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Learning about self-advocacy from life history: a case study from the United States
- Author:
- TRAUSTADOTTIR Rannveig
- Journal article citation:
- British Journal of Learning Disabilities, 34(3), September 2006, pp.175-180.
- Publisher:
- Wiley
This article takes an historical look at self-advocacy and examines how life history work can be helpful to further an understanding of the development, context and importance of the self-advocacy movement. It uses the live history of one individual, Tom Allen, who was born in a small town in the state of New York in 1912, to explore the different forms and meanings of self-advocacy. Tom Allen lived in institutions for 60 years. In his life history he describes how he could speak up about his wishes, the people who helped him speak up and how he was able to move out of the institution.
Challenging the monologue about silent sterilization: implications for self-advocacy
- Authors:
- ROETS Griet, ADAMS Marie, Van HOVE Geert
- Journal article citation:
- British Journal of Learning Disabilities, 34(3), September 2006, pp.167-174.
- Publisher:
- Wiley
This is the story of Marie, a woman with 'learning difficulties' who lives in Belgium. It is told by Marie and her advocate, Griet. In 2002, Marie was told she had to have a sterilization. The professionals told Marie and her mother the operation was essential. Marie did not know what the operation was because the professionals did not explain what it meant nor did they talk through this difficult issue with her. She discussed it with Griet; Marie did not want it because it was not necessary. They agreed to refuse it. They conclude that sterilization has to be a choice made by the woman concerned and not forced on someone because they are labelled as having 'learning difficulties'.
Building bridges? The role of research support in self-advocacy
- Authors:
- CHAPMAN Rohhss, McNULTY Niall
- Journal article citation:
- British Journal of Learning Disabilities, 32(2), June 2004, pp.77-85.
- Publisher:
- Wiley
The Carlisle Research Group 'Co-op' is a group which aim to carry out 'person-led' research in a way that changes ideas and makes life better for people with learning disabilities. Six of the eight members in the group are labelled as having a learning difficulty, the two other people act in a role of involved support. In this article the members of the group with a support role explain what they do, highlight the changes occurring within the group, and to open up a debate as to the research support role in the self-advocacy movement. The article also includes a case study on the process of writing an article for a journal article.
Speaking up, speaking out: pathways to self advocacy; handbook
- Authors:
- LARCHER Janet, et al
- Publisher:
- Communication Matters
- Publication year:
- 1998
- Pagination:
- 61p.
- Place of publication:
- Oxford
Aims to help people speak up and speak out for themselves, and provides guidance on how this can be facilitated. The handbook providing detailed information about advocacy and communicating with a person with severe communication difficulties. Each section of the handbook is accompanied by case studies which illustrate key issues and questions that are raised in the main text.
Speaking up, speaking out: pathways to self-advocacy; practical guide
- Authors:
- LARCHER Janet, et al
- Publisher:
- Communication Matters
- Publication year:
- 1998
- Pagination:
- 25p.
- Place of publication:
- Oxford
Aims to help people speak up and speak out for themselves, and provides guidance on how this can be facilitated. The guide contains key points in easily reproduced form for use as overheads and handouts in group training sessions. The Practical Guide has been developed for use by key communication partners to help build realistic advocacy plans for individuals whom they are supporting.
'I always do what they tell me to do': choice-making opportunities in the lives of two older persons with severe learning difficulties living in a community setting
- Authors:
- TREECE Ann, et al
- Journal article citation:
- Disability and Society, 14(6), November 1999, pp.791-804.
- Publisher:
- Taylor and Francis
Presents a case study conducted to document the perceptions of two older adults with severe learning difficulties regarding their quality of life and their experience with choice-making in areas of life they identified as significant to them. Although the participants expressed overall satisfaction with their lives, they were not content with their choice-making opportunities. The findings are discussed in terms of theories proposed in current literature on the subject.
Social work practice and intellectual disability
- Authors:
- BIGBY Christine, FRAWLEY Patsie
- Publisher:
- Palgrave Macmillan
- Publication year:
- 2010
- Pagination:
- 238p., bibliog.
- Place of publication:
- Basingstoke
Provides an understanding of the knowledge, values and skills required for effective practice in the field of learning disability and the opportunity for multidisciplinary collaboration for social change. The book focuses on adults with learning disabilities and their families. Topics include: the changing definitions of learning disability; theory and practice of working with adults with learning disabilities and their families; assessment, planning, monitoring and review; social inclusion and participation. Includes numerous case studies and discussion points.