Search results for ‘Subject term:"learning disabilities"’ Sort:
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A comparative study of stress and unmet needs in carers of South Asian and white adults with learning disabilities
- Authors:
- DEVAPRIAM John, et al
- Journal article citation:
- Ethnicity and Inequalities in Health and Social Care, 1(2), December 2008, pp.35-43.
- Publisher:
- Emerald
A sample of 742 informal carers was selected from the Leicestershire Learning Disability Register. Data on carers' and subjects' demographic details, stress levels and unmet service needs were analysed and compared using chi-square tests and logistic regression analyses. Substantial differences were observed between the two groups. Carers of South Asian adults with learning disabilities reported significantly higher levels of care provision and unmet needs. Major stress was reported in 23% of carers. This was more common in carers with poor health, in those caring for younger adults, carers of adults with psychological symptoms, and in those with an expressed need for moral support or respite care. Stress is common among informal carers of adults with learning disabilities and inequalities, in reported care given and unmet needs, exist between carers of South Asian and white adults. Practitioners need to be aware of factors associated with stress when assessing carers in this population.
Social care for adults aged 18-64
- Authors:
- IDRISS Omar, ALLEN Lucinda, ALDERWICK Hugh
- Publisher:
- Health Foundation
- Publication year:
- 2020
- Pagination:
- 48
- Place of publication:
- London
An analysis of publicly available data to understand the social care needs of younger adults in England, how they differ from those of older people, and how these needs are changing. The analysis explores: system context - what the social care system for younger adults looks like; care needs - including data on self-reported disability and levels of care needs; system performance - how well the social care system cares for younger adults and their carers; and outcomes - including data on the quality of life for service users and unpaid carers. The document reports that people aged 18–64 with learning disabilities, mental health problems, and other social needs make up around a third of care users accessing long-term support in England and over half of local authority spending on social care. Key findings from the analysis show that: the number of younger adults with care needs is growing but the number of people accessing public support has fallen; quality and outcomes for younger adults accessing social care vary; workforce problems are chronic across the social care system, with learning disability nursing courses struggling to attract students. Unpaid carers of younger adults also experience worse outcomes in some areas than carers of older people, for example they are more less likely to be satisfied with services and more likely to report financial difficulties. The report concludes that policies to reform adult social care will not be successful unless they understand and address the needs of younger adults. The report identifies five implications for policy based on the data in the analysis. (Edited publisher abstract)
Transition for teenagers with intellectual disability: carers' perspectives
- Authors:
- BHAUMIK Sabyasachi, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 8(1), March 2011, pp.53-61.
- Publisher:
- Wiley
Teenagers with intellectual disabilities have significantly more health problems than the rest of the population and many encounter difficulties accessing the services they need during the transition from children's to adult services. This multidisciplinary, interagency study was undertaken in Leicester city, Leicestershire County and Rutland County. Its main aims were to estimate the number of teenagers with intellectual disability between the ages of 16 and 19 and their levels of mental and physical health care needs, to identify their carers' perceptions of the transition process to adult services, and to make recommendations on addressing unmet needs. A mapping exercise was used to identify teenagers with diagnosed intellectual disabilities, and face-to-face semi-structured interviews were carried out with the carers of 24 teenagers. The article describes the study and presents results, including demographic characteristics, the pattern of disabilities, a comparison of health problems of Caucasians and South Asian teenagers, and key issues reported by carers. Most of the teenagers had significant levels of intellectual disabilities, multiple problems, required constant supervision, and were using a range of health, social care and education services. However, their carers still reported unmet needs and 50% had difficulty in accessing services. Different patterns of service use and unmet needs were found among the ethnic groups identified in the sample. Carers were concerned about lack of information concerning transition planning and adult services and wanted earlier, more coordinated transition planning, and the researchers noted the need for quality information and validated standardised tools that could be used for transition planning.
Family carers of adult persons with intellectual disabilities on the island of Ireland
- Authors:
- BARRON Steve, McCONKEY Roy, MULVANY Fiona
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 3(2), June 2006, pp.87-94.
- Publisher:
- Wiley
Many families provide lifelong support to their relative with an intellectual disability. However, relatively little information is available for national populations on the characteristics of the people for whom these families care and the supports they receive or need. A database of all persons in receipt of intellectual disability services has been operating in the Republic of Ireland since 1995 and records details of those living with family carers. In Northern Ireland, regional databases provide similar information. Using both sources, data were obtained on over 12,500 people living with family carers; half of whom lived with two parents, around 30% with a lone parent, and just under 20% with another relative. More people in Northern Ireland were identified as living with family carers, which was attributed mainly to less available residential alternatives. Only a minority of carers received respite breaks and domiciliary supports although higher proportions required them. The authors conclude that family care arrangements have received relatively little attention within government policy making, and hence service provision has been largely reactive. Future research should focus on the changing needs of carers over time and how they can be better supported in their role.
Are we neglecting the needs of older people?
- Author:
- THOMPSON David
- Journal article citation:
- Community Living, 14(2), October 2000, pp.22-23.
- Publisher:
- Hexagon Publishing
The author raises his fears that unless the needs of older people with learning difficulties are specifically targeted, they will be neglected in the National Learning Disability Strategy.
Developmental psychiatry - insights from learning disability
- Author:
- HOLLINS Sheila
- Journal article citation:
- British Journal of Psychiatry, 177, September 2000, pp.201-206.
- Publisher:
- Cambridge University Press
This article aimed to review the speciality of the psychiatry of learning disability and how it is currently practised in the UK. Clinical, service, research and educational issues in learning disability psychiatry are reviewed and illustrated. Key issues which emerge in all four areas include the importance of communication skills, consultation with users and carers, professional education and partnership. The psychiatry of leaning disability is a complex, varied and stimulating branch of psychiatry with a strong developmental focus.
Quantifying the needs and looking towards the future: a survey of health and social-care needs of people with learning difficulties living in Bristol and district
- Authors:
- RUSSELL Oliver, et al
- Publisher:
- University of Bristol. Norah Fry Research Centre
- Publication year:
- 1996
- Pagination:
- 145p.,tables,bibliog.
- Place of publication:
- Bristol
Research study looking at: uptake of services and patterns of service use by people with learning difficulties; carers' views on the support services available to them; the extent of unmet needs; the vulnerability of service users; carers at risk; gatekeeping and targeting; predicting overall demand for health and social care; and interpretation and implications of the research.
Care and treatment?: supporting children with complex needs in healthcare settings
- Authors:
- STALKER Kirsten, et al
- Publisher:
- Pavilion,|Joseph Rowntree Foundation
- Publication year:
- 2003
- Pagination:
- 91p.
- Place of publication:
- Brighton
Significant numbers of children and young people with complex physical, medical and cognitive health needs may be spending unnecessarily long periods of time in hospital and other healthcare settings because inadequacy of community-based resources is preventing their discharge. This report details the findings of research conducted in England and Scotland to identify how many children with complex support needs are spending longer than one month in healthcare settings in Scotland and England, how and why they are in hospital, why they have not been discharged home or to appropriate alternative community-based facilities, and how well the hospital or healthcare setting is meeting their emotional, social and educational needs. It finds that many of these children could and should be discharged but are not, for a variety of reasons: primarily the lack of appropriate resources in the community and poor discharge planning processes, coupled with the inability of their families to manage their care and supervision without intensive support. Hospitals and healthcare settings in many cases are not meeting their needs and these children are being denied the protection offered by UK legislation governing children’s rights and welfare. The researchers conclude that much more should be done by health authorities and health boards, by NHS trusts, hospitals and community services, and by social services and education departments to ensure these children receive the same standards of care, treatment and protection accorded to other children, and that inappropriate admissions and such lengthy stays should be avoided at all costs.
Providing services to Asian Americans with developmental disabilities and their families: mainstream service providers' perspective
- Authors:
- CHOI Keum-Hyeong, WYNNE Martha Ellen
- Journal article citation:
- Community Mental Health Journal, 36(6), December 2000, pp.589-595.
- Publisher:
- Springer
This survey investigated the opinions and perceptions of 44 mainstream US social service providers regarding barriers to Asian Americans with developmental disabilities and their families receiving appropriate supportive services. Six main barriers were identified: language and communication difficulties; lack of knowledge about service delivery system; perceived cultural differences; being 'a minority within a minority'; individual differences between cultural and family groups; lack of resources to meet needs within the family. Implications of the barriers are discussed.
In their own right: the support needs of family carers of people with learning difficulties
- Author:
- WILLIAMS Val
- Journal article citation:
- Mental Health and Learning Disabilities Care, 3(3), November 1999, pp.94-95.
- Publisher:
- Pavilion
Community care depends heavily on the family carers who provide day to day care for the majority of people with learning difficulties. The Carers Act 1995 was intended to acknowledge their own needs for support from health and social services. However, new research suggests services may still be neglecting their needs. This paper argues that support for carers is an essential element of community care and should be prioritised in joint health and social services planning.