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Keeping it in the family? People with learning disabilities and families employing their own care and support workers. Findings from a scoping review of the literature
- Authors:
- MANTHORPE Jill, MORIARTY Jo, CORNES Michelle
- Journal article citation:
- Journal of Intellectual Disabilities, 15(3), September 2011, pp.195-207.
- Publisher:
- Sage
- Place of publication:
- London
The use of consumer-directed support in England is increasing through the use of personal budgets and direct payments. This article draws on the findings of a scoping review of the literature conducted in 2010 on employment relationships between adults with disabilities and the care or support workers they employ using public or private funds. This article focuses on the findings of the earlier review with regard to the people with learning disabilities and their family carers who employ care or support workers. The review identified a small number of studies that involved people with learning disabilities as respondents, although more relied on family carers as proxy respondents. The findings from these studies covered: recruitment and administration; employment of family members; training needs; the nature and content of employment relationships; and ending employment. The article observes that there is little information on the management and negotiations of employment relationships, particularly when family members step into paid roles. Messages from the review are provided for family carers, for people with learning disabilities and for care and support workers.