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Supporting people with learning disabilities who self-injure
- Author:
- HESLOP Pauline
- Journal article citation:
- Tizard Learning Disability Review, 16(1), January 2011, pp.5-15.
- Publisher:
- Emerald
Despite large amounts of research conducted on self-injury in people with learning disabilities, little has addressed the perspectives of those with disabilities, and what they view as most helpful. This article, citing results from the Hidden Pain project which examined the views of those with learning disabilities on their self-injury, reports on the support that people with learning disabilities who self-injure say they have found, or would find, helpful in relation to their self-injury. Themes that emerged from people with learning disabilities, including those who use little or no verbal communication, is that they want opportunities to communicate their feelings and to be listened to. The paper concluded that being open to listening and developing one's own communication skills was essential for supporters of people with learning disabilities who self-injure to help this group.
The knowledge people with learning disabilities and their carers have about psychotropic medication
- Authors:
- HESLOP Pauline, FOLKES Liz, RODGERS Jackie
- Journal article citation:
- Tizard Learning Disability Review, 10(4), October 2005, pp.10-18.
- Publisher:
- Emerald
Psychotropic medications are a treatment commonly used for people with learning disabilities. Legislation and guidance suggest that, for a person to give informed consent to treatment, they must have knowledge of the potential treatment. This study of 21 people with learning disabilities, and their carers and prescribers, living in four different regions of England, suggests that few of the people with learning disabilities were fully informed about their treatment. Many of their carers said that although they know how to administer the medication, they know little about why the person was taking it and what the implications might be. Despite this, people with learning disabilities made the general assumption that carers would, or should, know everything about their medication. The current provision of information to people with learning disabilities and carers was found to be poor. For key strategies identified in supporting people with learning disabilities in obtaining information about medication were spending more time providing and reiterating key information, providing accurate, up-to-date, accessible information about medication, providing training for carers in wider aspects of medication usage, and tailoring information to each person's individual needs.