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LDIF provides opportunities for people with learning disabilities
With funding from the Welsh Government's Integrated Care Fund Pembrokeshire Association of Voluntary Services (PAVS) co-produced the Learning Disabilities Innovation Fund (LDIF) with support from the Dream Team and Pembrokeshire People First (PPF). The Learning Disabilities Innovation Fund (LDIF) was established in 2021, providing an opportunity for people with learning disabilities to come up with ideas for new activities and services and access funding to test them out in practice. LDIF offered an opportunity for third sector organisations and statutory bodies to apply for funding to run a truly co-produced project with and for people with learning disabilities across Pembrokeshire, Carmarthenshire and Ceredigion. The key priorities for the Fund were: all projects must be co-devised, produced and delivered by people with learning disabilities; all projects need to be innovative; all projects need to specifically take forward the aims of the LD Charter. (Edited publisher abstract)
Co-producing in Rhondda Cynon Taf
The RCT Learning Disability Transformation Programme is a project within Rhondda Cynon Taf Council. It is aimed at changing and improving the way learning disability and autism services are designed and delivered within the county. The project has a Project Board with representatives from all key local stakeholders, which is led by a learning-disabled person. The Board oversees the work of the various workstreams within the project, one of which is solely focussed on ensuring co-production is embedded throughout the project. The workstreams all have representation from various council departments, third sector organisations, private sector organisations, interest groups and people with lived experience. (Edited publisher abstract)
Cynon Taf County Borough Council’s My Day My Way project
Myday Myway is a new way of delivering learning disability services by Rhondda Cynon Taf County Borough Council. An evaluation report has been done differently. People with learning disabilities in the area, who draw on day provision services, have done the research and made the evaluation report in the form of a really accessible film. (Edited publisher abstract)
Patients with learning disabilities who lack capacity detained under the Mental Health Act in the UK: a case study
- Authors:
- SAWHNEY Indermeet, ZIA Asif, GATES Bob
- Journal article citation:
- British Journal of Learning Disabilities, 45(2), 2017, pp.138-141.
- Publisher:
- Wiley
Background: In the UK, the Mental Health Tribunal is a long-established safeguard for patients detained under the Mental Health Act. This gives such patients an effective appeal mechanism to ensure legal protection of their liberty. This act contains sections that allow for civil detention in the case of mental disorder. The right to apply to the tribunal against such detention is underpinned by the right to liberty under Article 5 of the European Convention of Human Rights (ECHR). Some patients with learning disabilities may lack capacity and the ability to challenge their detention. Method: This article presents a case study of a woman with Down's syndrome and severe learning disabilities. Whilst this woman was detained under the Mental Health Act, she could have applied for a review of her detention to the Mental Health Tribunal within 14 days. She did not do so because she lacked capacity to instruct solicitors. Subsequently, as a result of appeal, the case proceeded through English and European judicial review. Results: The European Court of Human Rights, in the case of MH v UK (2013), has ruled that the appeals procedure for patients without capacity detained under Section 2 of the Mental Health Act is not compatible with Article 5(4) of the European Convention of Human Rights. The European Court has ruled that special procedural safeguards are required to enable this cohort of patients to exercise their rights guaranteed by Article 5(4). Conclusions: Responsible clinicians [treating consultant psychiatrists] need to ensure that all patients detained under section 2 of the Mental Health Act have an assessment of their capacity to apply to the tribunal. There need to be systems in place to alert hospital managers when a patient lacks capacity to apply for a tribunal. Hospital managers should request the Secretary of State to apply for a tribunal in these instances. Knowledge of this ruling is relevant to informing the practice of other interdisciplinary healthcare professionals working with such patients. (Publisher abstract)
Personal stories from people with learning disabilities
- Journal article citation:
- Llais, 104, Autumn 2012, pp.3-5.
- Publisher:
- Learning Disability Wales
This article tells 5 personal stories of people with learning disabilities whose lives have been transformed through the support they have received. These personal stories provide a powerful way of showing how these services provide value for money. The services that are described include employment, leisure activities, independent living, housing associations, service user involvement in educating staff who work with people with learning disabilities, and even competing in the Special Olympics.
Establishing a context to reduce challenging behaviour using procedures from active support: a clinical case example
- Authors:
- TOOGOOD Sandy, et al
- Journal article citation:
- Tizard Learning Disability Review, 14(4), October 2009, pp.29-36.
- Publisher:
- Emerald
Client engagement increases substantially when staff teams implement active support. The impact of active support on challenging behaviour is less clear. This paper suggest that there are grounds for believing that active support procedures could in some cases neutralise environmental conditions known to evoke challenging behaviour. This paper uses Gemma as a case study for the techniques presented. A three-phase clinical intervention was implemented to increase engagement and reduce passive and challenging behaviour. In phase 1, staff were trained to deliver inviting activity-based instruction at eye level. In phase 2, activity support plans were introduced to increase client choice and control. In phase 3 staff used peer-monitoring procedures to consolidate the implementation. Staff behaviour and client outcomes were measured across the three phases of intervention and at follow-up. Results showed that staff provided warm and inviting activity-based instruction at eye level more frequently after participating in phase 1 on-site training. The proportion of activity-based interactions with choice increased when activity plans were introduced in phase 2, and engagement replaced challenging behaviour. Staff observations suggested changes were maintained over the short run, but observations indicated decay at 22 months. In conclusion, the data suggested that active support procedures can make challenging behaviour less likely by altering antecedent conditions that reliably evoke such behaviour, but without sustained effort, interventions are susceptible to decay.
Decisions, decisions – establishing a legal framework around decision making
- Authors:
- ELSMORE Susan, PICTON Alison
- Journal article citation:
- Community Living, 23(2), 2009, pp.20-23.
- Publisher:
- Hexagon Publishing
The first of two articles by SCIE staff on the Mental Capacity Act 2007 (MCA), this is an overview of key provisions relating to the practice of health and social care, by staff and unpaid carers, with people who have learning disabilities. Previously, there was no dedicated legislation on mental capacity in England and Wales and dependence on good practice and common law led to inconsistencies. MCA safeguards decision making by defining a legal framework which empowers people to make their own decisions, while people who lack capacity are protected by the framework’s flexibility to place them at the heart of decision making, managed by others. Equally important is MCA’s emphasis on planning ahead for when an individual might lack capacity, thereby ensuring their decision is honoured in the future. A lack of capacity can be caused by, stroke or brain injury, mental health problems, dementia, learning disabilities, substance misuse and confusion, drowsiness or unconsciousness because of an illness or it’s treatment. Five key principles of MCA, a two-stage functional test of capacity, ‘best interests’, new roles, bodies and powers such as LPAs (lasting powers of attorney), the Court of Protection and Deputies and the new criminal offence that is the wilful neglect or ill treatment of a person who lacks capacity and three case studies illustrating good practice within MCA are described.
Four of the best
- Author:
- DAVIES Shane J.
- Journal article citation:
- Llais, 88, Summer 2008, pp.16-19.
- Publisher:
- Learning Disability Wales
KeyRing is a housing and advisory support organisation that exists to enable members of its Living Support Networks to exercise choice in and take responsibility for their own homes. The author talks to four people who’s stories highlight how KeyRing helped to improve their lives.
Homes for people with learning disabilities and sight loss: a guide to providing safe and accessible environments
- Author:
- RNIB CYMRU
- Publisher:
- RNIB
- Publication year:
- 2016
- Pagination:
- 184
- Place of publication:
- London
This guide, provides advice on the design and refurbishment of supported housing schemes for people with sight loss and learning disabilities. It provides advice on lighting, colour and contrast, acoustics, wayfinding and signage, handrails, assistive technology, and accessible gardens and external areas. It also considers how well trained staff can maintain accessible environments. Photographs and case studies are used to illustrate good and poor practice examples of how to achieve an accessible environment. It has been developed to support housing providers to address the needs of people with learning disabilities and sight loss, improve their quality of life and support then to be as safe and independent as possible. (Edited publisher abstract)
Behaviour that challenges: planning services for people with learning disabilities and/or autism who sexually offend
- Authors:
- HOLLOMOTZ Andrea, et al
- Publisher:
- University of Leeds
- Publication year:
- 2018
- Pagination:
- 40
- Place of publication:
- Leeds
This briefing paper looks at what needs to be done to improve services for people with learning disabilities and/ or autism engage in sexually offending and risky behaviour. It draws on discussions from a seminar held by the University of Leeds, in collaboration with the Prison Reform Trust, The National Autistic Society and NHS Improvement. The seminar explored health and justice pathways for people with learning disabilities and/or autism who display sexually offending behaviour and also looked at service design and delivery, including practical examples and a ‘whole system’ approach. This paper provides background information on learning disabilities and autism, challenging behaviour and sexual offending and the different pathways that they may take, through the criminal justice, forensic or social care system. It also provides an overview of the legislative and policy framework that underpins these pathways, including how the Mental Health Act 1983 and the Transforming Care agenda shape current forensic pathways. The paper makes 13 key recommendations which relate to prevention and early intervention, contact with criminal justice services and further research. (Edited publisher abstract)