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Barriers to caregiver compliance with eating and drinking recommendations for adults with intellectual disabilities and dysphagia
- Authors:
- CHADWICK Darren D., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 19(2), June 2006, pp.153-162.
- Publisher:
- Wiley
This study explores the barriers which caregivers believe make following Speech and Language Therapists' (SLTs) dysphagia management strategies more difficult. Semi-structured open-ended interviews were conducted with 46 caregivers who supported 40 intellectually disabled adults with dysphagia. Caregivers perceived particular difficulties in modifying food and drinks to safe consistencies, achieving the agreed positioning during mealtimes, and in using support and prompting strategies. Problematic support and prompting strategies included difficulties with pacing correctly; facilitating people to adequately relax and concentrate; observing and prompting people to pace suitably and take safe amounts of food and drink in each mouthful. Additional barriers identified included time pressures, staff turnover and insufficient reviewing of SLT management strategies by caregivers. Findings suggest that additional training and monitoring is required to ensure caregivers are aware of their role and responsibility in promoting safe oral intake for adults with dysphagia and intellectual disabilities. Ongoing support is suggested for people with intellectual disabilities and dysphagia to help them understand the reasoning behind management strategies.
Working together: easy steps to improve how people with a learning disability are supported when in hospital: guidance for hospitals, families and paid support staff
- Authors:
- HARKNESS Jenny, et al
- Publisher:
- Home Farm Trust
- Publication year:
- 2006
- Pagination:
- 33p.
- Place of publication:
- Bristol
This guidance has been produced by a working group of family carers, hospital staff, learning disability nurses and paid support staff, facilitated by HFT. Its aim is to help ensure that people with learning disabilities get the right kind of support and effective treatment during their stay in hospital. Four sections explain what family carer, paid support staff and hospital staff should be doing before admission, at admission, during admission, and at the end of a hospital stay to achieve the best outcomes for people with learning disabilities. The guide stresses the importance of working together. Appendices include a checklist for an admission meeting, The Traffic Light Hospital Assessment and The Risk, Dependency and Support Assessment.
Helping people with learning disabilities manage continence: a workbook for support workers and carers
- Authors:
- BRADLEY Alice, LAMBE Loretto
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2006
- Pagination:
- 99p.
- Place of publication:
- Kidderminster
Continence is one of those things we seldom think about if we don’t have a problem, but which assumes massive proportions if we do. Incontinence is very much a taboo subject and relatively little has been written about it in relation to people with learning disabilities. This workbook has been produced in partnership with people with learning disabilities to rectify the situation. By understanding continence better and improving the support available, care staff can help enhance the quality of life for individuals and, where relevant, for their families.
Good support: a training pack for self advocacy groups to train their support workers
- Authors:
- COWIE Julia, Le-SURF Mike
- Publisher:
- Values into Action
- Publication year:
- 2006
- Pagination:
- 120p., DVD
- Place of publication:
- London
This training course is for self advocacy groups to use to help train their support workers. It is designed to help meet the needs of self advocacy groups for trained supporters, and the need of supporters for training.
The dangers of 'ivory tower' management
- Author:
- O'DRISCOLL David
- Journal article citation:
- Community Living, 20(2), November 2006, pp.18-19.
- Publisher:
- Hexagon Publishing
The author explores some of the difficulties support staff in residential and day care may experience with their managers and how this organisational culture can impact on this relationship. He looks particularly at managers who become too involved in administration and distance themselves from the daily activities, avoiding being with clients and staff.
Physical intervention with people with intellectual disabilities: the influence of cognitive and emotional variables
- Authors:
- DAGNAN Dave, WESTON Clive
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 19(2), June 2006, pp.219-222.
- Publisher:
- Wiley
This study examines the relationship between the topography of challenging behaviour, subsequent attributions and emotional responses, with whether carers use physical intervention and their satisfaction with their intervention. Thirty-seven carers described incidents where a person with an intellectual disability had exhibited verbal or physical aggression. The carer rated attributions of controllability, internality, globality and stability, global evaluations of the person's behaviour and of the persons themselves, emotions of anger and sympathy, and satisfaction with their intervention. The topography of the aggressive behaviour (verbal or physical) and the topography of the intervention (physical intervention or non-physical intervention) were coded from accounts of the incident given by carers in the interview. Attributions of control and internality were significantly associated with less satisfaction with intervention. People who presented with physical aggression were evaluated more negatively. However, only the topography of the behaviour (whether the incident was verbal or physical aggression) was associated with the use of physical intervention. This study did not find a relationship between cognitive-emotional variables and the topography of intervention. However, relationships between cognitive variables and satisfaction with intervention were observed. Implications for research and clinical work are discussed.
Staying with people who slap us around: gender, juggling responsibilities and violence in paid (and unpaid) care work
- Author:
- BAINES Donna
- Journal article citation:
- Gender, Work and Organization, 13(2), March 2006, pp.129-151.
- Publisher:
- Blackwell
Little is actually known about women's occupational health, let alone how men and women may experience similar jobs and health risks differently. Drawing on data from a larger study of social service workers in Canada, this article examines four areas where gender is pivotal to the new ways of organizing caring labour, including the expansion of unpaid work and the use of personal resources to subsidize agency resources; gender-neutral violence; gender-specific violence and the juggling of home and work responsibilities. Collective assumptions and expectations about how men and women should perform care work result in men's partial insulation from the more intense forms of exploitation, stress and violence. This article looks at health risks, not merely as compensable occupational health concerns, but as avoidable products of forms of work organization that draw on notions of the endlessly stretchable capacity of women to provide care work in any context, including a context of violence. Indeed, the logic of women's elastic caring appear crucial to the survival of some agencies and the gender order in these workplaces.
Rights, risks and limits to freedom: principles and good practice guidance for practitioners considering restraint in residential care settings
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2006
- Pagination:
- 40p.
- Place of publication:
- Edinburgh
This guidance sets out a number of general principles that the Commission believes apply to the use of restraint in any setting. These general principles should be taken into account when restraint is being considered in the care of any person who has a mental learning difficulty, dementia or other mental disorder. The guidance aims to help guide thinking on the use of restraint and encourage all care staff to consider their actions and the impact that those actions may have on the people they are caring for. This guidance cannot give answers to every situation residents and care staff find themselves in. The document also includes sections on particular types of restraint and interventions that can lead to the freedom of movement and liberty of residents being limited in some way.