Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 43
Self-injurious behaviour
- Authors:
- CHALLENGING BEHAVIOUR FOUNDATION, (Producer)
- Publisher:
- Challenging Behaviour Foundation
- Publication year:
- 2006
- Pagination:
- DVD
- Place of publication:
- Rochester
Professors Chris Oliver and Glynis Murphy, the UK’s leading authorities on self-injurious behaviour, join forces to offer clear and practical information and advice to families caring for individuals with severe learning disabilities. In this 45 minute video/DVD you will also meet Laura and Tobias, learn how their self-injurious behaviour has affected their lives and the lives of their families, and how some simple, straightforward steps can help to reduce self-injurious behaviour. The video/DVD emphasizes understanding the causes and the function of the self injurious behaviour, and addresses issues such as the use of medication and protective devices. Produced primarily for family carers, this resource also provides a useful introduction to any professionals who may encounter self-injurious behaviour in individuals with severe learning disabilities
The HARC challenging behaviour project: report 4: experience and views of parents caring for people with learning disabilities living in the family home
- Authors:
- KIEMAN Chris, et al
- Publisher:
- University of Manchester. Hester Adrian Research Centre
- Publication year:
- 1997
- Pagination:
- 31p.
- Place of publication:
- Manchester
In 1994 the Department of Health commissioned the Hester Adrian Research Centre at the University of Manchester and the Centre for Health Economics at the University of York to undertake a series of projects to investigate aspects of challenging behaviour shown by people with learning disability. These projects extended workv previously undertaken at the Hester Adrian Research Centre. In particular they built upon a study of the prevaence of challenging behaviour in the areas served by seven District Health Authorities in the North West of England in 1988.
Commentary on a “unified approach to behaviours that challenge”: getting it right? A family carer perspective
- Author:
- COOPER Vivien
- Journal article citation:
- Tizard Learning Disability Review, 25(3), 2020, pp.153-157.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide an individual family-carer perspective on navigating the complex child, adult, education, health and social care systems focussing on what might be needed to get the right support in the right place at the right time for individuals with learning disabilities who display behaviour that challenges. Design/methodology/approach: This is a conceptual analysis, drawing on lived experience, policy and practice. Findings: Policy and best practice advocate a holistic, person-centred, outcome-focussed approach to supporting individuals with learning disabilities whose behaviour challenges, but the existing complex multiple organisational structures are not conducive to delivering this. Making the system work for people requires focussed leadership across all levels to co-ordinate and align the component parts. It is certainly possible to achieve, but it is currently unclear who will take responsibility for making this happen. Originality/value: Families are often the only constant in the lives of people with disabilities. This commentary highlights what is important to and for families when attempts are made to get the right support in the right place at the right time for individuals with learning disabilities who display behaviour that challenges. (Edited publisher abstract)
Commentary on a “unified approach to behaviours that challenge”: my freedom – the perspective of people with learning disabilities
- Authors:
- CHAPMAN Steve, et al
- Journal article citation:
- Tizard Learning Disability Review, 25(3), 2020, pp.145-151.
- Publisher:
- Emerald
Purpose: As self-advocate leaders, the authors aim to present the perspective of people with learning disabilities on “Behaviour that Challenges: A Unified Approach”. Building on firsthand accounts which reveal compassion and cruelty in the health-care system, the authors propose ways of working, which confirm and add to the thinking in “A Unified Approach”, especially “Capable Environments”. Design/methodology/approach: To ensure integrity, the authors engaged contributors with lived experience of admission to secure care after acting in ways that put themselves or others at risk. The authors included the perspective of people whose severe learning disabilities limit them to few or no words as best they could by interviewing their parents. The authors were supported and advised in the writing of this commentary while retaining full control throughout. Findings: While recognising compassionate care, the authors suggest the provider’s power over a person’s life is a central reason for the care system’s vulnerability to the cruelty evident in firsthand accounts. The authors propose practical ways to offset this power. Firsthand accounts suggest the key features of capable environments are communication, valuing families and developing a valued, caring, well-trained workforce. Lived experience in workforce training and peer-support to individuals offer great potential to transform outcomes. Originality/value: The perspectives of diverse contributors with learning disabilities bring lived experience insight to the challenges of “behaviour that challenges”. The authors aim to add value by blending lived experience viewpoints with the emotion of firsthand accounts of care. The insights of lived experience – too often a marginal consideration in health-care design – are presented here as central to care that fully achieves what people want and need. (Edited publisher abstract)
Experiences of parents who support a family member with intellectual disability and challenging behaviour: “This is what I deal with every single day”
- Authors:
- DREYFUS Shoshana, DOWSE Leanne
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 45(1), 2020, pp.12-22.
- Publisher:
- Taylor and Francis
Background: Research into parents’ experiences of living with a family member with intellectual disability and challenging behaviour does not specifically address what parents say about themselves and their lives. This paper explores “I-statements” parents made about their day-to-day actions in life with their family member. Methods: Semi-structured interviews were conducted with 26 parents, of which 91% were mothers. “I-statements” were analysed using process analysis from systemic functional linguistics and thematic analysis. Results: “I-statements” showed that parents enacted a range of complex and sometimes extreme activities across a variety of life domains. Parents spoke about: managing relationships with services; educating themselves and others; seeking support; resisting poor service delivery; assisting others; and making both small and significant changes. Conclusion: The paper provided insights into the complex lives of these families and offered observations on the implications of the potential misalignment between the supports the data suggests are needed and those that, in reality, are available to them. (Edited publisher abstract)
Training a family in physical interventions as part of a positive behaviour support intervention for challenging behaviour
- Authors:
- HEWITT Olivia, KEELING Natalie
- Journal article citation:
- British Journal of Learning Disabilities, 44(2), 2016, p.159–166.
- Publisher:
- Wiley
Between 10% and 15% of people with a learning disability have behaviour that challenges others, and half of these people live within the family home (Emerson et al., Research in Developmental Disabilities, 2001; 22, 77). Current best practice in managing challenging behaviour combines person-centred planning, functional analysis, and proactive and reactive strategies, and teaching alternative skills to manage behaviour in a way that keeps both service user and carers safe (positive behaviour support). This study considers the case study of a young man who lives with his parents in their family home. Reactive strategies including physical interventions have been taught to the family which has allowed them to manage their son's behaviour effectively and allowed him to remain living with his family. Frequency and intensity of challenging behaviour reduced, and family confidence in managing challenging behaviour was increased. (Publisher abstract)
‘He's hard work, but he's worth it’. The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: a meta-synthesis of qualitative research
- Authors:
- GRIFFITH G.M., HASTINGS R.P.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(5), 2014, pp.401-419.
- Publisher:
- Wiley
Background: This review synthesises the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services. Materials and Methods: A thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis. Results: Five primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes. Conclusions: Carers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour. (Edited publisher abstract)
Living with a child whose behaviour is described as challenging
- Authors:
- DAVIES Kerri, HONEYMAN Gemma
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(2), 2013, pp.117-123.
- Publisher:
- Emerald
Families of those with intellectual disabilities and challenging behaviour often do not receive the practical support, training and information they need. As a result living with a child with behaviour described as challenging can be a profoundly hard and isolating experience. This paper aims to discuss the impact of challenging behaviour on families who have a child with intellectual disabilities. The experiences of three families are used to highlight the impact of challenging behaviour and this is supported by existing literature. Difficulties families experience include physical and mental health problems, sleep disturbance, social isolation, financial hardship and unemployment. Strategies families use to overcome difficulties are explored including seeking information and practical support and building family resilience. Positive aspects of living with a child whose behaviour is described as challenging is a topic that is often neglected in the academic literature, but caring can result in becoming a stronger family unit, increased personal growth and forming new friendships. The paper concludes with practical implications for professionals supporting families who live with a child whose behaviour is described as challenging. Families need information, training and practical support to fulfil their caring role effectively while maintaining the wellbeing of the family unit. The paper stresses that all have a role to play in supporting families, all can make a positive difference, and that people must be more proactive in identifying and meeting the needs of families. (Publisher abstract)
Challenging behavior training for teaching staff and family carers of children with intellectual disabilities: a preliminary evaluation
- Authors:
- GORE Nick, UMIZAWA Hiromi
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 8(4), December 2011, pp.266-275.
- Publisher:
- Wiley
While training programmes on challenging behaviours have often been offered to teaching staff and family carers of children with intellectual disabilities (ID), they have rarely been offered to both at the same time. This study evaluated a brief training programme delivered to both teaching staff and family carers, and examined the differences in outcomes between the two groups. Participants included 49 family carers and 33 teaching staff recruited from five schools for children with severe to moderate intellectual disabilities in the southeast of England. The training was divided into two segments. The content was the same, but in the first segment, one was held for teaching staff and one for parent carers. In the second segment, both groups met together. After the first segment, all participants completed a related homework task before joining each other for the second segment. Significant positive changes were found regarding ratings of challenging behaviour, participants' causal attributions, and emotional reactions following the training. Some differences were found regarding outcomes for teaching staff vs. family carers. The authors concluded that teaching staff and family carers could benefit from receiving combined training to support challenging behaviour.
Working out of the box: an evaluation of short breaks and intensive support services to families and disabled young people whose behaviour is severely challenging: summary report
- Author:
- McCONKEY Roy
- Publisher:
- Action for Children
- Publication year:
- 2011
- Pagination:
- 46p.
- Place of publication:
- London
This summary report brings together the main findings from an evaluation of three Action for Children services in Cardiff, Glasgow and Edinburgh. These services provide specialist short breaks and intensive support services to families and learning disabled young people with severely challenging behaviours. The report provides a literature review and a detailed analysis of the model of service that has evolved at the three locations. An overview of staff employed by the services shows that most have some form of higher qualification and access to regular training. Families using the service tend to be from poor backgrounds, with many being lone parent families, and many living in rented accommodation and dependent on benefits. More boys than girls accessed the services. Most were teenagers and most attended special schools, with many also being diagnosed with autism. About a quarter were dependent on others for feeding, dressing and toileting. Key workers rated the changes in children and families over the preceding six months and reported that a sizeable proportion had shown some improvements in communication and personal care. Interviews with stakeholders involved with a sample of children revealed a very positive evaluation of the services. The children benefitted from participating in a range of activities, but their social inclusion remains limited. The report concludes with recommendations on the future developments of these services.