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Supporting you as an older family carer: a booklet to support older family carers of people with learning disabilities to get the right support now and to plan for emergencies and the long term
- Authors:
- MAGRILL Dalia, PEARCE-NEUDORF Justin
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 50p.
- Place of publication:
- London
This booklet has been developed to help older family carers who are caring for people with learning disabilities to think and plan for the future as they get older. It covers: Getting the right support now; Practical support you may find useful; Preparing for emergencies; Preparing for the future. It aims to present different options and present a good starting point to finding solutions. It includes checklists and notes boxes to record information and service needs. It is one of a series of publications to come from the Mutual Caring project, set up to promote good practice and improve service provision for older families caring for people with learning disabilities.
Supporting you and your family as you grow older together: a booklet for people with learning disabilities who live at home with an older family carer
- Authors:
- MAGRILL Dalia, PEARCE-NEUDORF Justin
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 30p.
- Place of publication:
- London
A practical booklet for people with learning disabilities who are cared for by an older person in their family. It aims to help the family live together now, and also to think about things that may need to be done in the future. This booklet provides: good questions to ask; things that can help you now and in the future; and some of the people who can help you. It also looks at how to get ready for emergencies. Boxes to tick and write in are included throughout the booklet, providing a useful list of things to do or find out. This is one of a series of publications to come from the Mutual Caring project, set up to promote good practice and improve service provision for older families caring for people with learning disabilities.
Good Learning Disability Partnership Boards: 'making it happen for everyone'
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2009
- Pagination:
- 38p.
- Place of publication:
- London
This good practice guidance has been developed to help Learning Disability Partnership Boards to oversee the monitoring and delivery of Valuing People Now. The contents includes local governance arrangements, membership of Partnership Boards, good and effective meetings, work programmes, performance and financial management, and communication and awareness raising. Best practice examples and a self-assessment template setting out the range of local data that Partnership Boards can access to inorder to assess progress locally are also provided.
Dementia: supporting people with dementia and their carers: understanding NICE-SCIE guidance
- Author:
- NATIONAL COLLABORATING CENTRE FOR MENTAL HEALTH
- Publishers:
- National Institute for Health and Clinical Excellence, Social Care Institute for Excellence
- Publication year:
- 2006
- Pagination:
- 19p.
- Place of publication:
- London
Produced by NICE and SCIE, this guideline makes recommendations for the identification, treatment and care of people with dementia and the support of carers within primary and secondary healthcare, and social care. The guide is for health and social care staff who work with people with dementia and their carers, and those who work with older people and people with learning disabilities. This includes GPs, nurses, geriatricians, psychiatrists, social workers, care home managers and care staff. It also includes recommendations relevant to commissioners, managers and coordinators of health and social care.
Meeting the challenge. Guide 1: your rights when you are living in the community: supporter version
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2015
- Pagination:
- 9
- Place of publication:
- London
Outlines the rights of people with a learning disability when living in the community. This guide aims to help supporters understand the rights of people with a learning disability, so that they can get the right services and support to meet their needs. This will help keep them safe, happy and healthy and make sure they know when things are not going the way that they should and are able to take action. The guide sets out the legal framework, outlining the Human Rights Act and the Mental Capacity Act, describes what good support should look like, and explains what a person should do if they experience abuse. (Edited publisher abstract)
Clinical guidelines and integrated care pathways for the oral health care of people with learning disabilities 2001
- Authors:
- THE ROYAL COLLEGE OF SURGEONS OF ENGLAND. Faculty of Dental Surgery, et al
- Publisher:
- The Royal College of Surgeons of England. Faculty of Dental Surgery
- Publication year:
- 2001
- Pagination:
- 56p.
- Place of publication:
- London
Evidence confirms that people with learning disabilities’ uptake of screening services is lower and that they have poor oral health when compared to the general population. Good oral health is linked to good general health and a number of systemic diseases have oral manifestations. Improvements in oral health care can be obtained by encouraging carers to regularly examine the mouth of the person they are caring for. Completing an oral assessment will help to identify any changes in the mouth. This can aid diagnosis and treatment if reported to the dentist at an early stage. vThe guidelines are based on published evidence and follow the format of other clinical guidelines developed by the Faculty of Dental Surgery The Royal College of Surgeons of England and those from the British Society of Disability and Oral Health. Information was gathered from consultation groups of people with mild to moderate learning disabilities. Postal questionnaires were also used.
A COVID-19 guide for carers and family supporting an adult with learning disabilities/autism
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2020
- Place of publication:
- London
A guide to help family members and carers supporting adults and children with learning disabilities and autistic adults through the coronavirus (COVID-19) crisis. The guidance aims to help families keep people with learning disabilities and/or autism safe, and to help them play their part in getting through this national emergency, while at the same time protecting and promoting their quality of life wherever possible. Areas covered in the guide include: staying well; advance planning; Care Act; safeguarding; and death and bereavement. (Edited publisher abstract)
Coronavirus (COVID-19): providing unpaid care to adults with learning disabilities and autistic adults
- Author:
- GREAT BRITAIN. Department of Health and Social Care
- Publisher:
- Great Britain. Department of Health and Social Care
- Publication year:
- 2020
- Place of publication:
- London
Guidance for people who are providing unpaid care to adults with learning disabilities and autistic adults during the coronavirus (COVID-19) outbreak. The guidance provides information to help people with caring responsibilities to keep people with learning disabilities and autistic people safe, support people with learning disabilities to understand the changes they need to make during the COVID-19 outbreak, and information on protecting carers' own wellbeing. It draws on more detailed guidance published by the Social Care Institute for Excellence (SCIE), which will continue to be updated with resources to support those who care for people with learning disabilities and autistic people. [First published 24 April 2020. Last updated 24 August 2021] (Edited publisher abstract)
Ask listen do: making conversations count in health, social care and education. Top tips for families and carers
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2018
- Pagination:
- 8
- Place of publication:
- Leeds
Booklet to help families, parents and carers of those with a learning disability or autism give feedback, raise concerns and make complaints across education, health and social care. It provides information on the difference between giving feedback, raising a concern or making a complaint. It also provides tips to help people be confident about having conversations with people in all the organisations involved in the lives of those they care for and to feel more empowered to navigate the complex systems of feedback, concerns and complaints. (Edited publisher abstract)
Safe and healthy: health and safety good practice guide for carers and workers providing home and community based short breaks to disabled children and young people
- Author:
- SHARED CARE NETWORK
- Publisher:
- Short Breaks Network
- Publication year:
- 2011
- Pagination:
- 57p.
- Place of publication:
- Bristol
- Edition:
- 2nd ed.
A practical book providing information and advice to short-break carers on keeping the disabled children in their care safe and healthy. Short chapters contents cover: risk assessments, home safety, fire safety, safety outside the home, safety in the care, personal care and hygiene, illnesses, accidents and care for children with pre-existing medical conditions, and pets. The contents will help to support carers in achieving the Children's Workforce Development standards for short-break carers. Also relevant for professionals supporting disabled children and young people including sitters, play scheme workers, befrienders and domiciliary care workers.