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Understanding the needs of disabled children with complex needs or life-limiting conditions. What can we learn from national data?
- Author:
- PINNEY Anne
- Publishers:
- Council for Disabled Children, The True Colours Trust
- Publication year:
- 2017
- Pagination:
- 84
- Place of publication:
- London
Shares the findings of an analysis of national data for children and young people aged 0-19 years with complex needs or life-limiting conditions in England, carried out between August and October 2016. The report explores the data available; examines what data reported by health, education and social services says about the population; and identifies current gaps in data collection. It provides key findings from an analysis of: education data on children and young people with special educational needs (SEN); social care data on disabled children who are looked after and on children in need with a disability; and mental health data on children and young people with learning disabilities and/or autistic spectrum disorders in inpatient care and referred. The analysis estimates that the numbers of disabled children with complex needs and life-limiting conditions have increased from 49,300 in 2004 to 73,000 in 2016. The report concludes that there needs to be a clearer picture of the number of disabled children and young people with complex needs and life-limiting illnesses and how this is changing over time so that local areas can estimate demand for future services. It makes 12 recommendations under the themes of: filling the data gaps, making better use of data already collected, the creation of an integrated data set on disabled children and young people; and raising awareness of trends and generating local data. (Edited publisher abstract)
Children with learning disabilities whose behaviours challenge: what do we know from national data?
- Author:
- PINNEY Anne
- Publisher:
- Challenging Behaviour Foundation
- Publication year:
- 2014
- Pagination:
- 34
- Place of publication:
- Chatham
This data supplement, written to accompany the briefing paper 'Early intervention for children with learning disabilities whose behaviours challenge', presents the findings and recommendations from an analysis of all the available national data on children with learning disabilities and behaviour that challenges in England, in 2013. It draws on SEN (Special Educational Needs) data collected by the Department for Education (DfE) and the Learning Disabilities Census, which provides information children and young people with a learning disability, autistic spectrum disorder and/or behaviour that challenges, who were in-patients in assessment and treatment centres in September 2013. For school data the report analyses information on the number of children with learning difficulties or autistic spectrum disorders and their individual characteristics; types of schools attended; residential and 'out of area' placements; trends in special school placements and costs. The Learning Disabilities Census analysis provides information on the number of children who were in-patients in assessment and treatment centres and the use of anti-psychotic medication and incidents of concern. Recommendations for improving national data in relation to residential placements, independent schools and cost data are then provided. (Edited publisher abstract)