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Sharing social care's best kept secret: Growing Shared Lives: a practical guide
- Author:
- SHARED LIVES PLUS
- Publisher:
- Shared Lives Plus
- Publication year:
- 2022
- Pagination:
- 9
- Place of publication:
- Liverpool
A toolkit to help commissioners, directors, and heads of service who want to grow Shared Lives and offer more personalised, strengths-based adult social care. Shared Lives is a community-based service that offers accommodation and support to adults with learning disabilities and other social care needs. It can offer long-term accommodation, where the person with support needs lives with the carer in the carer's home as part of their family and community life. The evidence suggests that Shared Lives is cost-effective, saving between £8k and 30k per annum, depending on the person's support needs and local alternative services. The briefing is centred on a desk-based review of recent evaluations and evidence, along with interviews and workshops with stakeholders from across adult social care. Lessons from local authorities with experience of the scheme cover: committed leadership; develop strong links with transitions teams; align housing strategy with Shared Lives growth; regional collaboration; effective commissioning; making the case for investment; embedding Shared Lives into business-as-usual; ensuring carers' fees are reviewed; ensuring there are sufficient carers' breaks provision; developing champions; targeted communications and recruitment. (Edited publisher abstract)
Joint position statement on carers with learning disabilities from the Princess Royal Trust for Carers, Crossroads Care, Mencap, the National Family Carer Network, Who Cares for Us? and Respond
- Authors:
- PRINCESS ROYAL TRUST FOR CARERS, CROSSROADS CARE
- Publisher:
- Princess Royal Trust for Carers
- Publication year:
- 2010
- Pagination:
- 4p.
- Place of publication:
- Woodford Green
This easy read joint position statement was created to help organisations who help carers with learning disabilities to work better together and to help other people to understand the lives of carers with learning disabilities. Using brief bullet points the statement describes what a carer with a learning disability is; explains why it is difficult to know how many carers with learning disabilities there are; what they want; how they could be better supported; and the organisations that currently support them.
When carers need caring
- Author:
- WILLIAMS Corin
- Journal article citation:
- Community Care, 7.6.07, 2007, pp.32-33.
- Publisher:
- Reed Business Information
When people with learning disabilities have care duties thrust upon them they can become isolated and distressed. The author looks at how they can be better supported and highlights the work of a national network set up by The Who Cares for Us? campaign.
Being a witness: helping people with learning disabilities who go to court: a guide for carers
- Author:
- ENABLE Scotland
- Publisher:
- Scotland. Scottish Executive
- Publication year:
- 2006
- Pagination:
- 32p.
- Place of publication:
- Edinburgh
This booklet is aimed at carers and covers how to help adults with learning disabilities who have been asked to be a witness in a criminal court case or at a children’s hearing court case. An adult witness is someone aged 16 or over. It contains information that informal carers, care workers and advocacy or other staff may find useful before, during and after the court case. The court process and the people present are explained, and what a carer can do in advance, on the day and afterwards is outlined.
No box to tick: a booklet for carers of people with learning disabilities
- Author:
- SWINTON John
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2004
- Pagination:
- 16p.
- Place of publication:
- London
Through two research projects, people with learning disabilities indicated the importance of spirituality in their lives. Services rarely see it as part of their role to support people in meeting their spiritual and/or religious needs. This booklet asserts that this could be seen as a denial of the human rights of people with learning disabilities.
Shared care in Sheffield
- Author:
- MILLER Alison
- Journal article citation:
- Community Care, 13.12.01, 2001, p.42.
- Publisher:
- Reed Business Information
Reports on a support scheme in Sheffield for family carers over the age of 70, who care for a person with learning difficulties. The scheme won the carers category at this year's Community Care awards.
The significance of person‐centered care for satisfaction with care and well‐being among informal caregivers of persons with severe intellectual disability
- Authors:
- HAKOBYAN Liana, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 17(1), 2020, pp.31-42.
- Publisher:
- Wiley
Person‐centered care (PCC) delivery and co‐creation of care (establishing productive patient‐professional interaction) are expected to lead to better patient outcomes. Given the prominent role of informal caregivers in care delivery processes to persons with intellectual disabilities (PWID), they are expected to benefit from person‐centered care (PCC) and co‐creation of care as well. This study aims to identify the relationship between PCC, co‐creation of care and outcomes among informal caregivers of PWID. A cross‐sectional survey was conducted in 2015 among informal caregivers of PWID (45.8% parents, 44.1% siblings, 10.1% other family member). All PWID were living in residential homes of a long‐term care organization in the Eastern part of the Netherlands. For every PWID, the most important informal caregiver was invited to participate. Nine hundred and forty‐one invitations were sent out and 289 of them responded (31% response rate). Mean age of informal caregivers was 61.80 (SD 11.21; range 23–90) years old. About half of the respondents (55%) were female and 23% were single. Most of the respondents (83%) were providing informal care for more than 10 years and 29% provided informal care for 8 hours per week or more. Correlation analyses indicated that PCC and co‐creation of care were positively related to informal caregivers' satisfaction with care and their own well‐being. Regression analyses showed that PCC is associated with satisfaction with care (β = 0.60, p < 0.001) and well‐being (β = 0.22, p < 0.01) while controlling for background characteristics. Relational co‐creation was also positively associated with satisfaction with care (β = 0.15, p < 0.01) and well‐being (β = 0.20, p < 0.01). This study provided the first empirical evidence that PCC and co‐creation of care matter for satisfaction with care and the well‐being of informal caregivers of PWID. (Publisher abstract)
A shared life is a healthy life: how the Shared Lives model of care can improve health outcomes and support the NHS
- Author:
- SHARED LIVES PLUS
- Publisher:
- Shared Lives Plus
- Publication year:
- 2015
- Pagination:
- 11
- Place of publication:
- Liverpool
Explains how Shared Lives schemes support people with health needs, making use of community based solutions which can be more cost effective than traditional institutional care. In Shared Lives, an adult (and sometimes a 16/17 year old) who needs support and/or accommodation moves in with or regularly visits an approved Shared Lives carer, after they have been matched for compatibility. Together they share family and community life. Half of the 12,000 UK citizens using Shared Lives are living with their carer as part of a supportive household; half visit their carer for day support or overnight breaks. Shared Lives is also used as a stepping stone for an individual to possibly become fully independent. The report demonstrates that this approach can provide care at lower cost; improves people’s health; reduces pressure on health services; and reduces inequalities in health service provision. (Edited publisher abstract)
Supporting you and your family as you grow older together: a booklet for people with learning disabilities who live at home with an older family carer
- Authors:
- MAGRILL Dalia, PEARCE-NEUDORF Justin
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 30p.
- Place of publication:
- London
A practical booklet for people with learning disabilities who are cared for by an older person in their family. It aims to help the family live together now, and also to think about things that may need to be done in the future. This booklet provides: good questions to ask; things that can help you now and in the future; and some of the people who can help you. It also looks at how to get ready for emergencies. Boxes to tick and write in are included throughout the booklet, providing a useful list of things to do or find out. This is one of a series of publications to come from the Mutual Caring project, set up to promote good practice and improve service provision for older families caring for people with learning disabilities.
Supporting you as an older family carer: a booklet to support older family carers of people with learning disabilities to get the right support now and to plan for emergencies and the long term
- Authors:
- MAGRILL Dalia, PEARCE-NEUDORF Justin
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 50p.
- Place of publication:
- London
This booklet has been developed to help older family carers who are caring for people with learning disabilities to think and plan for the future as they get older. It covers: Getting the right support now; Practical support you may find useful; Preparing for emergencies; Preparing for the future. It aims to present different options and present a good starting point to finding solutions. It includes checklists and notes boxes to record information and service needs. It is one of a series of publications to come from the Mutual Caring project, set up to promote good practice and improve service provision for older families caring for people with learning disabilities.