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Does the daily choice making of adults with intellectual disability meet the normalisation principle?
- Authors:
- SMITH Rosanne, MORGAN Michaela, DAVIDSON John
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 30(4), December 2005, pp.226-235.
- Publisher:
- Taylor and Francis
This study examined whether daily choice availability for adults with intellectual disability was consistent with Nirje's (1973) normalisation principle. Ratings of the daily choice availability of 59 people with intellectual disability in group homes and 198 individuals without intellectual disability in family homes were obtained. Level of disability, rather than age, affected choice availability of adult participants. Choice availability was significantly lower for adults with more severe intellectual disability, but no significant difference was found between adults with milder disability and those without intellectual disability. Quadratic and bilinear models were fitted to data from 198 adults and children without disability. The better fitting bilinear model showed an increase in choice availability during childhood that plateaued on reaching adulthood. Choice availability age-equivalents were calculated, which were age-appropriate for adults with milder intellectual disability, but substantially lower than expected for adults with moderate to severe disability. The normalisation principle was met for adults with milder intellectual disability, but not for adults with more severe disability.
Modern times: an ethnographic study on the quality of life of people with a high support need in a Flemish residential facility
- Authors:
- de WAELE Isabel, Van HOVE Geert
- Journal article citation:
- Disability and Society, 20(6), October 2005, pp.625-639.
- Publisher:
- Taylor and Francis
This ethnographic study shows the impact of the care system on clients’ and staff’s life experiences, with the clear distance between these two groups as one of the core issues. Together with a dominant care approach and a well established but subtile system of control, it makes them function in systems that are characterized by an oppressing care culture. Learned helplessness prevents both groups of acting upon quality of life outcomes. The idea of supporting a life of good quality through merely improving these traditional care systems should therefore be considered with caution, and real alternatives should be considered to open this barrier of the oppressing care culture.
National care standards: care homes for people with learning disabilities
- Author:
- SCOTLAND. Scottish Government
- Publisher:
- Scotland. Scottish Government
- Publication year:
- 2005
- Pagination:
- 78p.
- Place of publication:
- Edinburgh
- Edition:
- Rev ed.
The National Care Standards Committee was set up by the Scottish Government to develop national standards in collaboration with a number of working groups including service users and service providers. They are designed to be from the point of view of service users to help them to understand what they can expect from the service provider. They may also be of use to service providers to help them know what is expected of them. The standards in this publication cover care homes for people with learning disabilities. These services provide accommodation together with nursing and personal care or support to people with learning disabilities. People with learning disabilities have the same rights and responsibilities as other people. These standards aim to make sure that people with learning disabilities keep these rights and responsibilities when they are staying in a care home. The standards are grouped under 4 headings: before moving in; settling in; day-to-day life; and moving on.
Home of choice
- Author:
- WELLARD Sarah
- Journal article citation:
- Community Care, 15.05.05, 2005, pp.42-43.
- Publisher:
- Reed Business Information
Provides an overview of ChoicE, a one-stop scheme run by a Citizens Advice team in Manchester which is helping older people, vulnerable people and their relatives find the right care home.
Care standards in homes for people with intellectual disabilities
- Authors:
- BEADLE-BROWN Julie, HUTCHINSON Aislinn, MANSELL Jim
- Publisher:
- Tizard Centre
- Publication year:
- 2005
- Pagination:
- 13p.
- Place of publication:
- Canterbury
National minimum standards for residential care homes were introduced following the Care Standards Act 2000 in response to concern about lack of consistency and poor quality services. These standards are intended to reflect outcomes for service users and to be comprehensive in scope. This study compared ratings made by care standards inspectors with research measures for 52 homes for people with intellectual disabilities serving 299 people. The research measures focused on the lived experience of residential care, including engagement in meaningful activity, choice and participation in activities of daily living. They also included measures of related care practices and organisational arrangements. The research measures were in general significantly correlated with each other. Most of the care standards ratings were also correlated with each other.
Safe to wander?: principles and guidance on good practice in caring for residents with dementia and related disorders where consideration is being given to the use of wandering technologies in care homes and hospitals
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2005
- Pagination:
- 11p.,bibliog.
- Place of publication:
- Edinburgh
This guidance looks at the principles which should be applied when considering the use of wandering technology and the current legal implications of its use. This guidance is not exhaustive, it should be used to help guide staff in conjunction with standards produced in Scotland by the National Care Standards Committee and local policies and procedures in care homes and hospital settings. Although primarily aimed towards the care of residents with dementia in care homes and hospitals, this guidance may also be helpful in relation to care of people with a learning disability or an acquired brain injury.The guidance is also relevant to people living in their own homes particularly as the use of developing technologies can be helpful in delaying and preventing admissions to institutional settings.