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Mental health in learning disabilities: a reader
- Editors:
- HOLT Geraldine, HARDY Steve, BOURAS Nick, (eds.)
- Publisher:
- Pavilion
- Publication year:
- 2005
- Pagination:
- 223p.
- Place of publication:
- Brighton
- Edition:
- 3rd ed.
This book, like its previous editions, aims to provide the reader with up-to-date information on mental health problems in people with learning disabilities and associated issues. It has been updated and extended with six additional chapters, to reflect latest developments in services and treatment.
A strategic assessment of the accommodation with support needs for people with a learning disability, autism and mental health conditions 2020-2030
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2021
- Place of publication:
- London
Building the Right Home and the National Service Model state that people should have choice about where they live and who they live with. It is critical that people have the right accommodation to meet their needs to ensure sustainable housing solutions. This means that we have to have a personalised response to accommodation, which will require us to fully understand a person’s individual needs and then seek to meet those needs in the best possible way. The project set out to provide the evidence for accommodation needs in line with the principles that people with learning disabilities and/or autism who display behaviour that challenges, including those with a mental health condition should be supported to live in their own homes in the community with the right support, in a home of their choice, where they feel happy and safe. To assess the accommodation needs case management data was analysed along with interviews with practitioners while those with lived experience took part in designing and completing a survey. The project identified that some existing placements for all cohorts could move to supported living. The 10-year projections across the ICS, taking re-lets into account show a need for 663 units of accommodation with support for those with learning disabilities and autism, while the need for those with severe mental health needs is 653 accommodation units. (Edited publisher abstract)
Finding you finding me: using intensive interaction to get in touch with people whose severe learning disabilities are combined with autistic spectrum disorder
- Author:
- CALDWELL Phoebe
- Publisher:
- Jessica Kingsley
- Publication year:
- 2006
- Pagination:
- 174p., bibliog.
- Place of publication:
- London
This book makes accessible for the first time the complex, intricate inner and sensory worlds of people whose learning disabilities are combined with autistic spectrum disorder and, often, difficult-to-manage behaviour. Based on many years of working with such people, many of whom have withdrawn into a world of their own, she explores the different sensory reality they experience, showing it to be infinitely more complex and varied than is widely understood. She introduces a practical approach known as Intensive Interaction, which uses the body language of such people - who have hitherto largely been regarded as unreachable - to get in touch with them, giving them a way of expressing themselves which shifts their attention from solitary self-stimulation to shared activity. The outcome is not only a marked improvement in behaviour and ability to communicate but, more important, many parents will say 'they are just much happier'.
Building the Right Small Supports: evaluation report
- Author:
- MASON-ANGELOW Victoria
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2021
- Pagination:
- 10
- Place of publication:
- Bath
- Edition:
- Updated version
This document explores the costs and benefits of individuals with a learning disability, mental health condition and/or autism receiving support from a Small Support organisation in England. Small Support organisations are unique support providers that have a number of things in common, including: planning and delivering support in a truly person-centred way; person-led staff recruitment and training; structuring and using funding around the person; a separation of housing and support; strong partnerships between the individual and family, commissioners, and providers; and staying small. Reducing costs to the public purse is not the primary aim of any Small Support organisation. Each organisation’s purpose is to improve the lives of people with a learning disability, mental health condition and/or autistic people, through bespoke support – and that can come at a cost. However, consideration of whether something represents value for money is of inevitable interest to those providing and commissioning services. In the absence of sufficient data to conduct a full cost-benefit analysis of a Small Support organisation in England, the five costed case studies outlined in this paper provide an illustration of the fiscal and social value of such organisations. The case studies represent a saving of over half a million pounds to the public purse a year; particularly to health, social care and police budgets in England. This information suggests that Small Support organisations offer both good value for money as well as improved outcomes for those they support. As a result, Small Support organisations should be considered more widely as an option for individuals with learning disabilities, mental health condition and/or autism. (Edited publisher abstract)
Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital
- Author:
- ARMSTRONG Richard
- Journal article citation:
- Tizard Learning Disability Review, 26(2), 2021, pp.77-86.
- Publisher:
- Emerald
Purpose: This case study aims to describe how patients with autism and/or a learning disability detained in a psychiatric hospital were supported to register and vote in the 2019 UK general election. Design/methodology/approach: A speech and language therapist supported patients to register and vote. Data on the number of patients who registered and voted are reported as well as feedback from patients about their experiences. Findings: Forty-two per cent of patients registered to vote; 27% did not want to register; and 31% could not understand the information provided and/or state a clear preference because of the severity of their cognitive and communication difficulties. Fifteen per cent of patients voted and were all first-time voters. Originality/value: This study demonstrates that it is possible to support significant numbers of autistic and learning disabled patients in a psychiatric hospital to register for and vote in a parliamentary election. (Edited publisher abstract)
Commentary on “Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital”
- Author:
- WALTZ Mitzi
- Journal article citation:
- Tizard Learning Disability Review, 26(2), 2021, pp.87-89.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide a commentary on the article “Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital”. Design/methodology/approach: This paper considers the wider issue of political participation by persons with disabilities, especially those whose freedom is restricted. Findings: Access to voting rights remains problematic for many disabled people. It is crucial that this basic form of political participation is ensured, but there is further to go. Originality/value: This paper suggests the need for greater attention to and support for disabled peoples’ right to political participation, including people with learning disabilities and autism. (Edited publisher abstract)
COVID-19 and intellectual disability/autism spectrum disorder with high and very high support needs: issues of physical and mental vulnerability
- Authors:
- BUONAGURO Elisabetta F., BERTELLI Marco O.
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 15(1), 2021, pp.8-19.
- Publisher:
- Emerald
Purpose: The COVID-19 outbreak has profoundly plagued the world, and current health efforts are focused on providing prevention and ensuring access to intensive services for people with the most severe symptomatology. Many reports have already described substantial psychological distress in the general population. Nevertheless, disasters tend to affect vulnerable subjects disproportionately, and individuals with intellectual disabilities/autism spectrum disorder with high and very high support needs (PwID/ASD-HSN) seem to be counted among the hardest hit populations. The present paper aims to provide a comprehensive discussion and evaluation of COVID-19 related issues specific to PwID/ASD-HSN. Design/methodology/approach: Commentary on available literature and analysis of new preliminary data on PwID/ASD-HSN’s physical and psychic vulnerability factors. This knowledge is fundamental to provide families and caregivers special advice to counteract the risks associated with the current pandemic. Findings: PwID/ASD-HSN represent one of the most vulnerable population to the COVID-19 outbreak and the associated factors of mental distress for several reasons, including multimorbidity, low levels of health literacy, difficulties to understand and communicate, reliance on other people for care, low compliance with complex hygiene rules, the strong need of routine/sameness and low adaptive skills. Originality/value: In the present work, the authors analyze the specific factors of physical and mental vulnerability in PwID/ASD-HSN, corroborating the dissertation with a discussion on the first data published worldwide and with preliminary data collected on the Italian territory for what concerns prevalence rates of COVID-19 and complications in persons with PwID/ASD-HSN and signs and symptoms of psychic distress during the mass quarantine period. (Edited publisher abstract)
Lived experience of restraint, seclusion and segregation (RSS): stories and recommendations for safer care
- Authors:
- ADVONET, CHANGE
- Publishers:
- Advonet, Change
- Publication year:
- 2020
- Pagination:
- 23
- Place of publication:
- Leeds
This report aims to put the authentic voices of people with lived experience of restraint, seclusion and segregation (RSS) in care settings at the heart of the conversation about safe and effective care. Participant spoke of being afraid, scared, angry, upset when experiencing RSS; they felt that staff in healthcare settings lacked empathy and were not person-centred; and that there was a lack of adequate staffing in care settings. They saw the impact that poor resourcing, lack of training, and unsupportive cultures had on the staff who were at the frontline of their care. Some participants had positive experiences of RSS. They were clear that this was when it was used as part of a person-centred de-escalation strategy, with compassion, and as a last resort where safety was a concern. However, participants also provided very many examples of bad practice in implementing restraint, seclusion and segregation. People spoke of many experiences where they were physically, psychologically and emotionally harmed. People with lived experience expect: robust, personalised and appropriate training for care staff; accountability and action, at all levels, including funding commitments from the government for better, community-led care models; a stronger role for advocacy, including peer and family advocacy, and a more co-operative and involving culture within care providers. Most of our participants voiced the view that restraint, seclusion and segregation should be stopped, and people should be cared for in their own communities with appropriate support. (Edited publisher abstract)
STOMP: top tips for advocates
- Author:
- VOICEABILITY
- Publisher:
- Voiceability
- Publication year:
- 2018
- Pagination:
- 12
- Place of publication:
- Cambridge
A guide, developed in partnership with NHS England, which explains how advocates can help prevent the over use of psychotropic medication in people with a learning disability, autism or both. The guide will help advocates to understand their role in relation to medication and supporting people to have a better life. This includes ensuring that the views about their medication are heard, that people's rights are upheld and they are supported to make their own choices and enjoy a good life. It also explains why people with a learning disability or autism are more likely to be given psychotropic medications than other people, the negative side effects it can cause and provides information on best practice in supporting people whose behaviour challenges. (Edited publisher abstract)
No voice unheard, no right ignored: key themes from the consultation responses
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2015
- Pagination:
- 118
- Place of publication:
- London
Between March and May 2015, the Department of Health asked people and organisations to share their views about strengthening the rights and choices of people to live in the community, especially people with learning disabilities, autism or mental health conditions. This document summarises the main trends in responses to the consultation. There were 481 responses to the consultation: half came from individuals or families, and half from organisations or groups. Most responses from individuals were from service users or family members and carers. Most responses from organisations were from voluntary sector groups, followed by local authorities and the NHS. The responses covered a range of themes, including: being part of the community; being listened to; the Mental Health Act 1983; budgets and finances; and physical and mental health. (Edited publisher abstract)