivers of 48 male and 22 female children with developmental delays were recruited. WHOQOL-BREF for health-related quality of life (HRQOL), PedsQL-Health Satisfaction for health satisfaction, PedsQL-Family Impact Module and Impact on Family Scale for family impact were evaluated. The correlation of caregivers' HRQOL, health satisfaction and family impact were also studied. Caregivers in nuclear families had higher health satisfaction scores when assessed by the PedQL-Health Satisfaction questionnaire. Children's age was negatively correlated with family impact, including parent, family and total scores as assessed using the PedsQL-Family Impact Module. A negative relation between impact of burden and child's age suggests that family members gradually adapt to the delayed developmental status in their children as they grow. Caregivers in nuclear families having higher health satisfaction than those in extended families may be due to Chinese cultural effects.
Career adaptability, resilience, and life satisfaction: a mediational analysis in a sample of parents of children with mild intellectual disability
- Authors:
- GINEVRA Maria Cristina, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 43(4), 2018, pp.473-482.
- Publisher:
- Taylor and Francis
Background: Parents of children with intellectual disability (ID) have been found to be more likely to experience lower levels of life satisfaction than parents of typically developing children as a result of the increased challenges they experience. Based on a life design approach, which emphasises the role of career adaptability and resilience in dealing with life challenges, this study aimed at analysing the relationship between career adaptability and life satisfaction through the mediational role of resilience in parents of children with mild ID. Method: One hundred and fifty-two (62 fathers and 90 mothers) parents of children with mild ID were involved and were administered measures of life satisfaction, career adaptability, and resilience. Results: The structural equation model showed that career adaptability is indirectly, through resilience, related to life satisfaction. Conclusion: This result has important implications for practice, and it underscores the need to support parents’ life satisfaction, promoting their resilience, and especially their career adaptability. (Publisher abstract)
Exploring quality of life of children with cerebral palsy and intellectual disability: what are the important domains of life?
- Authors:
- DAVIS E., et al
- Journal article citation:
- Child: Care, Health and Development, 43(6), 2017, pp.854-860.
- Publisher:
- Wiley
Background: Although it is estimated that half of all children with cerebral palsy also have comorbid intellectual disability, the domains of quality of life (QOL) important for these children are not well understood. The aim of this study was to identify important domains of QOL for these children and adolescents. Methods: Due to the children's communication impairments, qualitative semi‐structured interviews were conducted with 18 parents. The children (9 males) had a median age of 12 (range 7 to 17) years at interview and nearly two thirds were classified as Gross Motor Function Classification System IV or V. A grounded theory approach was used to identify domains of QOL. Results: The 11 domains identified as important to QOL were physical health, body comfort, behaviour and emotion, communication, predictability and routine, movement and physical activity, nature and outdoors, variety of activity, independence and autonomy, social connectedness, and access to services. Conclusions: The domains of QOL that emerged from this study will be useful for professionals who support children with cerebral palsy and their families. They will also be important for developing a QOL instrument essential for informing the development of interventions and their monitoring and evaluation. (Edited publisher abstract)
Longitudinal study of parents' impact on quality of life of children and young adults with intellectual disabilities
- Authors:
- CRAMM Jane M., NIEBOER Anna P.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(1), January 2012, pp.20-28.
- Publisher:
- Wiley
Five domains of quality of life for people with intellectual disabilities have been identified through research: material well-being, development and activity, physical well-being, social well-being, and emotional well-being. This study investigated how parents' perspectives on these domains relate to quality of life for children and young adults with intellectual disabilities. Questionnaires were used to gather information from 147 parents of children with intellectual disabilities, recruited from 4 cities in the Netherlands, at the start of the study and about 6 months later. The article describes the methodology and analysis and presents the findings. It reports that the well-being scores of parents in several quality of life domains were significant predictors of quality of life of their children, with main predictors of quality of life among children and young people with intellectual disabilities being physical well-being (children), social well-being (parents and children) and emotional well-being (parents and children).
Centre bridges gap for disabled children
- Author:
- -
- Journal article citation:
- Children and Young People Now, 4.5.11, 2011, pp.20-21.
- Publisher:
- Haymarket Business Publications Ltd
Action for Children's Gilmerton Road Support Services, on the outskirts of Edinburgh, is helping improve the quality of life of children with learning disabilities who also have challenging behaviour and their families. The service works in partnership with local health services and councils and provides a mix of short breaks and outreach.
Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities
- Authors:
- OLSSON M.B., HWANG C.P.
- Journal article citation:
- Journal of Intellectual Disability Research, 52(12), December 2008, pp.1102-1113.
- Publisher:
- Wiley
The first aim of the present study was to estimate the extent to which differences in well-being in parents of children with and without intellectual disability (ID) in Sweden can be accounted for by differences in the presence of the risk factors: (1) child disability; (2) socioeconomic disadvantage; (3) household composition; and (4) parental characteristics. The second aim was concerned with individual variation in well-being within the group of parents of children with ID. The aim was to estimate if protective factors such as parental personality characteristics (sense of coherence), perceived positive impact of the child and satisfaction with participation in different arenas of life explained variation in well-being in mothers and fathers of children with ID over and above that explained by the risk factors. Parents of children with ID (62 mothers and 49 fathers) and control children (183 mothers and 141 fathers) completed postal surveys on well-being, socioeconomic situation, health, sense of coherence, satisfaction with participation in different arenas of life and the child's impact on the family. The results showed that mothers of children with ID had lower levels of well-being than fathers and control parents, but the presence of a child with ID did not in itself predict poorer maternal well-being. Rather, differences in economic hardship and self-rated health were the strongest predictors for well-being. It was further found that 67.7% of the mothers of children with ID scored within the high well-being group. The predictive power of the model increased significantly for both fathers and mothers when protective factors were added to the model (42 and 78% explained variance compared with 25% with only risk factors). Well-being of parents with a child with ID is dependent upon the interplay of risk and protective factors and research needs to address these variables simultaneously.
Considerations on supports that can increase the quality of life of parents of children with disabilities
- Authors:
- SORESI Salvatore, NOTA Laura, FERRARI Lea
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 4(4), December 2007, pp.248-251.
- Publisher:
- Wiley
In this study the authors examined the efficacy of personalized and specific interventions of parent training aimed at improving the quality of life of families with disabled children. They found that parents who have benefited from these interventions showed increments in their knowledge of educational principles and in their levels of well-being and satisfaction.
Human rights - disability - children: towards international instruments for disability rights: the special case of disabled children: proceedings of the conference: 8-9 November 2004, Council of Europe, Strasbourg
- Author:
- COUNCIL OF EUROPE
- Publisher:
- Council of Europe
- Publication year:
- 2005
- Pagination:
- 258p.
- Place of publication:
- Strasbourg
Too many people with disabilities, particularly children, continue to experience isolation, stigma and social exclusion because they live in specialised institutions. The Conference "Human Rights- Disability-Children: towards international instrument for disability rights - the special case of disabled children", organised by the Council o1 Europe in Strasbourg (8-9 November 2004) under its Norwegian Chairmanship, reviewed current Council of Europe instruments to promote and protect the rights of people with disabilities. It focused in particular on the right of children with disabilities to grow up within a family and in a community context. The event, attended by more than 100 participants from 34 Council of Europe member and observer states, clearly showed that strengthening the rights of children with disabilities within a non-discriminatory framework "from patient to citizen" is a pan-European issue. The concrete follow-up of the conference is provided by a multidisciplinary ad hoc group of experts who, in the framework of the forthcoming Council of Europe Action Plan to promote the rights and full participation of people with disabilities in society: improving the quality of life of people with disabilities in Europe (2006 2015), will draw up recommendations and guidelines for the deinstitutionalisation of children with disabilities, promote the policy of community living and support families to care for their disabled children at home.