Search results for ‘Subject term:"learning disabilities"’ Sort:
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Cancer and people with learning disabilities: the evidence from published studies and experiences from cancer services
- Authors:
- HOGG James, NORTHFIELD John, TURNBULL John
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2001
- Pagination:
- 57p.,bibliog.
Reviews the published literature on cancer and people with learning difficulties and reports on the experiences of people with learning difficulties, their families and staff of cancer services. The review was commissioned by the Department of Health to provide background information for 'Valuing people: a new strategy for learning disability for the 21st century'.
Cancer and intellectual disability: a review of some key contextual issues
- Authors:
- HOGG James, TUFFREY-WIJNE Irene
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 21(6), November 2008, pp.509-518.
- Publisher:
- Wiley
Research into the health of people with intellectual disabilities has increasingly focused on the occurrence of cancer in this population. Information on the incidence and prevalence of cancer is reviewed in both institutional and community settings. Examples of environmental causation are considered including Helicobacter pylori. Gender-specific issues are considered with respect to both women and men, and screening services discussed. The overall issue of timely diagnosis of cancer in members of this population is reviewed with special reference to avoidable deaths. The need for methodologically sound studies to clarify the epidemiology of cancer in people with intellectual disabilities is discussed.
End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources
- Authors:
- TUFFREY Irene, HOGG James, CURFS Leopold
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 20(4), July 2007, pp.331-344.
- Publisher:
- Wiley
This paper reviews the literature around the need of people with intellectual disabilities for palliative care. A range of databases and the World Wide Web were searched for relevant papers, book chapters, training and information materials, unpublished materials and policy guidelines. Publications from 1995 to 2005 are included. Although there has been a steady increase in published materials in recent years, research data around the palliative care needs of people with intellectual disabilities remain scarce. Case reports are the most prevalent method of exploring pertinent issues. The paper presents an overview of issues identified in the literature, with a particular focus on pain and symptom assessment, ethical issues, service planning and training needs. The authors conclude there are significant gaps in current knowledge and make recommendations for future areas of research and development.