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Keeping it in the family? People with learning disabilities and families employing their own care and support workers. Findings from a scoping review of the literature
- Authors:
- MANTHORPE Jill, MORIARTY Jo, CORNES Michelle
- Journal article citation:
- Journal of Intellectual Disabilities, 15(3), September 2011, pp.195-207.
- Publisher:
- Sage
- Place of publication:
- London
The use of consumer-directed support in England is increasing through the use of personal budgets and direct payments. This article draws on the findings of a scoping review of the literature conducted in 2010 on employment relationships between adults with disabilities and the care or support workers they employ using public or private funds. This article focuses on the findings of the earlier review with regard to the people with learning disabilities and their family carers who employ care or support workers. The review identified a small number of studies that involved people with learning disabilities as respondents, although more relied on family carers as proxy respondents. The findings from these studies covered: recruitment and administration; employment of family members; training needs; the nature and content of employment relationships; and ending employment. The article observes that there is little information on the management and negotiations of employment relationships, particularly when family members step into paid roles. Messages from the review are provided for family carers, for people with learning disabilities and for care and support workers.
Managers' and staff experiences of adult protection allegations in mental health and learning disability residential services: a qualitative study
- Authors:
- REES Paul, MANTHORPE Jill
- Journal article citation:
- British Journal of Social Work, 40(2), March 2010, pp.513-529.
- Publisher:
- Oxford University Press
Adult protection policy slowly developed in England and Wales during the 1990s. In the same decade specialist residential services expanded for people with mental health problems and with learning disabilities. Many referrals to adult protection systems emanate from this sector but few result in conclusive outcomes. This article reports on a small study exploring the impact of adult protection legislation and guidance within a small number of residential adult mental health and learning disability units in England and Wales. The focus of the article is the issues for staff who have been accused of abuse and for the managers of such services during investigations. Data from interviews with 13 residential unit managers and 10 care workers, who were suspended following an allegation but later exonerated, are presented. Perceptions of the development of adult protection practice, policy and legislation were that these have generally led to positive outcomes. However, these data reveal other outcomes including service disruption, stress for residents, staff and managers. Multi-agency collaboration, transparency of practice, training, reflective practice, and effective supervision of frontline staff, appeared to assist managers and care workers in negotiating the positive and negative experiences of the implementation of adult protection systems.