Search results for ‘Subject term:"learning disabilities"’ Sort:
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Dementia care in England and the social model of disability
- Authors:
- GILLIARD Jane, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(4), November 2005, pp.571-586.
- Publisher:
- Sage
This article reviews the development of a social model of disability and considers whether or not it provides a helpful framework for dementia care. The social model has not yet fully included cognitive impairment, although considerable work has been carried out with regard to learning disability. By applying this model to dementia care, those who surround people with dementia can review the impact that they as 'non-demented' people have on others; can reconsider the value of hearing and responding to personal experiences; can reframe the focus to consider abilities instead of losses; and can better understand the impact of public policy. The article also considers the present shortcomings of a disability model in terms of how it relates to dementia care and concludes with some thoughts for future consideration. The article draws heavily on the findings of a research project conducted by Dementia Voice and the University of the West of England, Bristol, UK to consider the needs of two sub-groups of people with dementia - younger people (i.e. those under the age of 65) and those from minority ethnic groups.
The knowledge people with learning disabilities and their carers have about psychotropic medication
- Authors:
- HESLOP Pauline, FOLKES Liz, RODGERS Jackie
- Journal article citation:
- Tizard Learning Disability Review, 10(4), October 2005, pp.10-18.
- Publisher:
- Emerald
Psychotropic medications are a treatment commonly used for people with learning disabilities. Legislation and guidance suggest that, for a person to give informed consent to treatment, they must have knowledge of the potential treatment. This study of 21 people with learning disabilities, and their carers and prescribers, living in four different regions of England, suggests that few of the people with learning disabilities were fully informed about their treatment. Many of their carers said that although they know how to administer the medication, they know little about why the person was taking it and what the implications might be. Despite this, people with learning disabilities made the general assumption that carers would, or should, know everything about their medication. The current provision of information to people with learning disabilities and carers was found to be poor. For key strategies identified in supporting people with learning disabilities in obtaining information about medication were spending more time providing and reiterating key information, providing accurate, up-to-date, accessible information about medication, providing training for carers in wider aspects of medication usage, and tailoring information to each person's individual needs.
Modern times: an ethnographic study on the quality of life of people with a high support need in a Flemish residential facility
- Authors:
- de WAELE Isabel, Van HOVE Geert
- Journal article citation:
- Disability and Society, 20(6), October 2005, pp.625-639.
- Publisher:
- Taylor and Francis
This ethnographic study shows the impact of the care system on clients’ and staff’s life experiences, with the clear distance between these two groups as one of the core issues. Together with a dominant care approach and a well established but subtile system of control, it makes them function in systems that are characterized by an oppressing care culture. Learned helplessness prevents both groups of acting upon quality of life outcomes. The idea of supporting a life of good quality through merely improving these traditional care systems should therefore be considered with caution, and real alternatives should be considered to open this barrier of the oppressing care culture.
In-patient psychiatric care: what we can learn from people with learning disabilities and their carers
- Authors:
- SCIOR Katrina, LONGO Silvia
- Journal article citation:
- Tizard Learning Disability Review, 10(3), July 2005, pp.22-33.
- Publisher:
- Emerald
This article summarises results from a study into the experiences of adults with learning disabilities who were admitted for in-patient psychiatric care. Their carers' views were also investigated. Differences between generic and specialist provision are considered, and implications for service delivery are discussed. Generic services in particular would appear in need of considerable improvements if they are to meet the needs of people with learning disabilities in line with current policy considerations. Recommendations for improvement include greater sensitivity of staff to the needs of this group, increased provision of accessible information about treatment options and medication, and more careful consideration of the need to involve regular carers during the admission.
Carers' guide to physical interventions and the law: information and advice for parents, carers and care workers supporting children, young prople and adults with learning disabilities
- Authors:
- LYON Christina M., PIMOR Alexandra
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 56p.
- Place of publication:
- Kidderminster
Knowing how and when to use physical interventions in an ethical, safe and legal way is a key issue for many parents and carers of children and adults with learning disabilities and challenging behaviour. The "Carers' guide to Physical interventions and the law" provides clear information and advice in this area, and includes a range of case studies and definitions of key terms. It draws on a new BILD (British Institute of Learning disabilities) report "Physical Interventions and the Law" for lawyers, practitioners and parents
Your guide to: April deadlines
- Author:
- GEORGE Mike
- Journal article citation:
- Care and Health Magazine, 29.03.05, 2005, pp.30-31.
- Publisher:
- Care and Health
April 1st is often the date on which all or part of legislation or programmes are implemented. The author provides an overview of changes to look out for on 1 April 2005. Provides details on Carers (Equal Opportunities) Act 2004, Carers' Grant, Children Act 2004, Commission for Social Care Inspection (CSCI), Domestic Violence, Crime and Victims Act 2004, Learning Disabilities Development Fund, Protection of title of social workers, and changes in the sentencing of offenders.
Caregivers as managers of subjective wellbeing: a homeostatic perspective
- Author:
- CUMMINS Robert A.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(4), December 2005, pp.335-344.
- Publisher:
- Wiley
This paper proposes that the adequacy of service delivery and caregiving to people who are disabled should be assessed using two criteria. One is the objective circumstance of living, which should be at a standard acceptable to the community at large. The other is a level of subjective wellbeing (SWB) within the normal range. This latter criterion is based on an understanding that SWB is homeostatically managed to lie normally within a narrow range of values. Results found that people who have a disability are more likely than usual to have a fragile homeostatic system because of the additional life challenges imposed by their disability. It concludes that the role of a caregiver is to provide resources and protection against strong threats to homeostasis, thereby ensuring that the person in their care has a normal-range level of SWB.
A comparison of reports of caregiver burden between foster family care providers and staff caregivers in other settings: a pilot study
- Authors:
- MCCALLION Philip, NICKLE Tara, McCARRON Mary
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(3), August 2005, pp.401-412.
- Publisher:
- Sage
There has been increasing concern about the impact of dementia symptoms on the lives and on the care being provided for persons with intellectual disability (ID) in out-of-home settings. One such setting that has received little attention is foster family care homes. These settings in the USA replicate family living and while some supports and resources are provided, they are not designed to meet intensive care needs. As a preliminary step in understanding family experiences and to expand the range of interest in Alzheimer’s disease (AD) in persons with ID beyond traditional out-of-home settings, a pilot study was initiated that included aging persons with ID and symptoms of AD who were living in foster family care settings in two regions of New York State as well as more traditional out-of-home care subjects. Comparisons of matched samples on subjective and objective burden measures suggest that there are few differences in experiences. The limitations of these findings are considered and recommendations made for future, related research.
Planning ahead: meeting the needs of older people with intellectual disabilities in the United Kingdom
- Authors:
- HATZIDIMITRIADOU Eleni, MILNE Alisoun
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(3), August 2005, pp.341-359.
- Publisher:
- Sage
This article aims to review existing evidence regarding the older population with intellectual disabilitiesand their family carers, with a view to highlighting their health and social care needs and exploring the policy and service context of their care. A particular focus is on identifying the core elements of effective service planning and development. The focus of the article is the UK, but the issues explored have wider relevance particularly in western societies.
The nature and extent of help given to women with intellectual disabilities to manage menstruation
- Authors:
- RODGERS Jackie, LIPSCOMBE Jo
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 30(1), March 2005, pp.45-52.
- Publisher:
- Taylor and Francis
Menstruation has been shown to be problematic for many women with intellectual disabilities. There has been a greater focus on menstrual suppression or elimination than on help and training to manage menstrual care successfully. A cross-sectional questionnaire survey was conducted in England to investigate the help and training currently given to women with intellectual disabilities. Results found 29 percent of the women had never been given the opportunity to learn how to manage their own menstrual care. Where someone had tried to teach the woman, this was most often her mother. Carers were giving considerable amounts of assistance with menstrual care, although some of the women with more profound disabilities were able to manage menstrual care independently. The authors argue that all women with intellectual disabilities should have the chance to manage or assist with their own menstrual care, backed by a strategic approach to menstrual education and support.