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People with intellectual disabilities in out-of-area specialist hospitals: what do families think?
- Authors:
- BONELL Simon, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 24(5), September 2011, pp.389-397.
- Publisher:
- Wiley
Guidance on commissioning specialist learning disability services addresses the importance of listening to family carers’ views about services and attempting to keep people close to their home and community. Despite this, out-of-area hospital care persists, with its attendant problems such as reduced family visits and difficulties in community rehabilitation. The aim of this study was to examine the views of family members of people with intellectual disabilities who are being cared for in out-of-area psychiatric hospitals, in particular focusing on whether culturally appropriate services were being provided. A total of 16 family members of patients receiving care in an out-of-area hospital were interviewed about their views on the care their relative or partner was receiving. Transcripts were then analysed by the study team and themes identified. The families expressed a wide range of views regarding out-of-area hospital care. Important themes identified were: feelings of shame; concerns about safety; cultural needs not being met; lack of improvement; and lack of involvement in care. These views on negative aspects of care should guide areas for quality improvement initiatives for inpatient services.